Beyond Celiac

Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.
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www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

07/26/2025

The Step Beyond Celiac 5K race is an incredible opportunity to support Beyond Celiac and raise awareness for celiac disease. Join us this fall! 💜

https://hubs.li/Q03y_Pzm0

Proceeds raised from our Step Beyond Celiac 5Ks support our work to accelerate treatments and a cure for celiac disease. 🤝

Until we reach the ultimate finish line—a cure for celiac disease—we’ll be putting our energy into helping people with celiac disease live better longer. Lace up your running shoes, set up your personal or team fundraiser, and let’s all get 3.1 miles closer to a cure! 🏃‍♀️🏃‍♀️🏃‍♀️

07/24/2025

Birthday parties, holidays with the family, celebratory team dinners after extracurriculars, or a simple gathering with friends: all can be fraught with tension when you’re gluten-free. It’s tough to relax and have fun when you’re constantly worrying about getting sick or being the odd one out. 🧡

As patients ourselves, Beyond Celiac staff will give you our top tips for not just managing but enjoying parties when you’re gluten-free. 🎉

We want to hear from you, too—what’s your go-to strategy for work events and family dinners? Are there any tough situations you want advice on? Drop them in the “question” section of the sign-up form! 💬

Sign up here ⬇️
https://hubs.ly/Q03yDpXT0

WHEN: Thursday, August 21 at 1 PM ET (a lunchtime chat!)
WHERE: Virtually over Zoom
WHO: Beyond Celiac staff
COST: Free!

This event is possible because of support from DiGiorno. Thank you! 🍕

07/21/2025

We want to give a SHOUTOUT to some of our top fundraisers for our spring Step Beyond Celiac 5K! 🌟🏃‍♀️💜 We also want to say thank you to all of our sponsors, all the fundraisers, and all the participants. YOU make this event possible—and together, we can find treatments for celiac disease!

Keep an eye out for our fall events, launching soon 👀

07/18/2025

Did you know there are currently treatments for celiac disease in clinical trials? That’s real progress toward potential game-changers that could transform how we manage celiac disease.

Beyond Celiac is funding groundbreaking research with a goal to accelerate treatments and forge pathways to treatments for celiac disease.

Learn more about research initiatives: https://hubs.li/Q03xVrfB0

07/16/2025

This is what de-glutening a kitchen looks like 👀

Bailey’s showing us exactly how to tackle every single surface when moving into a place. Every drawer, button, and hidden corner gets a thorough cleaning because gluten particles hide in places you’d never expect.

Want to learn more? Check out our complete blog post and infographic at https://hubs.li/Q03wJvrf0

07/14/2025

Increased risk factors for celiac disease can include…

‼️A family member with celiac disease
‼️HLA-DQ2 and HLA-DQ8 genes
‼️Having other autoimmune diseases

Thanks so much to Takeda for their continued support of celiac patients and Beyond Celiac 🌟

07/12/2025

Gluten-free finds time! Share your gluten-free find of the week and where you found it in the comments below ⬇️

07/10/2025

POV: You’re at a restaurant and watch them use the same tongs for regular and gluten-free food 😳

Cross-contact is when safe food touches unsafe food. For example, if someone with a peanut allergy ordered a sundae and the chef sprinkled peanuts on top, or cooked noodles in peanut sauce. The same concept applies to celiac disease; even crumbs of gluten can trigger the autoimmune response and damage the intestines. Here's what restaurants should do to keep people safe:

What restaurants should have:
✅Separate prep areas
✅Dedicated utensils for GF food
✅Different colored tongs and tools
✅Staff training on cross-contact

What you can do:
✅Ask for clean utensils
✅Specify that you have celiac disease
✅Don’t be afraid to advocate for your health

Have you ever had to speak up about cross-contact? Share your stories in the comments! 💬

07/08/2025

🌟RESEARCH NEWS 🌟

A test being studied by Australian researchers could be a game changer leading to faster, safer diagnosis!

Currently, you must be eating gluten to get accurate results of antibody tests and the follow-up biopsy used to diagnose celiac disease, but a new test developed by researchers in Australia has shown promising results in detecting a response to gluten in blood even when someone is on a gluten-free diet.

Additionally, the test has the potential to eliminate the need for a biopsy to definitively diagnose celiac disease.

“This test could be a game-changer, sparing thousands of people the emotional and physical toll of returning to gluten. It’s a major step towards faster, safer diagnosis,” study author Jason Tye-Din, MD, said in a news release from Walter and Eliza Hall Institute of Medical Research (WEHI). Tye-Din, head of the institute’s celiac research lab, and colleagues recently published results of a study of the test in the journal Gastroenterology.

The new test could boost rates of diagnosis, identify patients at risk of severe reactions to gluten and detect silent celiac disease in people who are asymptomatic, according to the institute. At least half of the general population thought to have celiac disease remains undiagnosed, and some estimates put the undiagnosed rate as high as 83 percent.

Read our full write-up and learn about the results of the study: https://hubs.li/Q03w93Cb0

07/05/2025

Easy gluten-free cereal bars for your weekend! 🧡

Traditional Rice Krispies cereal contains barley malt extract, which means it’s not gluten-free. The good news? You can make amazing cereal bars using certified gluten-free cereals instead! 🥣

Recipe:
6 cups gluten-free cereal
4 cups marshmallows
3 tablespoons butter

Instructions:
Microwave butter in large microwave-safe bowl for 30 seconds
Add marshmallows, microwave for 1-2 minutes until puffy
Stir until smooth, add cereal, mix well
Press into greased 8x8 pan
Cool completely before cutting

Find more gluten-free recipes here: https://hubs.li/Q03vYRkd0

07/03/2025

July is Disability Pride Month! 💚

This commemorates the signing of the Americans with Disabilities Act in July 1990, and we continue to celebrate it today! 🌟

What does disability pride mean to you? Tell us in the comments 💬

07/01/2025

In early June, the Allergen Disclosure in Non-Food Articles Act (ADINA) was reintroduced into the United States House of Representatives. 📃

The ADINA Act (H.R. 3821) would require labeling for the top nine food allergens (milk, eggs, fish, shellfish, tree nuts, peanuts, wheat, soybeans, sesame) AND gluten on prescription and over-the-counter medications. 💊

To support the ADINA Act, contact your lawmakers and encourage them to co-sponsor H.R. 3821, and contact Daniela Puente at Daniela.Puente@mail.house.gov on Capitol Hill! ☎️

Address

Philadelphia, PA

Telephone

+12153251306

Website

http://www.BeyondCeliac.org/

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Driving diagnosis, advancing research and accelerating discovery

Our vision is a world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.