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The Kaelan Fund

The Kaelan Fund was created to tell the story of my son Kaelan and inform others about Goldenhar Syndrome that affects so many other children out there.

A medical foundation that I started in my son Kaelan's name to help assist with his medical condition, educate others about Goldenhar Syndrome and form an avenue of communication for families suffering from this same disease. Goldenhar is a combo of facial, oral and spinal malformations, i.e. cleft lip/palate, blind in his left eye, left side of jaw and teeth are irregular, slight spinal bifida which thankfully isn't exposed. He also suffers from a severe heart condition. Kaelan has only half of his heart functioning. His left side is dead tissue and is possible that he may need a transplant in the future. Kaelan has had 18+ surgeries and counting...

12/25/2019

Merry Christmas, everyone.
🎁🎄

07/09/2019

Introducing our Smile of the Week, Ally! Ally is 14 years old and was born with with Pierre Robin Sequence, Bilateral Hemifacial Micrsomia, and Hydrochephalus. She enjoys spending time with her family, animals, piano, jazz dance and showing off her great smile!

If you would like your child to considered for Smile of the Week please send us a Facebook message with a picture and short description. See you next week!

07/01/2019

July is National Cleft and Craniofacial Awareness Month!

Here at the B*H Cleft and Craniofacial center we are committed to raising awareness for the thousands of children that are born with some type of craniofacial difference every year. Stay tuned for more entertaining and educational material!

05/07/2019

Introducing Sidney, our Smile of the Week! Sidney recently graduate from College with a degree in Early Childhood Education, congratulations and good luck in you future career!

If you would like your child to considered for Smile of the Week please send us a Facebook message with a picture and short description. See you next week!

05/03/2019

Happy Heavenly Sweet 16th Birthday to Kaelan’s baby sister, Isabel.

05/02/2019

By Amy Mendillo Amy Mendillo is a health writer-editor based in Providence, RI. Her forthcoming book, an insider’s guide for families ...

03/12/2019

Developed by the Cleft Palate Team at Nationwide Children's Hospital, this guide will highlight important milestones along your child’s care journey. Once you know what to expect, you can be an informed and proactive participant in your child’s care from infancy through young adulthood.

03/11/2019

Braille dice!

Why do we spend so much time on these ? Hours are spent checking, hand sanding, glossing, and another final check before any single piece is considered good enough. We want to make sure the or gamer that uses them has the best experience possible 💜💚

03/10/2019

Love this! Everyone can be a superhero.

With a 4-year-old son who was diagnosed with profound deafness and hearing loss just months after his birth, UK mother Sarah Ivermee is all too familiar

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