Celiac Journey

09/11/2025

On behalf of 729,000 American kids with Celiac Disease, we are so happy that the Make Our Children Healthy Again Strategy Report included Celiac Disease and requiring the labeling of Gluten as a food allergen:

"Food Allergies: FDA will develop guidance on diagnostics and treatments for food allergies. FDA will also make recommendations about requiring transparency in disclosures of ingredients that impact certain health conditions, such as gluten for those with Celiac disease, and other established food allergens."

Since 2020, Jax has been advocating for Gluten to be declared as a Major Food Allergen in the United States and requiring the labeling of Gluten. Jax has joined forces with kids around the country calling for change including his partner, Jude, a rising 6th grader in New York. Jax and Jude are speaking out on real-life kitchen table issues in new ways to Make America Healthy Again. Out of the mouths of babes...

87 other countries around the world require the labeling of Gluten on all food packages, including in Canada, Mexico and across Europe. The United States is so far behind.

Until there's a treatment for Celiac Disease other than a Gluten Free diet, we believe that requiring the labeling of Barley, Rye and Oats will have the greatest impact on improving safety and quality of life for 3.3 million American Celiacs and their loved ones.

Jax and Jude have presented a common sense solution that is actionable and not controversial. Secretary Kennedy has existing statutory authority to require the labeling of Gluten as a Major Food Allergen and this takes us closer to achieving that goal!



https://www.instagram.com/p/DOZ-4GujnKa/

08/06/2025

President John F. Kennedy's medical records suggest JFK had undiagnosed Celiac Disease: Jackie Kennedy described it as the "Kennedy Stomach." Here's an article I wrote after revisiting some interesting research from the past two decades.

"I've got something wrong with my intestines. In other words I s**t blood." -- John F. Kennedy (letter to LeMoyne Billings, June 27, 1934)Overview: MAHA Report, Celiac Disease & President John F. KennedyWhen President Donald J. Trump and HHS Secretary Robert F. Kennedy, Jr. released the Make Our Chi...

07/29/2025

Some exciting news! Please join us for what is hopefully the 1st annual Celiac Awareness Night at the Phillies, with a portion of the proceeds to benefit Penn Medicine's Celiac Research Program!

DATE: Friday September 12, 2025
TIME: 6:45 PM
LOCATION: Citizens Bank Park

To purchase tickets, click here and enter CELIAC

https://mlb.tickets.com/schedule/?agency=MLB_MPV&orgid=21 #/sales_group_code;salesGroupId=8314

We have group tickets available at a few price points, in sections 312-328 and 415-425.

We are also putting together a comprehensive list of gluten free food options at Citizens Bank Park. Reach out with any questions! Hope to see you there!

07/04/2025

Happy Fourth of July!

In the spirit of Independence Day, here's Jax outside America's Birthplace at Independence Hall in Philadelphia where it all happened on July 4, 1776!

Inspired by the Declaration of Independence, Jax leads the charge in declaring freedom from the Gluten guessing game with the voluntary labeling of Gluten in the US.

It's time for the United States to catch up to 87 other countries which require that Gluten be declared on all food labels.

It's time to better protect 3.3 million American Celiacs, including 729,000 kids like Jax!

Together let's take on the chronic childhood disease crisis for a generation at risk with food allergies and autoimmune diseases by requiring the labeling of Gluten as a Major Food Allergen!

05/21/2025

Shining a light on International Day for food allergy awareness, and remembering a few years ago when Jax was wearing his red sneakers to his meeting at the

Jax was asking for help in better protecting 3.3 million Americans with Celiac and Gluten grain allergies triggered by eating Gluten, a protein found in Wheat, Barley, Rye and most Oats. Today, only Wheat is required to be labeled in the US, but Barley, Rye and Oats are not. Our advocacy continues since the work is not done.

We draw strength from Oakley and his family in sharing their family's experiences! May Oakley's memory be a blessing!

05/19/2025

Please watch this video to see all the important work we are doing on a federal and state level to try and get gluten labeled on packaged foods just like it is in 87 other countries! Thanks for all your work and support on this issue Senator Amanda Cappelletti

05/31/2024

Thank you Senator Amanda Cappelletti for your continued support and for introducing two new bills in PA to help those with Celiac Disease and gluten intolerances better identify products that contain gluten ingredients. This legislation would require labeling of gluten in food and medicine.

