Emma's fight with Biliary Atresia and journey to a new liver

Emma's fight with Biliary Atresia and journey to a new liver This page is dedicated to Emma's journey with Biliary Atresia. We will use this page to provide health updates and any upcoming fundraising events.

Feel free to post positive thoughts for Emma and her family or any questions you may have regarding Emma.

05/11/2026

Asking for prayers today for Simon๐Ÿ’š We met little Simon in February, she also has biliary atresia, and her transplant surgery is today! She is at the same hospital as Emma and we are praying hard for her surgery to be complication free today ๐Ÿ’š Go Simon! ๐Ÿ’š

05/10/2026

GGT levels are down by over 100 ๐Ÿค— Looking at going home early Tuesday morning if everything stays on track! Emma is in great spirits with lots of kisses and peek a boos with Mimi and Papa over FaceTime ๐Ÿ’š

05/10/2026

Emma is officially drain free, they removed it from her belly today โ™ฅ๏ธ

05/09/2026

Emma is having a much better day today! No fever and just relaxing. They started an antibiotic to cover all bases, that will end Tuesday. Holding on to hope that she will be able to go home early this week. ๐Ÿคž๐Ÿ’š

Emma and Daddy got to see each other today ๐Ÿ’š thank you all for the prayers!  Both are healing incredibly well๐Ÿ’š
05/07/2026

Emma and Daddy got to see each other today ๐Ÿ’š thank you all for the prayers! Both are healing incredibly well๐Ÿ’š

05/06/2026

Our giggly girl is back! Emmaโ€™s GGT is still going up but Dr. Adamโ€™s says itโ€™s normal to go up before it comes down. All other labs are trending the right way and they are talking about going home early next week! Still need to get feeds under control because sheโ€™s still been throwing up but we will take all the good news we can get ๐Ÿ’š

Mimi and Papa got a big smile and waves today ๐Ÿ’š Love and miss this precious girl so so much ๐Ÿ’š
05/05/2026

Mimi and Papa got a big smile and waves today ๐Ÿ’š Love and miss this precious girl so so much ๐Ÿ’š

05/05/2026

Baby girl got some playtime today๐Ÿ’š They are thinking the elevated GGT may be due to her not passing her stents that were put it during surgery. These can take a year to pass. No fever or other signs of infection!

We have some smiles today ๐Ÿ’š but we may be hitting our first bump in the road!  She  vomited twice yesterday after meds a...
05/05/2026

We have some smiles today ๐Ÿ’š but we may be hitting our first bump in the road! She vomited twice yesterday after meds and her GGT levels have been going up over the past two days which means an infection may be on the way. They are going to start ursidol to help with it because itโ€™s likely to be Cholangitis again ๐Ÿ˜ข. They are watching her closely๐Ÿ’š

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