Beyond Celiac

Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.
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www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

10/19/2025

Gluten-free finds time! Share your favorite recent gluten-free find and where you found it in the comments below ⬇️

10/17/2025

A new Phase 1 study is recruiting participants in the US at a limited number of clinical sites.

AVALON is a Phase 1 clinical trial that aims to assess the safety and tolerability of VTP-1000, a potential treatment for celiac disease. AVALON is being sponsored by Barinthus Biotherapeutics North America and is being conducted in 16 locations across the United States.

VTP-1000 is a targeted immunotherapy designed to prevent or reduce symptoms of celiac disease from accidental gluten exposure by promoting tolerance to gluten. AVALON is a Phase 1 clinical trial which means that a new treatment is being tested in a small group of people for the first time.

Read the article: https://hubs.li/Q03P1XJq0

10/15/2025

A few things that have gluten that you might be surprised by: soy sauce, sourdough, and malt shakes, oh my! 😱

What’s something that contains gluten that caught you off-guard? Tell us in the comments ⬇️

10/14/2025

PSA (💩 Service Announcement): Diarrhea is not the only bowel-related symptom of celiac disease. Other kinds of irregular bowel movements, including constipation, can be linked to celiac disease. ‼️

If you have unexplained nausea, gas, vomiting, or other gastrointestinal symptoms, it might be worth getting tested for celiac disease. Find the Beyond Celiac Symptoms Checklist on our website, and consider taking it to your doctor to discuss next steps. 🧡

https://hubs.li/Q03Nllzl0

10/10/2025

“I'm asymptomatic, so I don't experience much when I ingest gluten, but I know it's causing me damage, so I still take precautions.” —Noah H. 🌟

Read Noah’s full story—and tell us yours! https://hubs.li/Q03M07gQ0

Thanks to Takeda for their continued support and partnership with Beyond Celiac. 🧡

10/09/2025

Photo evidence of all the fun we had at our Step Beyond Celiac 5K in Eastern Massachusetts! 📸 If you want to run, walk, or roll 3.1 miles closer to a cure for celiac disease, you can, no matter where you live—get involved virtually at https://hubs.li/Q03M-SK00 today!

Thank you to Isabel Rosa Photography for capturing these lovely moments 🧡

Show us how you for a chance to be featured 🤩

10/08/2025

There are over 250+ symptoms associated with celiac disease, and some of them can be pretty unique! In this event, we’ll highlight symptoms that most people don’t know can be associated with celiac disease. 🤔

Whether you’re newly diagnosed and still trying to understand the complex web of autoimmune conditions, a long-time patient, or a healthcare professional, there’s plenty to learn.

Register for free today! https://hubs.li/Q03MDC030

WHEN: Tuesday, October 14 at 1 PM ET (a lunchtime chat!) 🥗
WHERE: Virtually over Zoom 💻
WHO: Beyond Celiac staff 🧡
COST: Free! 😁

This event is possible thanks to Takeda.

10/06/2025

The AVALON clinical trial is testing the investigational drug VTP-1000 for the potential treatment of celiac disease. Participants must be 18–65 years old, biopsy-diagnosed with celiac disease, and on a gluten-free diet for 12+ months. Additional eligibility criteria apply. Compensation for time and travel may be available. Learn more: https://connect-mf.trialx.com/avalon-fb/

10/04/2025

⚠️ According to a recent 2025 Harris Poll conducted on behalf of Beyond Celiac…

🌟 Over a third of Americans don’t understand that a gluten-free menu item doesn’t guarantee safety for those with celiac disease
🌟 Over half of Americans don’t know that even if a restaurant lists a menu item as gluten-free, there is still a need for someone with celiac disease to question the waiter about the pan it is cooked in or how the food is prepared

Beyond Celiac is working hard to raise awareness for celiac disease… because we are leading the charge to find treatments for this genetic autoimmune condition. To learn more and donate in support of celiac research, head to https://hubs.li/Q03LLJCv0 💚

10/02/2025

How does your body react to gluten exposure? Tell us in the comments! 💬

Contrary to popular belief, not everyone with celiac is highly symptomatic. Some people experience no external symptoms, which is why we encourage getting tested—especially if you have a first-degree relative with celiac disease.

Learn more at https://hubs.li/Q03LzKSF0! 💚

09/30/2025

In our new episode of Celiac Straight Talk, the celiac podcast, we are joined by Beyond Celiac Director of Scientific Affairs Amy Ratner, who kindly agreed to interview our guest, Dr. Ciaran Kelly of Beth Israel Deaconess Medical Center on his experience diagnosing celiac disease.

You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at https://hubs.li/Q03LyQZt0.

Thank you so much to Takeda for sponsoring this episode of Celiac Straight Talk and for their commitment to supporting disease awareness and celiac disease patients.

09/27/2025

If you have otherwise unexplained symptoms, it may be worth it to get tested for celiac disease. Find the Beyond Celiac Symptoms Checklist at https://hubs.li/Q03L1X780 ! 🔗📝

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Philadelphia, PA

Telephone

+12153251306

Website

http://www.BeyondCeliac.org/

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Driving diagnosis, advancing research and accelerating discovery

Our vision is a world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.