The Kaelan Fund

The Kaelan Fund The Kaelan Fund was created to tell the story of my son Kaelan and inform others about Goldenhar Syndrome that affects so many other children out there.

A medical foundation that I started in my son Kaelan's name to help assist with his medical condition, educate others about Goldenhar Syndrome and form an avenue of communication for families suffering from this same disease. Goldenhar is a combo of facial, oral and spinal malformations, i.e. cleft lip/palate, blind in his left eye, left side of jaw and teeth are irregular, slight spinal bifida which thankfully isn't exposed. He also suffers from a severe heart condition. Kaelan has only half of his heart functioning. His left side is dead tissue and is possible that he may need a transplant in the future. Kaelan has had 18+ surgeries and counting...

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Rancho Palos Verdes, CA

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