Beyond Celiac

Beyond Celiac Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.
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www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

01/24/2026

You can submit a comment to the Food & Drug Administration regarding labeling of gluten and gluten-containing ingredients, as well as regulation of cross-contact practices.

The FDA is inquiring about specific topics that impact the lives of those with celiac disease. For example, how much do YOU rely on a gluten-free label when buying foods rather than reading the ingredients list?

Do you avoid oats or other ingredients that may have cross contact with gluten-containing grains?

For foods not labeled gluten free and without gluten in the ingredients list, do you still avoid purchasing foods with any nonspecific ingredients like "flavors," "colors," or "spices"?

Share your experience and create change! Make your voice heard and advocate for increased protection for those with celiac disease, requiring that any ingredients with gluten be listed by name in the ingredient list, and by requiring controls for when cross-contact occurs between gluten-free food and gluten-containing grains.

This petition was originally submitted in September 2023 by Celiac Journey.

https://hubs.li/Q040bwkd0

01/23/2026

There are currently no available FDA-approved treatments for celiac disease, but that only fuels us in pushing research forward towards treatments and a cure.

If you have celiac, getting “glutened” can look like many things: a stomachache, a migraine, brain fog, a skin rash, or even nothing external, as some people are asymptomatic! But if you have celiac, your villi will get damaged if you ingest gluten, so it’s important to maintain a gluten-free diet.

We know this can be very challenging, and we look forward to a world beyond celiac, where everyone can eat without fear of getting sick from gluten. But we need your help!

To support celiac disease research, donate today at https://hubs.li/Q0405F5w0 💚

01/23/2026

You can submit a comment to the Food & Drug Administration regarding labeling of gluten and gluten-containing ingredients, as well as regulation of cross-contact practices.

https://hubs.li/Q03__BRB0

Make your voice heard and advocate for increased protection for those with celiac disease, requiring that any ingredients with gluten be listed by name in the ingredient list, and by requiring controls for when cross-contact occurs between gluten-free food and gluten-containing grains.

See if you are eligible to be a part of this research with AVALON—a clinical trial for celiac disease. What if there was...
01/20/2026

See if you are eligible to be a part of this research with AVALON—a clinical trial for celiac disease.
What if there was a way to help your immune system become more tolerant of gluten? That’s the potential of VTP-1000, an investigational drug designed to prevent or reduce symptoms from accidental gluten exposure.

NEW Expanded Eligibility Criteria: 18-70 years old, celiac disease confirmed by biopsy within in the past 20 years, have been on a gluten-free diet for 12+ months, US resident, Additional eligibility criteria apply.

Compensation for your time and travel may be available. Learn more: https://hubs.li/Q03-TkPV0

If you think you might have celiac disease, you might not feel like a diagnosis is necessary if you can just start the g...
01/16/2026

If you think you might have celiac disease, you might not feel like a diagnosis is necessary if you can just start the gluten-free diet and see if it helps you feel better. But when we have treatments for celiac disease that go beyond the gluten-free diet, a diagnosis will be imperative for patients to be able to recieve those treatments. And knowing for sure whether or not you have celiac can make a huge difference in the vigilance needed to stick to a 100% gluten-free diet. 🤔

Thankfully, we have some resources to help make getting tested a little bit easier—starting with our Symptoms Checklist. Fill out the checklist, which includes symptoms you might not readily associate with celiac but are certainly linked, and present it to your doctor to show them why getting tested for celiac disease might be right for you. 📝

https://hubs.li/Q03_2G600 💚

01/14/2026

We're excited to offer a new resource, thanks to Beyond Celiac Ambassador Dani Black! Our Celiac Disease School Training Guide comes equipped with everything you need to lead a workshop on how to include children with celiac disease in the classroom.

Not an expert on celiac disease? Have no fear! This guide was designed so that anyone, regardless of their familiarity with celiac disease, can easily and accurately lead the training.

