Consortium of Investigators of Vascular Anomalies - Canvas

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Consortium of Investigators of Vascular Anomalies - Canvas

CaNVAS is a multi-institutional research consortium to address the rare nature of vascular anomalies This is not a patient support group nor medical advice.

CaNVAS aims to advance the care of patients, both children and adults, affected by vascular anomalies through the promotion and facilitation of multicentered, collaborative, clinical, translational, and outcomes research. The long-term vision of CaNVAS is to be an internationally recognized collaborative research consortium whose members conduct high-quality clinical and translational research aimed at improving the care of patients with vascular anomalies and related disorders. A consortium objective is the inclusion of multidisciplinary members from other fields with expertise in the care of patients with vascular anomalies. The consortium is expanding its membership of pediatric hematology-oncology centers. The operation of CaNVAS adheres to the following values: collaboration, credibility, curiosity and commitment to care. Collaboration with mutual respect to advance our common goals
Ethical standards that maintain accountability for the integrity of our research
Fostering and supporting efficiency and productivity of research
Design and ex*****on of novel and prospective research in the field
A commitment of collective resources to pursue the CaNVAS research goals
Advocacy for evidence-based and compassionate care for patients with vascular anomalies. To donate, please ensure you select CaNVAS from the drop-down menu: https://give2.chop.edu/give/313517/ #!/donation/checkout

This page is intended to distribute information and updates about CaNVAS' research and operations.

12/08/2025

🎉 It’s been TWO WEEKS since voting opened for the 2026 CaNVAS Pet of the Year! 🐾
Curious who’s leading the pack? Check out the current front-runners! 👀
Don’t see your favorite pet on top? No worries — donate to boost them to the top! 💛
Don’t forget to share your pet’s link with all your friends, family, coworkers, teammates, and pals.
Every donation counts, and whichever pet raises the most will be crowned our Pet of the Year.
Be sure to check back next week to see who’s nose-to-nose in the race! 🐶🐱🐾
To see every contender and vote, click here: https://chop.donordrive.com/canvaspet2026

12/02/2025

🎉 It’s Giving Tuesday — and the CaNVAS Pet Pageant is underway! 🐾✨
Help us crown the 2026 CaNVAS Pet of the Year while supporting critical research in vascular anomalies!

Your vote (aka donation!) helps your favorite furry contestant climb the leaderboard — and every dollar directly fuels the mission of CaNVAS, our multi-institutional research consortium dedicated to advancing treatments and outcomes for patients with rare vascular anomalies.

🌟 How to Participate:
1️⃣ Check out all our adorable contestants: https://chop.donordrive.com/canvaspet2026
2️⃣ Click on your favorite pet’s profile
3️⃣ Hit Donate to cast your vote
4️⃣ Share your favorite pet’s fundraising link with friends, family, coworkers — everyone!

📅 Voting is open November 24 – January 19.
The pet that raises the most wins the crown! 👑🐶🐱

💙 About CaNVAS
The Consortium of iNvestigators of Vascular AnomalieS (CaNVAS) brings together pediatric hematologist/oncologists and patient advocacy organizations to tackle the challenges of researching rare vascular anomalies. With your help, we can fund the innovative, collaborative studies needed to drive real change for patients and families.

🐾 Donate. Share. Vote. Make an impact this Giving Tuesday.
Thank you for supporting CaNVAS and our mission! 💙

12/01/2025

🎉 It’s been ONE WEEK since voting opened for the 2026 CaNVAS Pet of the Year! 🐾

Curious who’s leading the pack? Check out the current front-runners! 👀

Don’t see your favorite pet on top? No worries — donate to boost them to the top! 💛

Every donation counts, and whichever pet raises the most will be crowned our Pet of the Year.

Be sure to check back next week to see who’s nose-to-nose in the race! 🐶🐱🐾

To see every contender and to vote, click here: https://chop.donordrive.com/canvaspet2026

11/24/2025

🐾🎉 The cuteness competition continues! Voting is officially open for the CaNVAS 2026 Pet of the Year!

Check out this year’s fabulous furry contestants and vote for your favorite pet to be crowned the next CaNVAS mascot. 👑🐶🐱

To vote, go to: https://chop.donordrive.com/canvaspet2026
View each pet’s profile and donate to the one you want to win — the pet who raises the most money will take home the title! 🏆

Voting is open now through January 19th.
Every dollar supports CaNVAS and helps advance research and clinical care for the vascular anomaly community. 💙

Let the adorableness begin! 🐾✨

11/20/2025

Big News! CaNVAS Receives NIH U54 Award to Launch ARDVARC 💙❤️

We are thrilled to share that the CaNVAS Consortium has been awarded a prestigious NIH U54 grant to launch ARDVARC – Advancing Rare Disorders–Vascular mAlformation Research Network with CaNVAS. ‼️

Vascular malformations are rare conditions caused by abnormal growth of blood or lymphatic vessels. They can be painful, disfiguring, and life-altering, yet no cures exist and treatment options remain extremely limited. ARDVARC aims to change that.