On Tuesday at 11am, I'm hosting a press conference in Harrisburg to introduce two new bills to help those with Celiac Disease and gluten intolerances better identify products that contain gluten ingredients.

This package of legislation would require that food and medicine distributed in Pennsylvania that contains gluten be properly labeled as such. As we wrap up , I'm thrilled to be working with Rep. Mary Jo Daley on this in the House, where Rep. Daley has introduced companion legislation.

Tune in here on Facebook or on my website at PASenatorCappelletti.com/live to learn more about this new legislation!

05/20/2024

Shining a light on International Day for food allergy awareness, and remembering Jax wearing his red sneakers to his meeting at the with the Domestic Policy Council. Jax was asking for help in better protecting 3.3 million American Celiacs who have a potentially life-threatening and life-debilitating food allergy and auto-immune disease triggered by eating Gluten, a protein found in Wheat, Barley, Rye and most Oats. Today, only Wheat is required to be labeled in the US, but Barley, Rye and Oats are not.

Imagine if you had a Tree Nut allergy and only Almonds were required to be labeled, but not other tree nuts such as Pecans and Walnuts. That would create a massive food safety gap that needed to be closed. For those with a Tree Nut allergy, that scenario is not the case. But that similar safety gap does exist with the voluntary labeling of Barley, Rye, and Oats for millions of American Celiacs like Jax.

We draw strength from Oakley and his family in sharing their family's experiences! May Oakley's memory be a blessing!

04/02/2024

We are grateful to the Food and Drug Law Institute for publishing our Letter to the Editor in the Spring 2024 issue of Update Magazine, "FDA Citizen Petition Seeks Historical Reckoning to Require the Labeling of Gluten on All Food Packages in the United States" used with the permission of FDLI

Letter to the Editor: FDA Citizen Petition Seeks Historical Reckoning to Require the Labeling of Gluten on All Food Packages in the United States By Jon Bari & Lexi Bari Co-Founders of Celiac Journey, and Authors of FDA Citizen Petition to Require the Labeling of Gluten on All Packaged

03/27/2024

Philadelphia boy, 10, learns the power of speaking up as he lobbies for citizen petition that would require allergen labeling for all gluten.

03/07/2024

Thanks for sharing GF Jules - let's get gluten labeled in our food & medicine! For more info and to learn how you can help, see www.celiacjourney.com/comments

Let’s DO something today, shall we?
① Let’s TELL our Congressional representatives we deserve to know what’s in our prescription medications!
② And let’s TELL the FDA we deserve to have gluten (not just wheat) labeled on ALL foods!
Make a difference today by making your voice heard! (*please share this post to amplify your voice!*)

② To TELL THE FDA that you support the Celiac Journey (Jax Bari) Citizen Petition to Require the Labeling of Gluten on ALL Food Products:
https://docs.google.com/document/d/1OHVQMVxYYTBZAm8AdJdbvbS6QIBOorCEVVgSetT-Miw/edit?usp=sharing
find out more: https://rb.gy/oypvtf
①To TELL your Congressperson to support the ADINA Act (to amend the Federal Food, Drug, and Cosmetic Act to require the label of human drugs to identify each ingredient that is, or is derived from, a major food allergen or a gluten-containing grain):
https://www.facebook.com/gfJules/videos/1745260362607571
&
https://nationalceliac.org/blog/email-newsletters/support-the-adina-act-to-label-gluten-in-medicine/ National Celiac Association

12/29/2023

We are grateful to the NCA for amplifying our efforts to end the Gluten guessing game by calling on the FDA to require the labeling of Gluten. Here’s the direct link with instructions to submit comments to the FDA web site. www.celiacjourney.com/comments

Make your voice heard: submit your comments to the FDA to support Jax's citizen petition to require the labeling of gluten on all food products!

In honor of the first anniversary of the White House Conference on Hunger, Nutrition, and Health, 10-year-old Jax Bari submitted a Citizen Petition to the FDA to require the labeling of Gluten on all food packages in the U.S., just like Gluten is required to be declared on food labels in 87 other countries worldwide.

To learn more about this movement and to submit comments, visit the website at celiacjourney.com!

Photo courtesy of Celiac Journey