Megan Living With Spina Bifida

02/07/2026

Why I love Spoonie Threads 🖤

Adaptive clothing is finally getting the spotlight it deserves, and Threads is absolutely smashing it.

As someone who lives life as a wheelchair user and busy mom, clothing isn’t just about style — it’s about function, comfort, and dignity. I need pieces that move with me, don’t cause pressure issues, and still let me feel confident when I walk (or roll) out the door.

Threads truly gets it. They are designing clothing with real disabled bodies and real daily challenges in mind — not as an afterthought. That matters more than most people realize.

Adaptive fashion shouldn’t mean sacrificing style, and with brands like this leading the way, it doesn’t have to. Seeing companies step up and listen to our community gives me so much hope for the future of accessibility in fashion.

If you haven’t checked them out yet, you should. Our community deserves brands that see us, hear us, and design for us.

# # #

01/26/2026

Cold weather affects everyone differently, but I wanted to share how it impacts me and my body—especially living with chronic nerve and back pain.

1) Loss of independence
Cold, icy weather immediately takes away some of my independence. Pushing a wheelchair through ice and snow isn’t just difficult—it’s unsafe. When you can’t fully control your wheelchair, every movement becomes risky. Ice makes simple things like getting around or loading my wheelchair into the van nearly impossible. The fear of slipping or losing control is always there, and moments like that are a harsh reminder of how much the weather can dictate what I’m able to do.

2) Intense nerve and back pain
Severe pain is something that is always part of my life—it doesn’t disappear when the weather is nice. My back pain is constant and something I live with every single day. However, cold weather makes it significantly worse. The cold causes my body to stiffen, my muscles to tighten, and my pain to flare to a level that feels unbearable.

Cold temperatures also make my nerve pain go into overdrive, especially in my feet. The pain is sharp, burning, and relentless. It feels like my feet are being shoved into a fireplace, burning from the inside out. Even medications like Gabapentin don’t touch this level of pain.

My lower back pain during cold weather is another level entirely. It feels like my back is being crushed or broken beyond repair. What makes this even harder is that the pain doesn’t wait for the weather to arrive—it often starts days before the cold weather rolls in, almost like my body senses it coming. Once these flares begin, nothing truly fixes them; all I can do is manage and endure.

Cold weather isn’t just an inconvenience for me—it intensifies pain I already live with daily, takes away independence, and impacts my ability to function. This is the reality of chronic pain and disability, especially during the winter months, and it’s something many people never see.

01/17/2026

Growing up, I never knew if becoming a mama would be part of my story. I wanted children so badly, but I wasn’t sure how—or if—it would ever happen. Truthfully, there were moments when I even questioned whether someone would love me enough to want to build a family with me.

As I got older, doctors at Scottish Rite advised me never to place my legs in traditional stirrups during exams or delivery, as that position could put too much pressure on my tethered spinal cord. Did I always follow that advice? No. Fear played a big role—I was scared to speak up, though I’m still not entirely sure why.

When it came time to bring my babies into the world, I had C-sections and was fully put to sleep because I was advised against getting an epidural. Thankfully, the deliveries themselves went smoothly. The weeks that followed, however, were incredibly challenging. Recovering from major abdominal surgery while having limited functional back muscles made healing difficult. Every movement felt hard—turning, sitting up, getting around at all. To add to it, my husband had to return to work the day after I gave birth.

And yet… I wouldn’t change a single thing.

Parenthood is hard in so many ways, and my journey was no different. It came with extra challenges, but it also came with unimaginable love and purpose. If you have questions or are walking a similar path, please don’t hesitate to reach out. You’re not alone. 💕

01/16/2026

I had the honor of attending the Spina Bifida Association of North Texas 50th Year Gala, where I was recognized as the Chair of our Adult Advisory Committee. Moments like this remind me why I continue to say yes to serving this community and doing my part to support adults living with Spina Bifida.

