Epilepsy in the Open

Epilepsy in the Open This reflects the vision of Thomas McGranahan, Jr. whose personal journey with epilepsy,has been docu

Epilepsy in the Open reflects the vision of Thomas McGranahan, Jr. whose personal journey with epilepsy, including struggles with social limitations, employment discrimination and brain surgeries, has been documented in his book UNDER SIEGE – Epilepsy in the Open
His experience led him to a passion for creating awareness of the daily physical and medical challenges faced by persons with epilepsy as well as societal limitations often brought about by irrational fears.

Here are some good comfortable thoughts -what someone else says is the most important 10 things to be & do in life.
01/23/2025

Here are some good comfortable thoughts -what someone else says is the most important 10 things to be & do in life.

11/02/2024

Hmmm

something to know about in our later years
11/02/2024

something to know about in our later years

08/04/2019
06/15/2019
06/15/2019
Tom’s experience with epilepsy proves that it is not to be feared… His story will amaze you.Janice Brandt, PhD Urban Ser...
11/29/2017

Tom’s experience with epilepsy proves that it is not to be feared… His story will amaze you.
Janice Brandt, PhD Urban Services, VCU

… it took Tom’s book to really understand epilepsy and what my son experienced.
Mike Losey, SPHR President & CEO (Retired) SHRM

UNDER SIEGE – Epilepsy in the Open depicts Tom's individual social, economic, and medical challenges while also portraying Epilepsy’s nationwide and worldwide social, economic and medical realities.

05/27/2017

In this episode, Hackie Reitman, M.D. discusses common misconceptions and important tools with epilepsy advocate and author Tom McGranahan, Jr.

02/09/2017

Staying Strong is easier than it seems. Just reflect on our gifts of life.
Let’s Stay Strong through all of our challenges!!

Sharing the Challenges of Epilepsy
January 29, 2017January 30, 2017 Tom McGranahan Jr, Epilepsy, Neurodiversity
By Tom McGranahan Jr.
________________________________________
It was a beautiful day and I’d just finished playing in about 4 to 5 outdoor basketball games. Since the sun was soon setting, everybody began collecting their gear and walking to their cars. I didn’t have my license at the time so I got on my 10 speed bicycle and started heading back to the house about 2 miles away.
All of a sudden I woke up dazed and confused. I was laying on the ground next to a bush with my bicycle still between my legs. What’s going on? Why am I laying here? Where am I? It had turned completely dark outside. Nobody else was around and I wasn’t hurt in any way and I picked the bike back up, realized the whereabouts of the neighborhood I was in, got back on it and started heading to the house.
I’d had a complex partial seizure.
One can never tell when the next seizure will happen. Some worry about them happening any second. Some have to wear helmets all the time. Even when I was taking as many cautions as possible; taking medicines on time, eating healthy foods/fruits and getting all the vital sleep needed. Seizures kept happening anyways – no matter how hard I tried. After having experienced so many of them since childhood (age 10), had accepted the reality that they are going to occur when they’re going to occur and stopped worrying about them happening.
Epilepsy is a challenge to not only those with epilepsy but to those who intermingle or live with others who have epilepsy; my wife, my daughters, my parents, my friends and others.
There is no need to get all worried and scared by it. And there’s really nothing anyone can do when they see someone have a seizure – simply let them have the seizure. It is just a “short circuit”. Some are short tiny ones (absence) others can be a little more encompassing (complex) with others be all-encompassing (tonic-clonic) and they may become never-ending (status elepticus) which becomes then a must time to call an ambulance – 50,000 people a year die from those seizures.
A seizure, on its own, is likely not a reason to call an ambulance – those rides today cost $400-$600. Unless the person has fallen hard and are possibly injured, or the seizures don’t stop, they don’t usually need medical attention. And don’t ever put a spoon or anything in somebody’s mouth – nobody can swallow their tongue.
After the seizure (usually last 1-2 minutes) make sure they lay down, turn their head/body to the side and let them sleep it off. They are usually all disarrayed when they wake up – no big deal. Some aren’t even aware they had a seizure which is mainly because they’d become unconscious and so don’t have any memory of it.
It’s more than understandable for others to not know much of anything about epilepsy. If I didn’t have epilepsy I wouldn’t know a darn thing about it myself. And ironically, due to the society’s overall misunderstanding, many others who have epilepsy won’t talk about it to help others understand it because it almost always cost them any social acceptance, employment…
Epilepsy is a challenge to not only those with epilepsy but to those who intermingle or live with others who have epilepsy; my wife, my daughters, my parents, my friends and others.
More can be learned by visiting places like: https://www.caring.com/articles/best-epilepsy-websites or http://www.epilepsy.com/information/professionals/resource-library/links/epilepsy-websites … or on Facebook: https://www.facebook.com/groups/seaaware/, https://www.facebook.com/groups/578871925456869/
Everyone who has Epilepsy directly or indirectly (family member or friend) please choose to see the positive aspects of each New Day ahead. Do not let the mayhem of seizures have the final say on your perspectives. There is so much more to this world than Epilepsy. Yes, it can be quite degrading to our financial, personal, economical… aspects of life but don’t ever let it degrade your spirits – simply don’t let it! Instead choose to see the positive. By doing so we are “bringing” strengths into our family, friends and all others handling the disorders of Epilepsy instead of “pulling” on them.
Let’s all start off our upcoming days Staying Strong!!
To learn more about Tom’s story, visit his website: www.epilepsyintheopen.com
One can also view Tom and his wife on a ‘Virginia Currents’ TV show (debut -2013, rerun -2015): www.pbs.org/video/2365130524

This Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Tom McGranahan Jr
Tom McGranahan Jr. was born in Richmond Va., the second oldest in a family of eight. Lives with wife Angela and 2 daughters, Mariah and Arielle. He has a Bachelor of Science in Business Administration. He was a member of Virginia State Board for People with Disabilities 6/95-6/99, and speaker at Department of Education’s 3rd National Employment Conference 9/11/00. Exercises every other day at a gym and operates a residential painting business. He steadily perseveres to life’s challenges – like writing this article – even after 50% of the language section of his brain was removed in his 4th brain operation.
Visit his website: http://www.epilepsyintheopen.com/

Staying Strong is easier than it seems. Just reflect on our gifts of life. Which one of our families past generations wo...
12/02/2016

Staying Strong is easier than it seems. Just reflect on our gifts of life. Which one of our families past generations would have not cherished having all of the things we’ve take for granted; refrigerators, medicines, toilet paper, a car, heated/cooled living quarters…? We can all do it! Let’s Stay Strong through all of our challenges!! http://differentbrains.com/epilepsy-in-the-open

Thomas J. McGranahan Jr discusses the importance of staying strong in dealing with epilepsy.

01/27/2016

Here is a little excerpt from a recent talk. Yes, we all have to get used to having it (while yes, of course fighting it - NEVER GIVING UP) - NO that is not easy - which is why we need care from others (isn't it threw our family and love ones that we are here in the first place)...
After our communities get a better understanding - will better deal with it - lowering its cost; social, medical, economical... We all need to keep talking about it to 1 or 2 others.
I'll post full length version soon.

https://youtu.be/g0nLdv4ObO8

01/01/2016

Everyone do please choose to see the positive aspects of the New Year ahead. Please do not let the - at the times - mayhem of seizure’s have the final say on your perspectives. There is so much more to this world than epilepsy. Yes, it can be quite degrading to our financial, personal, economical… aspects of life but don’t ever let it degrade your spirits - for that is where it may/can break us if we let it - so again, simply don't let it. Instead choose to see the positive. For in doing so are also strengthening our family, friends and all others in our lives instead of “pulling” on them.

Let’s all start the New Year Staying Strong!!

Tom McGranahan Jr

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Richmond, VA

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