Pediatric Palliative Care Coalition

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Pittsburgh, PA
Pediatric Palliative Care Coalition

Working together for children with medical complexity
http://www.ppcc-pa.org/

03/03/2026

Register today for the March 2026 PPC Webinar on March 17, 2026 - The Calm and the Storm: Hypothermic Dysautonomia Througha Palliative Care Lens.

In this webinar, Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI using case studies. He will also discuss dynamic goals assessment for this problem and describe how partnership with a child’s community can inform management.

https://mailchi.mp/ppcc-pa/march-2026-ppc-webinar

02/24/2026

🆕 Pediatric e-Journal Issue #82 | Trauma and Trauma-Informed Care
The latest edition of the Pediatric e-Journal is available now! The focus of this issue is trauma and trauma-informed care, specifically as they involve patients and family members.

The eJournal is available to everyone and can be downloaded from the Alliance website: https://allianceforcareathome.org/pediatric-care/pediatric-e-journal/

This e-Journal is produced by the Pediatric e-Journal Workgroup and is a program of the National Alliance for Care at Home. Archived issues of this publication are also available on the Alliance website.

02/16/2026

There is still time to register for Thursday's PPC Webinar - Sorry/Not Sorry: Identifying Emotions in Ourselves to Deepen Compassionate Communication with Others.

Pediatric palliative medical providers care for patients and families facing stressful and emotionally overwhelming illnesses, treatments and prognosis. This session explores methods for communicating with compassion while cushioning the emotional and spiritual well-being of medical providers.

https://www.tfaforms.com/5203862

02/11/2026

We hope you will join us TOMORROW, February 11, 2026 at Noon EST for our first PPCC Firefly Chat of the year.

During this Firefly Chat, a parent caregiver and a hospice social worker will discuss the emotional, spiritual, physical and logistical challenges caregivers encounter every day. Information will be shared about creating a network of support to help improve quality of life and bring joy to the child and family. In addition, the presenters will highlight resources and share tips for families striving to create a nurturing and inclusive home environment.

This event is free of charge, but registration is required.

https://us02web.zoom.us/webinar/register/WN_08DNDbZYQBKxypjUrcsVZA #/registration

02/10/2026

Register today for the 2026 PPC Webinar on February 19, 2026 - Sorry/Not Sorry: Identifying Emotions in Ourselves to Deepen Compassionate Communication with Others.

Pediatric palliative medical providers care for patients and families facing stressful and emotionally overwhelming illnesses, treatments and prognosis. This session explores methods for communicating with compassion while cushioning the emotional and spiritual well-being of medical providers.

02/06/2026

We hope you will join us Wednesday, February 11, 2026 at Noon EST for our first PPCC Firefly Chat of the year.

During this Firefly Chat, a parent caregiver and a hospice social worker will discuss the emotional, spiritual, physical and logistical challenges caregivers encounter every day. Information will be shared about creating a network of support to help improve quality of life and bring joy to the child and family. In addition, the presenters will highlight resources and share tips for families striving to create a nurturing and inclusive home environment.

This event is free of charge, but registration is required.

https://us02web.zoom.us/webinar/register/WN_08DNDbZYQBKxypjUrcsVZA #/registration

01/20/2026

There is still time to register for our first PPC Webinar of 2026: Shifting Goals of Care When Prognosis is Uncertain in Pediatric Palliative Care.

This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Additionally, presenters will describe strategies to address family distress in the face of unclear prognostic information and to navigate shifting goals of care as patients near end of life.

Learn more at https://www.ppcwebinars.org/

01/13/2026

Join us on January 22nd for our first PPC Webinar of 2026: Shifting Goals of Care When Prognosis is Uncertain in Pediatric Palliative Care.

This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Additionally, presenters will describe strategies to address family distress in the face of unclear prognostic information and to navigate shifting goals of care as patients near end of life.

Learn more at https://www.ppcwebinars.org/

12/31/2025

As we say goodbye to 2025, we are deeply grateful for our community.

With your help, PPCC has provided vital education, resources, and support to families and caregivers of children with medical complexity for more than a decade.

We could not do this work without you!

Wishing you a New Year filled with peace, hope and meaningful moments with those you hold dear!

12/05/2025

We hope you will join us for our upcoming Firefly Chat on December 10th at noon EST.

This Chat - ‍"Bridging Language Gaps: Effective Support for Non-English Speaking Families" - will focus on ‍working with non-English speaking families in palliative care settings. These families require compassion, cultural sensitivity and a communication centered approach.

During this Firefly Chat, we focused on these key areas:
‍
💜 Identify language boundaries to ideal patient care
🧡 Identify strategies to improve support for non-English speaking families
💙 Identify nuances in language using interpretation and the importance of preparation

Learn more and register at https://www.ppcc-pa.org/firefly-chat

12/02/2025

Today is National Day of Giving! Thanks to the generosity of friends like you, Pediatric Palliative Care Coalition has provided education, resources and support to families, caregivers and care providers for over a decade. We hope you will consider donating to help light the way for children with medical complexity, their caregivers and their care providers.

www.ppcc-pa.org/donate

11/26/2025

Join our community of supporters in bringing hope and light to children with medical complexity, their families and their caregivers by supporting PPCC today.

Here are 3 different ways you can help:

🧡Make a donation today. With your help, we can keep expanding our reach - bringing essential programs and resources to every family, every caregiver, and every provider who needs them. Your generosity lights the way for families, helping them navigate their most challenging moments with love and care. https://ow.ly/Z7xJ50UamOx

💙💙Host your own virtual fundraiser through our donation platform, Give Lively. They make it easy to spread the word about PPCC. Simply visit https://ow.ly/Ap9U50UamOw click "Start a Fundraiser." You can also share directly to your social media feeds using the same link.

💜💜💜Subscribe to the PPC Webinar Series. This is a great way to both support our mission and build your confidence and competency around providing care to children. www.ppcwebinars.org

We appreciate your continued support!

Address

Pittsburgh, PA

Telephone

+14129638243

Website

http://www.ppcc-pa.org/

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