New England Gills for PFF

09/23/2024

Boehringer’s nerandomilast meets primary endpoint in pivotal phase-III FIBRONEER™-IPF study

09/12/2024

This year as PF tightens its grip on Gills’ Cofounder John, and Gills’ Cofounder Laurie needs to take some time to rejuvenate along with celebrating 10-years as a bilateral lung transplant survivor, 2024’s Community Walk will not happen. Click below and read about John’s PF / PFF story and please make a donation to the PFF.

Join the Pulmonary Fibrosis Foundation and me as we walk together toward a cure for PF at the PFF Walk!

08/03/2024

It’s Fact Friday, and here’s a sneak peek for you 👀

Starting in September for Pulmonary Fibrosis Awareness Month, ✨ every day is Fact Friday! ✨

That’s right. Every single day in September at 11 a.m. central time, we’ll be posting a fact about pulmonary fibrosis. Raising knowledge and awareness about this disease is one of the goals of Pulmonary Fibrosis Awareness Month. Be on the lookout next month for a daily fact series! We’re certain that you’ll learn something new.

07/26/2024

You're in the arms of the Angels; may you find some comfort here.

Sarah McLachlan

07/26/2024

💙 Every breath, every story.

We are proud to unveil this year’s Pulmonary Fibrosis Awareness Month (PFAM) theme!

📣 Beginning September 1, the PFF will be posting content every day on social media — and we want a lot of the content to come from YOU! Submissions for our Portraits of PF series and the new Lung Pose are now open. Don’t delay — submissions will close on August 15!

Here’s a breakdown of the two activities we’re collecting submissions for:

🔹 Portraits of PF: Tell us your story. Submit a photo of yourself or your loved one and tell the world about your journey with PF and how it has impacted you. Storytelling is one of the most powerful ways to raise awareness.

🔹 Lung Pose: Strike a pose! Take a selfie following our instructions and we’ll drop your photo into our official PFAM template. Then, share the photo on your social media accounts with your friends and family to tell the world you support the PF community.

There’s so much more to PFAM than these two activities. Visit pulmonaryfibrosis.org/PFAM to take a look at what we have planned for you. We'll be posting a lot about PFAM, so keep following!

Join us this September as we stand together to raise awareness of pulmonary fibrosis.

07/20/2024

With Pulmonary Fibrosis Foundation – The New England Gills for PFF is a top supporter of the Foundation 🎉

07/09/2024

"A strong vision ignites the passion and commitment needed to lead others towards greatness." Ad so it will be with the Pulmonary Fibrosis Foundation's new CEO!

The Board of Directors of the Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis (PF) research, education and advocacy organization, today announced the appointment of Scott Staszak to President and Chief Executive Officer, effective immediately. Staszak was appointed in the role of Interim CEO earlier this year.

“On behalf of the PFF Board, I am pleased that Scott has agreed to serve as the PFF’s next President and CEO,” said David McNinch, Chairman of the PFF Board of Directors. “From the development of the PFF’s Care Center Network to the expansion of PF support groups nationwide, Scott has been integral to the growth and success of the Foundation since he joined the organization 14 years ago. I have known and worked with Scott for over a decade, and he has the experience, capabilities and vision to lead the PFF well into the future.”

“I am honored and grateful for the opportunity to assume the role of President and CEO for the PFF,” said Staszak. “We have a tremendous responsibility to patients, their family members and loved ones, and I look forward to collaborating with all members of the community to provide better solutions for everyone impacted by pulmonary fibrosis.”

Staszak was previously the PFF’s Chief Operating Officer and directed the implementation of the strategic plan and managed education, research, finance, development, human resources and IT operations. He has been instrumental in launching the PFF Registry, PFF Scholars, Clinical Trial Finder and numerous other initiatives.

In addition to his professional experience with the Foundation, Staszak has a personal connection to pulmonary fibrosis. His mother suffered from idiopathic pulmonary fibrosis and succumbed to the disease in 2015.

PF is a progressive, debilitating disease that causes scarring in the lungs and is part of a larger group of more than 200 interstitial lung diseases (ILDs), which are characterized by inflammation and/or scarring in the lungs. PF and ILDs impact over 250,000 Americans, and there are approximately 50,000 individuals who are newly diagnosed each year.

07/01/2024

Supplemental oxygen is one of the FDA-approved treatments for pulmonary fibrosis. In this PFF Summit session, you’ll get a complete overview all about oxygen, including usage and safety, and the different types available. Watch now! https://youtu.be/6SgAkJ5eZ_Q

06/09/2024

Plan!

Summer is nearly here with kids out of school, longer days, and warmer weather. Many people will be planning vacations with family and friends. If you are living with pulmonary fibrosis, you may find that travel is a bit different than it was before you were diagnosed, but a little extra planning can go a long way to make that summer vacation both accessible and enjoyable.

📌 Read our newest blog post by Dr. Amy Hajari Case at https://www.pulmonaryfibrosis.org/patients-caregivers/education-resources/pff-insights-blog/post/pff-insights/2024/06/03/summer-travel--practical-vacation-tips-for-those-with-pulmonary-fibrosis

05/14/2024

The NEW ENGLAND GILLS FOR PFF (Pulmonary Fibrosis Foundation) in its role as a small society of New England Pulmonary Fibrosis Warriors, is dedicated to raising awareness and funds for the PFF. Please help the Gills by making a donation acknowledging the myriad of New Englanders stricken by this chronic disease. Please go to bit.ly/Gills4PFF and follow the directions in the Facebook photo; your donation just might be the $$$ necessary to find the cure. Thank you!

Learn more about pulmonary fibrosis at pulmonaryfibrosis.org.

04/13/2024

Pulmonary fibrosis can be a confusing and scary diagnosis. There’s a lot of misinformation online, and that’s why we’ve gathered the world’s leading experts to help you understand your journey. In our free, full-length webinars, dive into a variety of topics with PF experts — covering things like disease progression, treatment options, lung transplants, and so much more.

https://youtube.com/playlist?list=PLpH8pAi91UL3l4fg5vsBkQMauqUA2FLPZ&si=z23jD2QDBNx_pnt8