Avasa Rx

World Hemophilia Day 2020 is here! - Hemophilia World News

Today is World Hemophilia Day!
"Get+involved virtually and stay safe
April 17, 2020 is World Hemophilia Day. It's a very important day for the World Federation of Hemophila (WFH) and the bleeding disorders community—but nothing is more important to us than your health and wellbeing. The WFH wants to ensure that everyone celebrates the big day in a way that is sensitive to the risks of the current global novel coronavirus (COVID-19) pandemic."

https://news.wfh.org/world-hemophilia-day-2020-is-here/

World Hemophilia Day 2020 is here! - Hemophilia World News The longevity of World Hemophilia Day is proof of the dedication and tight-knit nature of our community. The theme of the big day this year is “Get+involved”. It’s a call to action for everyone to help drive the WFH vision of “Treatment for All” at the community and global level.

COVID-19 (coronavirus disease 2019) pandemic caused by SARS-CoV-2: practical recommendations for hemophilia patients - Hemophilia World News

For patients with bleeding disorders, “If you have COVID-19 infection, some clinicians suggest prophylactic therapy and maintaining higher clotting factor levels as a precaution against bleeding into lungs from potentially severe damage inflicted by SARS-CoV-2 and severe coughing/nose blowing creating increased blood pressure in brain that might lead to bleeding. There are case reports providing evidence to support this statement.”

https://news.wfh.org/covid-19-coronavirus-disease-2019-pandemic-caused-by-sars-cov-2-practical-recommendations-for-hemophilia-patients/

COVID-19 (coronavirus disease 2019) pandemic caused by SARS-CoV-2: practical recommendations for hemophilia patients - Hemophilia World News From the World Federation of Hemophilia Medical Advisory Board (MAB)* and the WFH Committee on Product Availability, Safety, and Supply (CPSSA)**:

We had such a great time at our One Year Anniversary open house!! Thanks to everyone who stopped by!!

Bleeding Disorders – BioTek reMEDys

Check out this awesome opportunity before its too late! The application deadline is May 31st!

"BioTek reMEDys is pleased to provide three $1,000 scholarships to an individual impacted by hemophilia or other significant bleeding disorder.

BioTek reMEDys has partnered with the Hemophilia Federation of America (HFA) to administer these scholarships. The application and accompanying documents are to be submitted directly to HFA (All information will be kept confidential). Staff at BioTek reMEDys do not see applications or accompanying information, nor do they have input into the selection process."

https://www.biotekrx.com/bleeding-disorders

Bleeding Disorders – BioTek reMEDys When there is Zero Room for Error BioTek reMEDys delivers a multidisciplinary approach to our Bleeding Disorders programs. BioTek knows that patients with Hemophilia, von Willebrand Disease or other factor deficiencies face many challenges in their daily life in managing their treatment. BioTek reME...

Business Wire - 404

"Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), announced today that the U.S. Food and Drug Administration (FDA) has approved Hemlibra® (emicizumab-kxwh) for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children, ages newborn and older, with hemophilia A without factor VIII inhibitors. "

We look forward to working with the community and patients who are interested in this product!

https://www.businesswire.com/news/home/20181004005633/en/FDA-Approves-Genentech%E2%80%99s-Hemlibra-Emicizumab-kxwh-Hemophilia-Factor

Business Wire - 404

Exercise and Physical Therapy | The Myositis Association

Exercise and Physical Therapy | The Myositis Association See how exercise and physical therapy are implemented as part of standard myositis treatment plans and check out presentations on exercise treatments.

5 Tips for Infusing Away From Home

5 Tips for Infusing Away From Home If you or your ch

Bleeding Disorders: Causes, Types, and Diagnosis

Bleeding Disorders: Causes, Types, and Diagnosis Find information on bleeding disorder symptoms, causes, and complications. Learn about the different types of bleeding disorders and how they’re treated.

Sometimes Patients Simply Need Other Patients

"In an ideal world, when we are faced with a new health problem, a clinician is available to sit down and address all our questions and anxieties about the condition and its treatment. This ideal is rarely met in the United States health system. More typically, we’re rushed through doctor visits that fly by too quickly for us to gather our thoughts.

Other patients can help. They have (or have had) your condition, as well as your anxieties and questions, and they’ve found a path through. Their journeys can be informative and helpful, and can also help you prepare for the next session with a doctor."

https://www.nytimes.com/2018/07/09/upshot/sometimes-patients-simply-need-other-patients.html

Sometimes Patients Simply Need Other Patients Using the internet for a diagnosis is not recommended, but there’s great power in sharing stories.

3 Key Challenges Ahead for Women With Bleeding Disorders

3 Key Challenges Ahead for Women With Bleeding Disorders For a long time,

Had a fantastic time at the Community and Education Day!!

Thank you to everyone who turned out to the Open House for Avasa RX’s grand opening. It was a pleasure to meet new people and catch up with all of our friends in Phoenix. We look forward to a bright future!

Join us this Thursday as we celebrate the opening of Avasa Rx!

It's now easier to call Avasa Rx.

It's now easier to call Avasa Rx.

Check out the new waiting area. Avasa RX is really coming together, and we are looking forward to seeing you at the open house on April 19th!!!