Weinberg ALS Center

Weinberg ALS Center Jefferson Weinberg ALS Center
Empower Life. Enable Research. Envision a Cure.

As always, the Robert Packard Center for ALS Research at Johns Hopkins Research Symposium was outstanding. Three days of...
03/05/2026

As always, the Robert Packard Center for ALS Research at Johns Hopkins Research Symposium was outstanding. Three days of collaboration, data sharing, innovation, and excellent science brought together researchers dedicated to advancing ALS research.

The Weinberg ALS Center– Jefferson team was proud to contribute six poster presentations this year. Trainees Brianna Lisi, Ivette Martorell-Serra, and Megan Muench presented their work alongside colleagues Brigid Jensen, Maria Cicardi, and Hristelina Ilieva. Aaron Haeusler and Lin Guo also shared updates on their Packard Center–funded project.

We thank the Packard Center for hosting another exceptional symposium and for continuing to foster a collaborative and rigorous scientific community dedicated to advancing ALS research.

We are saddened by the loss of Eric Dane.His journey with ALS was short, but his courage, honesty, and humanity left a l...
02/20/2026

We are saddened by the loss of Eric Dane.

His journey with ALS was short, but his courage, honesty, and humanity left a lasting mark. Through his openness, and his advocacy for ALS research and awareness, he helped the world better understand the realities of this disease and the urgent need to advance science.

While we mourn his passing, we honor the empathy, visibility, and momentum he brought to the ALS community, and we remain committed to care, research, and the advancement of treatments.

To every person living with ALS — and to every caregiver and family member — we stand with you today and always.

💙 10 years of care. 10 years of impact.We are deeply grateful for the incredible support of our patients, families, clin...
01/08/2026

💙 10 years of care. 10 years of impact.

We are deeply grateful for the incredible support of our patients, families, clinicians, researchers, donors, and community who have made this decade possible for our Weinberg ALS center.

Over the past 10 years, together we’ve made a meaningful impact, advancing care, strengthening collaboration, research, education and standing beside the ALS community. And we’re just getting started.

💙 As we celebrate this milestone, we look ahead with hope, determination, and a renewed commitment to making an even greater impact in the next 10 years.

🧠🧪If you feel inclined to support and help fuel our mission, please use the link below. Learn more about how you can get involved or support our work.
https://giving.jefferson.edu/giving-guide/give/weinberg-als-center.html?fbclid=IwY2xjawPMkolleHRuA2FlbQIxMABicmlkETE1OUNMaUxnSm5XYTRtQVVGc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHp3cb2thOcPoVzaoD_KEyamVkwokefgGrj9PPcbVSfOQHPN1T1ZIa38VztED_aem__5iGu2_E5lfIIlNHvAQ2GA

Closing 2025 with gratitude.Thank you Family Strong 4 ALS for visiting us before the Holidays and for your constant supp...
12/30/2025

Closing 2025 with gratitude.
Thank you Family Strong 4 ALS for visiting us before the Holidays and for your constant support in the past 10 years. Thank you for your $25,000 donation, enabling us to continue our research.

📣 Extra, extra — read all about it! 🗞️✨Our ALS Clinical Team is in the spotlight! We’re proud to be featured in the late...
12/19/2025

📣 Extra, extra — read all about it! 🗞️✨

Our ALS Clinical Team is in the spotlight! We’re proud to be featured in the latest issue of Collaborative Healthcare: Interprofessional Practice, Education & Evaluation, highlighting our multidisciplinary approach to ALS care and the power of true team-based medicine. 💙🧠

This recognition celebrates the collaboration, compassion, and dedication that drive our work every day, bringing experts across disciplines together to support people living with ALS and their families.

👏 Huge congratulations to our incredible clinical team for this well-deserved feature!

