Consortium of Investigators of Vascular Anomalies - Canvas

Home
United States
Philadelphia, PA
Consortium of Investigators of Vascular Anomalies - Canvas

CaNVAS is a multi-institutional research consortium to address the rare nature of vascular anomalies This is not a patient support group nor medical advice.

CaNVAS aims to advance the care of patients, both children and adults, affected by vascular anomalies through the promotion and facilitation of multicentered, collaborative, clinical, translational, and outcomes research. The long-term vision of CaNVAS is to be an internationally recognized collaborative research consortium whose members conduct high-quality clinical and translational research aimed at improving the care of patients with vascular anomalies and related disorders. A consortium objective is the inclusion of multidisciplinary members from other fields with expertise in the care of patients with vascular anomalies. The consortium is expanding its membership of pediatric hematology-oncology centers. The operation of CaNVAS adheres to the following values: collaboration, credibility, curiosity and commitment to care. Collaboration with mutual respect to advance our common goals
Ethical standards that maintain accountability for the integrity of our research
Fostering and supporting efficiency and productivity of research
Design and ex*****on of novel and prospective research in the field
A commitment of collective resources to pursue the CaNVAS research goals
Advocacy for evidence-based and compassionate care for patients with vascular anomalies. To donate, please ensure you select CaNVAS from the drop-down menu: https://give2.chop.edu/give/313517/ #!/donation/checkout

This page is intended to distribute information and updates about CaNVAS' research and operations.

03/04/2026

Rare Disease Day Recap! 💜🩷💙💚🩵 We’re proud to spotlight how some our member institutions honored Rare Disease Day this year. Check out the highlights below, and keep an eye out for more photos coming soon!

03/02/2026

Last week, one of our incredible patient advocates traveled to DC to champion rare disease legislation.

Addy stood in a room full of policymakers and confidently share her story. It was a powerful reminder of why patient voices matter. Our advocates are leading the way — turning lived experience into meaningful change.

During her visit, Addy met with staffers and senior health advisors from the offices of Cory Booker, Andy Kim, Donald Norcross, and Herb Conway to push for policies that support the rare disease community

See below for what she shared. 👇🏼
Hi, my name is Addy. I am 15 years old and I live in New Jersey. I wanted to talk to you today about my experience having a rare disease and ask for your support of the Genomic Answers for Children’s Health Act. I have multiple vascular anomalies that affect all the blood vessels in my body, including the ones in my brain. This means I basically have varicose veins from my head to my feet, which causes me lots of pain. I struggled with chronic pain until I was able to start a new medication 3 years ago after genetic testing helped us understand what was going on. The medicine I am on got accelerated FDA approval in 2022. Once my pain was under control, I was able to start participating in sports and have less anxiety. I am proud to say that I am a National Honors Society student with a 3.9 GPA and I am a 3-sport varsity athlete. My ultimate goal is to be recruited to play field hockey in college.
I also wanted to ask for your support of CANVAS, which is a group of doctors and advocacy groups that study rare vascular anomalies. They were awarded a u54 Grant to support research to help us understand why rare vascular anomalies happen and how best to treat them. I am a member of their Patient Advocacy Group ARDVARC, which means I help review the clinical trials with the doctors and give them ideas about what would be meaningful patient experiences to study - like pain and ability to participate in sports.
I am so lucky to have a treatment that is working to control my disease and allow me to live a normal life. Please support the Genomic Answers for Children’s Health so that more kids can have this chance!

02/27/2026

✨ Tomorrow is Rare Disease Day! ✨
Every year we take a moment to recognize the strength of the rare disease community and the importance of research that could change lives. 💛

Did you know that initiatives like the Consortium of iNvestigators of Vascular AnomalieS (CaNVAS) bring together scientists and advocates to advance research on rare vascular anomalies — working toward better therapies and understanding of these rare conditions? It’s collaborations like these that push medicine forward. 🌍🔬

Want to get involved and learn more about ongoing rare disease research? Check out 👉 research.chop.edu/canvas 👈 and see how you can support discovery and hope for patients and families. 💪📚

01/26/2026

Introducing Zoey, our CaNVAS Pet of the Year. 🐶💕

Zoey is an 8 year old Australian Labradoodle hailing from University of North Carolina. She is silly and sweet, extremely patient and loving, adores the beach, snuggles with her family, and a comfy spot. She has spent endless hours at the playground and can often be caught hanging in the stroller. She is used to lots of little humans engaging with her, and she brings joy to everyone she meets!

She is pictured with Wesley, her human brother.

We are so excited for everyone to get to know Zoey throughout this next year as she will be the face of CaNVAS. Please give Zoey a warm welcome!!

01/23/2026

It is with a heavy heart we share the news that Dr. John Mulliken has passed away. Please read the below message sent by the International Society for the Study of Vascular Anomalies.

“It is with great sadness that we learn of the passing of ISSVA Founder, Dr. John Mulliken. Dr. Mulliken was truly a founding father of our field. His vision, intellectual rigor, and unwavering commitment shaped vascular anomalies into the discipline it is today and laid the foundation for ISSVA itself. Generations of clinicians and scientists—including many of us personally—stand on his shoulders.

Drs. John Mulliken and Anthony Young began The International Society for the Study of Vascular Anomalies (ISSVA) in 1976 as biennial international workshops. The organization is comprised of specialists interested in the diagnosis, management and investigation of Vascular Anomalies. ISSVA was officially founded in 1992, two years after its first International Workshop held in 1990 in Amsterdam. The basic concepts behind the workshops have been maintained over the years as the field burgeoned around the original classification of vascular anomalies developed, revised and codified by ISSVA. ISSVA will celebrate 50 years of meetings this year in Philadelphia, thanks to Dr. Mulliken and his work.

