05/04/2026
We are baaaack at Ronald McDonald House. It makes our 4th week staying here. Oh and what a difference in his looks from the first time being here. He's lost all that weight he put on from the steroids and even weighs less now than what he did when he was diagnosed. He's barley eating these past few weeks, but theyve told me this is typical in Consolidation, and it will normally pick back up next month, in the next phase.
Ryder was discharged from the hospital last week, and we spent the rest of the week at RMH. Ryders body finally gave into all the chemo last week and he slept, and slept, and slept. Wed, Thurs & Fri he would ask me if he could go to bed at 4pm-5pm each night. He would fall asleep, wake up to take his chemo pill, and crash again until the morning. His moods have been low the past two weeks or so, which I could only imagine being 10 years old and everything you have ever been allowed to do, you can't do anymore. You can't ride your dirt bike, can't go to friends houses because who knows what germs any friends have, can't play in the stream in your own back yard, can't rough house with your siblings, can't have sleep overs etc. You get the picture, all his favorite things have been stripped from him.
This past weekend, I wanted to do something fun instead of him just sitting at the hotel all weekend being bored and depressed, so Jason and the big kids came up and visited with us, and we visited the Baltimore Zoo. It was so nice to have Dad and siblings here with him, and show them around our home away from home. They were excited to play air hockey and pool all together.
Hopefully it will be a great week, please pray for Ryder, that his nausea will stay calm and he will be able to eat, take his meds and even have some more energy.