While balancing family life can be challenging at times, knowing that I’m making a meaningful difference truly fills my heart. I am now entering my forth year serving on the Board, and I’m incredibly proud of what we’ve built together. From creating monthly lunches and hosting virtual events to starting our Friendsgiving gatherings, these were some of the goals I had when I first accepted this position—and to see them come to life has been so rewarding. Even more exciting, our adult community continues to grow, connect, and thrive, and I’m grateful to be a part of that journey.

01/11/2026

Hollister Infyna Chic is my go to catheter when it comes to cathing with a neurogenic bladder.
What is a neurogenic bladder - nerve damage disrupts normal bladder control, leading to issues like urinary incontinence (leaking), retention (inability to empty), urgency, or frequency.
I have to cath every 3-4 hours and finding a catheter that works is important. The Infyna Chic come in a small 5.5 inch case and pre-lubed. It has a rounded tip for smooth edges to ensure it doesn't hurt, although I can't feel it anyways. If you have any questions please feel free to comment and I will get back to you.

01/10/2026

A hyperbaric chamber is a medical device where a person breathes 100% oxygen while inside a chamber that is pressurized to higher-than-normal air pressure.

How it works
• Normally, we breathe air that’s about 21% oxygen.
• Inside a hyperbaric chamber, the pressure is increased and you breathe pure oxygen.
• This allows your blood to carry much more oxygen than usual.
• The extra oxygen helps tissues heal faster and fight infection.

Why people use hyperbaric oxygen therapy (HBOT)

Doctors may recommend it for:
• Non-healing wounds (like diabetic ulcers)
• Radiation injuries
• Serious infections
• Crush injuries
• Carbon monoxide poisoning
• Bone infections
• Certain surgical recovery cases

Some people also explore it (with mixed medical evidence) for:
• Chronic pain
• Inflammation
• Neurological conditions
• Fatigue or brain fog

What a session is like
• You lie down inside a clear chamber.
• The pressure slowly increases (you may feel ear popping, like on an airplane).
• My sessions are 120 minutes.
• It’s painless, and many people relax, watch TV, or nap.

01/09/2026

Threads has done it again. They are my number one items I pull out of my closet when I am going to a doctor appointment. rather it's me getting my blood pressure taken or as simple as getting labs. I can't be more happier than I am with Spoonie Threads.. Feel free to reach out to me if you have any questions as I would be happy to give you more information on this adaptable, clothing line brand.

#adaptable #inclusive

01/06/2026

Hi y’all! I’m asking for your support by following and sharing my TikTok. I’m trying to reach 201 new followers so I can become monetized. Thank you so much for supporting me and allowing me to share my journey with Spina Bifida and everything that comes along with it. Your encouragement truly means more than you know. 💙💛

799 Followers, 425 Following, 15.7k Likes - Watch awesome short videos created by Megan Crandell Williams

01/06/2026

This morning I woke up and did my normal self-catheter routine, and I immediately knew something wasn’t right. There was a lot of blood — in the toilet and filling my catheter. I haven’t changed catheters, so that wasn’t the cause.

A few days ago, while I was in the shower, I had an intense bladder pain that lasted about 10 minutes. It was the kind of pain that makes you want to cry. It eventually went away on its own, but in the days after, I started noticing changes in the smell and color of my urine and felt like an infection might be coming on.

I already had other doctor appointments this morning, so I was able to get in to see my urologist this afternoon — and I’m so thankful they could squeeze me in. Of course, when I gave a urine sample, there wasn’t as much blood as there was this morning, but the doctor confirmed there was still a significant amount present and clear signs of infection.

Because I self-catheterize, there’s usually a trace of bacteria, so they’re sending the sample off for a culture. Once the results come back, I’ll start antibiotics. In the meantime, I’ve been told to start ThermaCran Max, an over-the-counter supplement that helps reduce the risk of UTIs.

Just sharing this to be real, raise awareness, and remind others who self-cath that you know your body best. If something feels off, trust your gut and get checked. 💛

Asking for Prayers to get this cleared up ASAP

01/05/2026

I received a 10% off code for Footwear . Start the new year in the right step and you won't regret it. I will never go back to any other brand.
Check out my linktree in my bio.