We have lost not only an extraordinary leader and scholar, but also a mentor and a deeply respected colleague. My thoughts, and those of the ISSVA Board, are with his wife and daughter, and with all who were close to him.

John’s legacy will endure in our work, our community, and in ISSVA.

Memorial contributions may be made to the Foundation for Faces of Children (website: facesofchildren.org).”

01/20/2026

🎉🐾 We’re excited to announce that Zoey from UNC has been crowned our official 2026 CaNVAS Mascot after raising an incredible $4,850! 👑
A huge THANK YOU to everyone who helped spread the word and supported CaNVAS—together we raised an amazing $12,393 to advance research and improve care for patients with vascular anomalies. Your support truly makes a difference 💙
And a big shoutout to our fantastic runners-up—Barcode, GusGus, Corgi Cafe, and Charlie & Walter—for staying on the leaderboard throughout the entire pageant. What a close race and an incredible showing from all! 🙌✨
✨ Stay tuned to see more of Zoey—we can’t wait to share and learn more about her! 🐶💫

01/14/2026

We’re getting close to crowning the winner of the 2026 CaNVAS Pet of the Year. Your favorite still not in first place? A donation to their page could be the tail-wagging boost they need to take the crown 👑
Vote, donate, and SHARE with friends, family, coworkers, teammates, and every pet lover you know! Let’s make a champion 🐾❤️
👉 View all contenders and cast your vote here:
https://chop.donordrive.com/canvaspet2026

Don’t forget! Voting ends on January 19th!

01/08/2026

🐾⏰ ONLY 9 DAYS LEFT! ⏰🐾
The race for the 2026 CaNVAS Pet of the Year is getting paws-itively intense! 🐶🐱💥
Your fave not in first place yet? A donation to their page could be the tail-wagging boost they need to take the crown 👑
Vote, donate, and SHARE with friends, family, coworkers, teammates, and every pet lover you know! Let’s make a champion 🐾❤️
👉 View all contenders and cast your vote here:
https://chop.donordrive.com/canvaspet2026

12/29/2025

2026 is almost here and the competition is heating up! 🐾
Want to know who’s currently wagging their way to the top? Check out our latest leaders! 👀

Not seeing your favorite fur-friend in first place yet? There’s still time — voting is open until January 19, and a donation can help push them ahead! 💛
Be sure to share your favorite pet’s voting link with friends, family, coworkers, teammates, and fellow pet lovers.

Every dollar makes a difference, and the pet who raises the most will earn the title of Pet of the Year! 🏆
Check back next week to see who’s still neck-and-neck in this pawsome race! 🐶🐱🐾

👉 View all contenders and cast your vote here:
https://chop.donordrive.com/canvaspet2026

12/15/2025

🎉 It’s been 3 weeks since voting opened for the 2026 CaNVAS Pet of the Year! 🐾
Want to know who’s currently wagging their way to the top? Check out our latest leaders! 👀
Not seeing your favorite fur-friend in first place yet? There’s still time — a donation can help push them ahead! 💛
Be sure to share your favorite pet’s voting link with friends, family, coworkers, teammates, and fellow pet lovers.
Every dollar makes a difference, and the pet who raises the most will earn the title of Pet of the Year! 🏆
Check back next week to see who’s still neck-and-neck in this pawsome race! 🐶🐱🐾

👉 View all contenders and cast your vote here:
https://chop.donordrive.com/canvaspet2026

12/08/2025

🎉 It’s been TWO WEEKS since voting opened for the 2026 CaNVAS Pet of the Year! 🐾
Curious who’s leading the pack? Check out the current front-runners! 👀
Don’t see your favorite pet on top? No worries — donate to boost them to the top! 💛
Don’t forget to share your pet’s link with all your friends, family, coworkers, teammates, and pals.
Every donation counts, and whichever pet raises the most will be crowned our Pet of the Year.
Be sure to check back next week to see who’s nose-to-nose in the race! 🐶🐱🐾
To see every contender and vote, click here: https://chop.donordrive.com/canvaspet2026

12/02/2025

🎉 It’s Giving Tuesday — and the CaNVAS Pet Pageant is underway! 🐾✨
Help us crown the 2026 CaNVAS Pet of the Year while supporting critical research in vascular anomalies!

Your vote (aka donation!) helps your favorite furry contestant climb the leaderboard — and every dollar directly fuels the mission of CaNVAS, our multi-institutional research consortium dedicated to advancing treatments and outcomes for patients with rare vascular anomalies.

🌟 How to Participate:
1️⃣ Check out all our adorable contestants: https://chop.donordrive.com/canvaspet2026
2️⃣ Click on your favorite pet’s profile
3️⃣ Hit Donate to cast your vote
4️⃣ Share your favorite pet’s fundraising link with friends, family, coworkers — everyone!

📅 Voting is open November 24 – January 19.
The pet that raises the most wins the crown! 👑🐶🐱

💙 About CaNVAS
The Consortium of iNvestigators of Vascular AnomalieS (CaNVAS) brings together pediatric hematologist/oncologists and patient advocacy organizations to tackle the challenges of researching rare vascular anomalies. With your help, we can fund the innovative, collaborative studies needed to drive real change for patients and families.

🐾 Donate. Share. Vote. Make an impact this Giving Tuesday.
Thank you for supporting CaNVAS and our mission! 💙

Address

3500 Civic Center Boulevard
Philadelphia, PA
19104

Telephone

+12674269188

Website

https://www.research.chop.edu/canvas

Alerts

Be the first to know and let us send you an email when Consortium of Investigators of Vascular Anomalies - Canvas posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Consortium of Investigators of Vascular Anomalies - Canvas:

Shortcuts

Want your practice to be the top-listed Clinic in Philadelphia?