Western Pennsylvania Dystonia Support Group

04/18/2024

As of May 1, 2024 all of our Facebook activity and posting will now be found at our primary page:
https://www.facebook.com/dystonia.foundation

If you haven't already joined us on that page, please do as soon as possible to stay up-to-date on all of the news and information that the DMRF has to share with the community.

03/26/2024

On Friday, April 12th,2024, at 1:00 PM CST USA the DFW DBS Support group will be having their next meeting at Skypass Travel in Irving. The meeting is DBS Device Dialogues and will host 3 representatives from the manufactures of the DBS devices used in Deep Brain Stimulation Surgery. Please note the time change! Also the flyer attached has a QR code to register for the Zoom attenders. In person please RSVP at the email or phone number mentioned on the flyer. We look forward to seeing you there.

02/27/2024

Nikki Czachowski
Hopefully these are still available

10/16/2023

We learned that one of our dear members has left us. God bless Fran🙏❤️

View Frances Lehman's obituary, send flowers and sign the guestbook.

10/12/2023

Webinar: Untangling the complexity of Dystonia

Presentation on dystonia research with Joel S. Perlmutter, MD, Elliot Stein Family Professor of Neurology and Head of the Movement Disorders Program at Washi...

10/12/2023

This Sunday!

Virtual Dystonia Zoo Day 🐨 Participate from the comfort of your own home!

Join families across the country on this important day to promote dystonia awareness, raise funds to support the DMRF, and connect the community so that no one has to face dystonia alone. This is a wonderful opportunity for you to help those who are living in isolation and to bring awareness to a cause that is often overlooked.

Sign-up is free and you can show your support by purchasing a shirt, starting a team, or making a donation. The team t-shirt deadline is September 25.
Register Today! https://bit.ly/3ZqhHMq

09/26/2023

We did it! Another fantastic walk for Dystonia is in the books! Thanks for all who donated and those that came and showed their support for this community!

09/01/2023

Tomorrow is the last day to register and be guaranteed a tshirt!

https://pittsburghdystoniazooday.swell.gives/?fbclid=IwAR1ztvoPOdnL_1Aw4pQ8fouS1VkeQth1Xq0oQv-SbY8OsZsK-dYCooORUWk_aem_ASoVgLMsaXgQHpi8tDiOsHZg9hIVq3e6ciNgIuKEQBRDUUYYK-0L3X1lWK3d88ANaJ4&mibextid=2JQ9oc

08/21/2023

Pittsburgh is the best! Thanks to you! Today is the official last day to guarantee a tshirt! Donations and sponsorships are taken up too the17th! !

Join my Team! Help me raise funds to support the DMRF mission to advance research and provide information and support to families impacted by all forms of the brain disorder dystonia. NEW this year: If our team raises more than we did last year, 100% of our team total will be matched. What are Dysto...

08/10/2023

08/02/2023

September 17th 2023 Pittsburgh Dystonia Zoo Day is back! Sponsorships and teams are available! Who looks good in blue! YOU!

https://pittsburghdystoniazooday.swell.gives/

04/18/2023

Beginning on Tuesday, April 18 and running through Friday, April 21, there are loads of great items to be had at bid4dystoniamrf.givesmart.com.



Tell your family - Tell your friends – Tell your support group members. Tell your family, friends and support group members to tell their friends!



Let your mailman know. Your workmates, golfmates, Zumbamates. Any mates at all!



Let's Bid it Up for Dystonia!