Head on over to the link in our bio to check out this free resource today!

🌟 New product review from Beyond Celiac Social Media Coordinator Lauren! 🌟 Promise Gluten Free“Finally, better bread! Pr...
01/12/2026

🌟 New product review from Beyond Celiac Social Media Coordinator Lauren! 🌟
Promise Gluten Free

“Finally, better bread! Promise ensures that everyone can eat delicious, structurally sound, soft bread, even if they have to eat gluten-free!

This is some of the best gluten-free bread I’ve ever tasted. It’s perfect with scrambled eggs for breakfast or as a perfect toasted sandwich for lunch. I can’t believe how thick each slice is—it doesn’t crumble! Thank you Promise, for a chance at ‘normal’ bread!”

Better bread shouldn’t be off the table. Start your new year off with 100% certified gluten-free bread that doesn’t compromise on texture or taste! Thanks to Promise Gluten Free for your support of people with celiac disease 💚

01/10/2026

Why shouldn’t you go gluten-free before you get tested for celiac? 🤔

Beyond Celiac Associate Director of Scientific Research Ashley Berg explains why it’s important to get tested for celiac disease before you begin a gluten-free diet. 💚

Do you have any questions for our science team? Drop them in the comments! 💬

And if you think you might have celiac disease, find our Symptoms Checklist at our website: https://hubs.li/Q03-dPhS0 📝

The Beyond Celiac team is expanding, with open positions ranging from assistant to executive level.We are seeking indivi...
01/08/2026

The Beyond Celiac team is expanding, with open positions ranging from assistant to executive level.

We are seeking individuals interested in applying their professional skills to finding treatments for celiac disease. While knowledge of celiac disease and the gluten-free diet can be a plus, it's not required.

Beyond Celiac is the leading nonprofit in advancing research toward treatments and a cure for celiac disease. Since 2003, we’ve connected the community with trustworthy resources, driven groundbreaking research, and advocated for change—all to create a world where people with celiac disease can live healthy lives, free from fear and social stigma.

Want to be a part of this mission-driven work? Apply for open positions today at https://hubs.li/Q03-41dF0!

Want to be a part of this life-changing work? Apply for open jobs today, or bookmark this page so you can check back for new opportunities!

🌟 NEW PODCAST EPISODE! 🌟 In our first Celiac Straight Talk episode of the year, Beyond Celiac Senior Director of Coaliti...
01/07/2026

🌟 NEW PODCAST EPISODE! 🌟

In our first Celiac Straight Talk episode of the year, Beyond Celiac Senior Director of Coalition and Patient Engagement Kate Avery chats with President of the International Society for the Study of Celiac Disease Dr. Bob Anderson about a satellite meeting ISSCD did in conjunction with the Tampere Celiac conference in 2025. 📝

Kate and Dr. Anderson discuss progress being made in the field of celiac, and how research has helped us progress our understanding of celiac disease and autoimmunity ➡️➡️➡️

Listen to the full episode at the link in our bio, or anywhere you get your podcasts! 🎧
https://hubs.li/Q03ZThG60

01/05/2026

For people with celiac disease, the gluten-free diet is NOT a fad—it’s a medical necessity, and currently the only available management for the genetic autoimmune condition.

Here at Beyond Celiac, we are working to find treatments and a cure for celiac disease. And you can help! Get involved and donate at https://hubs.li/Q03Zr7BN0 💚

Happy New Year from your friends at Beyond Celiac. We’re so curious what you’re looking forward to in 2️⃣0️⃣2️⃣6️⃣and wh...
01/01/2026

Happy New Year from your friends at Beyond Celiac. We’re so curious what you’re looking forward to in 2️⃣0️⃣2️⃣6️⃣and what gf snacks you are most excited to see hit the shelves this year! 🌟🌟🌟We may have some ideas… 🧡

Tell us in the comments! 💬

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Driving diagnosis, advancing research and accelerating discovery

Our vision is a world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.