🔗 Click the link to read!
https://jdc.jefferson.edu/jcipe/vol16/iss1/1/

It’s a wrap! A week filled with collaboration, science, new project planning, and meaningful exchanges with colleagues f...
12/07/2025

It’s a wrap! A week filled with collaboration, science, new project planning, and meaningful exchanges with colleagues from around the world. Grateful for this community, the shared mission, and the energy that comes from working together

International ALS/MND Symposium

Such an incredible experience sharing our enteral access approach for people living with ALS and learning alongside glob...
12/02/2025

Such an incredible experience sharing our enteral access approach for people living with ALS and learning alongside global leaders at the ALS/MND Alliance Conference! 🌍💙🧠✨

This Giving Tuesday, YOU can make an impact. Your support helps us push care, science, and hope forward. Please use the link below💙🙏📈

https://giving.jefferson.edu/.../weinberg-als-center.html

Ten Years Together and One Day of Giving!This Giving Tuesday, we honor the strength of people living with ALS and the co...
12/02/2025

Ten Years Together and One Day of Giving!

This Giving Tuesday, we honor the strength of people living with ALS and the community that stands beside them. As the Weinberg ALS Center approaches its 10th year, your contributions help us deliver compassionate care and advance meaningful research.

Thank you for being part of this mission.

🧠🧪If you feel inclined to support the Weinberg ALS Center and help fuel our mission, please use the link below. Learn more about how you can get involved or support our work.
https://giving.jefferson.edu/giving-guide/give/weinberg-als-center.html

Our Weinberg ALS Center family gathered last week for Friendsgiving, and it reminded us just how grateful we are for the...
11/26/2025

Our Weinberg ALS Center family gathered last week for Friendsgiving, and it reminded us just how grateful we are for the incredible people who make this community so special, from our caregivers and clinicians to our researchers, staff, and supporters.

As we head into Thanksgiving, we wish you and your loved ones a joyful and restful holiday. Thank you for being part of our ongoing mission to advance research, provide compassionate care, and continue the fight against ALS. 💙🧠✨

11/25/2025

Tonight, on this first day of Thanksgiving week, we are grateful to Eric Dane, who guest-stars in the newest episode of Brilliant Minds as a firefighter diagnosed with ALS.

We are thankful to Eric for using his talent to raise awareness and bring honesty and heart to this important story. His performance helps shine a light on the challenges faced by people living with ALS, their families and everyone who supports them.

https://www.facebook.com/share/v/19scuV86uc/?mibextid=wwXIfr

A meaningful and impactful week at the Weinberg ALS Center.This past week reminded us how strong the neuroscience commun...
11/15/2025

A meaningful and impactful week at the Weinberg ALS Center.

This past week reminded us how strong the neuroscience community is when we move forward together.

We began with the Walk to End ALS, standing alongside families, caregivers, and supporters. Soon after, we joined international colleagues from Sheba Medical Center (Israel) and Gemelli/Cattolica University (Italy) for a 3-day Symposium hosted by Vickie and Jack Farber Institute for Neuroscience Jefferson Health. Together, we exchanged insights across brain diseases—including ALS, stroke, Parkinson’s disease, epilepsy, and MS—advancing shared understanding in science and clinical care.
Later in the week, at the Life Sciences PA Patient Summit, Dr. Pasinelli joined a thoughtful conversation with Dr. Daniela Zarnescu (Penn State Hershey), our friend living with ALS, ALS United Mid-Atlantic, and State Representative Kyle J. Mullins highlighting why research, advocacy, and collaboration remain essential. We then closed the week at a heartfelt luncheon hosted by ALS United Mid-Atlantic, where Senator Chris C***s joined attendees in honoring individuals and families living with ALS.

ALS doesn’t recognize borders or politics, and it leaves no room for silos. Our progress depends on working together—across institutions, states, and countries.

We are grateful to our colleagues and collaborators; we are grateful for the people living with ALS who work tirelessly as research ambassadors to advocate for the community and share their stories. We are grateful to Representative Kyle Mullins, our partners across Pennsylvania, and Governor Josh Shapiro for supporting the $5M appropriation dedicated to neurodegenerative disease research. This investment brings hope and momentum to all working toward better treatments.






Andrea Woitas Fulginiti
Lisa Hess Rosica
Cronin

Family Strong 4 ALS

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900 Walnut Street
Philadelphia, PA
19107

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