Trains for Thomas

Thomas was born with a rare chromosomal disorder called Sathe Chotzen. This caused Thomas's skull to be malformed. His skull did not grow as a normal child's would. His skull is to small to hold his brain. Right now his brain is pushing against his skull. This surgery is going to relieve that pressure and expand his skull pulling his forehead out so his head will be the normal size of a 9 year olds. This disorder also causes other issues like heart defects (which Thomas does not have) spine and bone issues which Thomas is being evaluated for right now since he has a very severe limp. The constant pressure is causing him headaches. After surgery Thomas will be in ICU for about 5 days. Thomas also has a bleeding disorder that has caused several complications with prior surgeries. This surgery will be number 10. Thomas is a very happy loving little man who loves playing football ( he likes the Eagles even though Mommy is trying to teach him about the Steelers) he loves building with legos, riding his scooter. He has a long road ahead of him but bounces back quickly. He was just operated on in July and even though we had a complications he was back to playing football 2 weeks later.