09/10/2025
This is so relatable for so many patients dealing with lymphedema
Don’t you just feel like doing this sometimes?! You almost have to when a doctor or nurse looks clueless(because they are) when you say the word lymphedema. Another one that really gets to me is “You think it’s painful? Well I wouldn’t think it is painful. It’s just edema.” I just feel like pulling may hair every time I have to say:
1. “Wear my body for one day! And feel my pain.” They wouldn’t ever question our pain again!
2. “It’s not edema! It’s LYMPHEDEMA! Two different conditions DOCTOR!”