Pediatric Palliative Care Coalition

10/07/2025

Upcoming Webinar on October 10: Navigating Periviable Birth

Join us for an in-depth exploration of periviable birth—covering survival and neurodevelopment outcomes, practice variability, and anticipated NICU care for these fragile infants.

We'll dive into:
💡 Historical and current ethical controversies in the “grey zone” of viability
💡 Emerging treatments, including the artificial womb
💡 Opportunities for pediatric palliative care supporting families, pregnant women, and care teams
💡 Effective communication strategies for shared decision-making and compassionate care

Learning Objectives:
✅ Define periviable birth, neonatal viability, and extremely low gestational age in today’s clinical context
✅ Recognize the ethical challenges of caring for these infants and their families
✅ Explore models for integrating palliative care in the NICU

This is a must-attend for healthcare professionals navigating the complex, high-stakes world of periviable care.

Register at: https://www.tfaforms.com/5164780

09/30/2025

Join us for a new 3-part series which will take a Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.

This program, created for healthcare professionals, will take place over 3 consecutive weeks: October 3rd, 10th and 17th. 9am PT/10am MT/11am CT/12pm ET.

Registration is Open - Discounts are available.

https://www.tfaforms.com/5164780

09/23/2025

PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to Pennsylvania families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program.

Learn more about it and get involved today!

https://www.ppcc-pa.org/resource-matching-program/lantern-introduction

09/16/2025

There is still time to register for the September 2025 PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families.

In this webinar, presenters will discuss compassionate strategies for aligning with families and overcoming barriers where the provider team(s) doesn't agree or where the patient has a change from baseline making prior goals unachievable.

More information and registration at https://www.ppcwebinars.org/

08/27/2025

We are excited to share that Betsy Hawley, PPCC Exectutive Director, was recently featured on the Remembering a Life podcast.

We hope you will take some time out of your day to listen to this caring conversation between Betsy, Kristin James and Gail Marquardt about how to help ensure families have the resources and support they need while caring for a child at end of life and honoring the life of that child in meaningful ways.

Listen to the podcast here: https://www.rememberingalife.com/blogs/podcast/when-a-child-dies-navigating-the-grief-of-unfathomable-loss

08/05/2025

Our next PPCC Firefly Chat is happening next Wednesday, August 13th at Noon!

Join us for Managing Pediatric Complex Care in the Home Setting where our PPCC moderator, care providers and parent presenter will highlight the importance of communication, collaboration and strategies to support patients and families. The panel will also discuss barriers and challenges to meeting the needs of complex patients in the home setting.

Firefly Chats are FREE, but registration is required.

Register at https://ow.ly/E9OY50WAby7

07/28/2025

This summer, your kindness can shine bright. ✨

Join our Firefly Campaign to bring hope, knowledge and resources to families facing the unimaginable.

💛 Be a light in the darkness.
💡 Donate today and help us Light the Way.

www.ppcc-pa.org/donate

07/22/2025

Register now for the August 2025 PPC Webinar - Deprescribing in Children: Is It Even Possible?

In this webinar, the presenter will discuss possible strategies for discontinuing non-essential medications as children enter hospice and approach end of life and suggestions for open communication between medical professionals and parents/caregivers.

Learn more at https://mailchi.mp/ppcc-pa/register-now-for-the-august-2025-ppc-webinar

07/19/2025

We're excited and honored to be part of this quarter’s Register Round-Up at the East End Food Co-op! This incredible initiative invites shoppers to round up their purchases to the nearest dollar, with the extra change going directly to support local nonprofits, including us!

Betsy had a great time today connecting with Co-op patrons, sharing the heart behind our mission and the impact of our programs.

If you're in Pittsburgh, stop by the Co-op and don’t forget to round up at the register. Every cent goes a long way in supporting PPCC and the community we serve!

07/12/2025

This summer, you can help Light the Way.

Join us in our annual Firefly Campaign, a movement to bring compassionate care, vital education and essential resources to the children, families and caregivers who need it most.

Every donation, big or small, makes a lasting difference.

Be a light. Give today.

www.ppcc-pa.org/donate

07/07/2025