Celiac Journey

07/04/2025

Happy Fourth of July!

In the spirit of Independence Day, here's Jax outside America's Birthplace at Independence Hall in Philadelphia where it all happened on July 4, 1776!

Inspired by the Declaration of Independence, Jax leads the charge in declaring freedom from the Gluten guessing game with the voluntary labeling of Gluten in the US.

It's time for the United States to catch up to 87 other countries which require that Gluten be declared on all food labels.

It's time to better protect 3.3 million American Celiacs, including 729,000 kids like Jax!

Together let's take on the chronic childhood disease crisis for a generation at risk with food allergies and autoimmune diseases by requiring the labeling of Gluten as a Major Food Allergen!

05/21/2025

Shining a light on International Day for food allergy awareness, and remembering a few years ago when Jax was wearing his red sneakers to his meeting at the

Jax was asking for help in better protecting 3.3 million Americans with Celiac and Gluten grain allergies triggered by eating Gluten, a protein found in Wheat, Barley, Rye and most Oats. Today, only Wheat is required to be labeled in the US, but Barley, Rye and Oats are not. Our advocacy continues since the work is not done.

We draw strength from Oakley and his family in sharing their family's experiences! May Oakley's memory be a blessing!

05/19/2025

Please watch this video to see all the important work we are doing on a federal and state level to try and get gluten labeled on packaged foods just like it is in 87 other countries! Thanks for all your work and support on this issue Senator Amanda Cappelletti

05/31/2024

Thank you Senator Amanda Cappelletti for your continued support and for introducing two new bills in PA to help those with Celiac Disease and gluten intolerances better identify products that contain gluten ingredients. This legislation would require labeling of gluten in food and medicine.

On Tuesday at 11am, I'm hosting a press conference in Harrisburg to introduce two new bills to help those with Celiac Disease and gluten intolerances better identify products that contain gluten ingredients.

This package of legislation would require that food and medicine distributed in Pennsylvania that contains gluten be properly labeled as such. As we wrap up , I'm thrilled to be working with Rep. Mary Jo Daley on this in the House, where Rep. Daley has introduced companion legislation.

Tune in here on Facebook or on my website at PASenatorCappelletti.com/live to learn more about this new legislation!

05/20/2024

Shining a light on International Day for food allergy awareness, and remembering Jax wearing his red sneakers to his meeting at the with the Domestic Policy Council. Jax was asking for help in better protecting 3.3 million American Celiacs who have a potentially life-threatening and life-debilitating food allergy and auto-immune disease triggered by eating Gluten, a protein found in Wheat, Barley, Rye and most Oats. Today, only Wheat is required to be labeled in the US, but Barley, Rye and Oats are not.

Imagine if you had a Tree Nut allergy and only Almonds were required to be labeled, but not other tree nuts such as Pecans and Walnuts. That would create a massive food safety gap that needed to be closed. For those with a Tree Nut allergy, that scenario is not the case. But that similar safety gap does exist with the voluntary labeling of Barley, Rye, and Oats for millions of American Celiacs like Jax.

We draw strength from Oakley and his family in sharing their family's experiences! May Oakley's memory be a blessing!

04/02/2024

We are grateful to the Food and Drug Law Institute for publishing our Letter to the Editor in the Spring 2024 issue of Update Magazine, "FDA Citizen Petition Seeks Historical Reckoning to Require the Labeling of Gluten on All Food Packages in the United States" used with the permission of FDLI

Letter to the Editor: FDA Citizen Petition Seeks Historical Reckoning to Require the Labeling of Gluten on All Food Packages in the United States By Jon Bari & Lexi Bari Co-Founders of Celiac Journey, and Authors of FDA Citizen Petition to Require the Labeling of Gluten on All Packaged

03/27/2024

Philadelphia boy, 10, learns the power of speaking up as he lobbies for citizen petition that would require allergen labeling for all gluten.

03/07/2024

Thanks for sharing GF Jules - let's get gluten labeled in our food & medicine! For more info and to learn how you can help, see www.celiacjourney.com/comments

Let’s DO something today, shall we?
① Let’s TELL our Congressional representatives we deserve to know what’s in our prescription medications!
② And let’s TELL the FDA we deserve to have gluten (not just wheat) labeled on ALL foods!
Make a difference today by making your voice heard! (*please share this post to amplify your voice!*)

② To TELL THE FDA that you support the Celiac Journey (Jax Bari) Citizen Petition to Require the Labeling of Gluten on ALL Food Products:
https://docs.google.com/document/d/1OHVQMVxYYTBZAm8AdJdbvbS6QIBOorCEVVgSetT-Miw/edit?usp=sharing
find out more: https://rb.gy/oypvtf
①To TELL your Congressperson to support the ADINA Act (to amend the Federal Food, Drug, and Cosmetic Act to require the label of human drugs to identify each ingredient that is, or is derived from, a major food allergen or a gluten-containing grain):
https://www.facebook.com/gfJules/videos/1745260362607571
&
https://nationalceliac.org/blog/email-newsletters/support-the-adina-act-to-label-gluten-in-medicine/ National Celiac Association

12/29/2023

We are grateful to the NCA for amplifying our efforts to end the Gluten guessing game by calling on the FDA to require the labeling of Gluten. Here’s the direct link with instructions to submit comments to the FDA web site. www.celiacjourney.com/comments

Make your voice heard: submit your comments to the FDA to support Jax's citizen petition to require the labeling of gluten on all food products!

In honor of the first anniversary of the White House Conference on Hunger, Nutrition, and Health, 10-year-old Jax Bari submitted a Citizen Petition to the FDA to require the labeling of Gluten on all food packages in the U.S., just like Gluten is required to be declared on food labels in 87 other countries worldwide.

To learn more about this movement and to submit comments, visit the website at celiacjourney.com!

Photo courtesy of Celiac Journey

12/27/2023

Please help my 10-year-old son Jax’s FDA Citizen Petition by submitting supporting comments to the FDA that Gluten must be required to be labeled as a Major Food Allergen on all packaged foods in the US, just like Gluten must be declared on all food labels in 87 other countries. End the Gluten guessing game.

Make Your Voice Heard - Submit Your Comments to the FDA to Support Jax's Citizen Petition to Require the Labeling of Gluten on All Food Products ICYMI: In honor of the first anniversary of the White House Conference on Hunger, Nutrition, and Health, 10-year-old Jax Bari submitted a Citizen Petition....