What ARDVARC Will Do🤔
With support from the NIH and built on the strength of all CaNVAS academic medical centers, ARDVARC will:
⭐️Build the first U.S. centralized natural history registry and biorepository for complex vascular malformations
⭐️Develop new patient-reported outcome measures to better understand quality of life for children with VMs
⭐️Create a national infrastructure for future clinical trials
⭐️Support innovative pilot studies aimed at accelerating treatment development
⭐️Train and grow the next generation of VM experts through a dedicated Career Enhancement Core
⭐️Bring together clinicians, researchers, basic scientists, and patient advocacy groups to collaborate as one interdisciplinary team

Why This Matters ❓
Complex vascular malformations—including PIK3CA-related overgrowth spectrum (PROS), complex lymphatic anomalies, and extracranial arteriovenous malformations—are rare but devastating disorders. Families often struggle for years without answers, and many patients face pain, bleeding, disfigurement, or organ damage.
ARDVARC’s long-term goal is clear:
Improve outcomes, accelerate clinical trials, and ultimately identify cures.

This award marks a landmark moment for the VM community, and we are incredibly proud of the CaNVAS network and all our partners who made this possible. The work begins now — and we’re just getting started.

11/12/2025

Our investigators met for an in person CaNVAS meeting at the ASPHO VA- SIG meeting in Memphis, TN on October 25th. A great time was had by all and we were able to share many new ideas…. Stay tuned!

11/05/2025

🐾🎩 Calling all fabulous fur babies! It’s time to strut your stuff at our 2026 CaNVAS Virtual Pet Pageant. Dress your pet in their fanciest outfit or classiest costume and join the online cuteness showdown of the year!

Whichever pet raises the most money will be crowned the 2026 CaNVAS Pet of the Year 👑🏆💃🏼

To submit your dapper dogs & classy cats into the pageant, complete this form: redcap.link/CaNVASpet

Submissions for the Pet Pageant will be open until November 28th.

The Pet Pageant will take place beginning November 24th. Check back soon for the site.

All money raised will directly go to CaNVAS to help advance research and clinical advancements for the vascular anomaly community.

💃🐶🐱

10/30/2025

Member Institution Arkansas Children’s Hospital Vascular Anomalies team hosted their first Family Day on October 4, 2025! Amazing turnout, inspiring stories, and a shared mission—to bring awareness, education, and hope to those affected by rare vascular diseases. (Pictured above is Arkansas Children’s Hospital’s team of physicians, nurses, and researchers)

10/28/2025

🎩🐾 Calling All Fabulous Fur Babies!

It’s time to strut your stuff at the 2026 CaNVAS Virtual Pet Pageant! 💃🐶🐱
Dress your pet in their fanciest outfit or classiest costume and join the online cuteness showdown of the year!

👑 The pet that raises the most money will be crowned the 2026 CaNVAS Pet of the Year! 🏆

📝 How to Enter:
Submit your dapper dogs and classy cats here ➡️ redcap.link/CaNVASpet

📅 Important Dates:
• Submissions open: Now through November 28
• Pageant begins: November 24 (Check back soon for the event site!)

💖 All proceeds directly support CaNVAS — helping advance research and clinical innovations for the vascular anomaly community.

So grab those bow ties, tutus, and tiaras… and let’s make some magic for a great cause! ✨🐾

09/16/2025

Meet the CaNVAS members- Children’s Hospital Los Angeles (CHLA) edition ✨🌅

CHLA’s Vascular Anomalies Center (VAC), located in the heart of Los Angeles, serves families across Southern California and beyond. The core multidisciplinary team includes specialists in hematology/oncology, ENT, dermatology, interventional radiology, pediatric surgery, plastic surgery and psychology, with expert physician support in medical genetics, gastroenterology, neuro-interventional radiology, interventional cardiology, and orthopedics. Their coordinated care model ensures comprehensive evaluation and access to a range of treatment options, from medications to slow the progression of vascular anomalies and aid with symptoms, to procedural treatments such as sclerotherapy, laser, and surgery. The CHLA VAC team takes pride in providing comprehensive care for both children and their families. Through collaboration with their pediatric psychologist, the team is able to deliver more personalized, needs-focused care.

https://www.chla.org/vascular-anomalies-center

Donate to CaNVAS: www.research.chop.edu/donatetocanvas

08/21/2025

Meet Monroe Carell Jr. Children's Hospital at Vanderbilt, a member of CaNVAS 🎸🌄

The Vascular Anomalies team at Monroe Carell Jr. Children’s Hospital at Vanderbilt evaluates and treats children and adults across the full spectrum of vascular anomalies, including hemangiomas, vascular malformations, vascular tumors, genetic syndromes, and unknown lesions. Vanderbilt offers the only multidisciplinary vascular anomalies clinic in Middle Tennessee. The Vanderbilt Vascular Anomalies program is co-directed by pediatric hematology-oncology and pediatric otolaryngology. The multidisciplinary clinic includes core physicians from pediatric ENT, pediatric hematology, pediatric dermatology, pediatric plastic surgery, diagnostic and interventional radiology and genetics. We have a dedicated nurse care coordinator and program coordinators.

The vascular anomalies multidisciplinary clinic meets twice a month, when the team discusses your child's case in a roundtable setting to create an individualized treatment plan. Our therapy options include state-of-the-art medications, sclerotherapy, laser treatments and open surgical procedures. We also offer genetic testing and supportive care, including physical and occupational therapy, compression garments and access to a certified lymphedema specialist. We actively participate in industry-sponsored and CaNVAS consortium-sponsored clinical trials and research studies for patients with vascular anomalies.

To learn more, please visit https://www.childrenshospitalvanderbilt.org/locations/vanderbilt-childrens-vascular-anomalies-clinic.

Address

3500 Civic Center Boulevard
Philadelphia, PA
19104

Telephone

+12674269188

Website

https://www.research.chop.edu/canvas

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