Broken Please follow our journey through trying to get care for my adult family member who has schizophrenia

Time to catch up again. The med change to Invega Sustenna from Haldol seems to be a good move. I haven’t seen him drool ...
05/04/2026

Time to catch up again.

The med change to Invega Sustenna from Haldol seems to be a good move. I haven’t seen him drool in some time. He also speaks more clearly and is less sedated. Thank goodness. The doctor had told us that it could take a couple of months for the Haldol to leave his system and the Sustenna to kick in. He’s managing the med change slowly. I’m glad.

The doc is also tapering him off clozapine. Clozapine really isn’t the miracle drug for him that it is for most. There have been times when he was more stable on clozapine than he has been in the last couple of years. I don’t know if his body just reached a tolerance and no longer helped him. For whatever reason, it was time for a change. Along with reducing the clozapine dose (currently 400mg at bedtime), the doctor is increasing Zyprexa. He’s now on 25mg of Zyprexa and will be slowly titrated up to a more therapeutic level. Once Haldol leaves his system and the Sustenna and Zyprexa reach therapeutic levels, maybe he can work on life skills.

Life skills are the most important part for him to be able to leave locked treatment. He needs to be able to be safe in a lower level of care and be able to take care of himself properly. Part of that will include finding som**hing to give him purpose. To make him feel good about contributing to his life and the lives of others. The administrator has worked with him on a ‘job’ in the facility. I suggested he do som**hing with people. Som**hing at which he could share his knowledge and be helpful. He was like that before he got sick, so maybe he could find that again.

The first thing they tried was having him act as the point of contact for new patients. He could show them around and explain what goes on. They tried to ‘train’ him on that. I’m not sure what the training looked like but he decided it was too hard. So, they switched him to having a job wiping down chairs after meals. I don’t think he did that more than twice.

I can’t blame him for not wanting to do that job. If the point of having a job is to teach skills and provide a sense of accomplishment to the patient, why does it have to be menial? And how had they tried to engage him and persuade him to keep trying?

That’s som**hing I’ve written about in the past. I was told (often) that he couldn’t be ‘forced’ to do som**hing if he didn’t want to. So, they accepted NO for an answer on the first try. Clearly that’s not effective. But that’s how his outpatient team did it when he was in a board and care home. I don’t know if they did give it a good try where he is now. But if not, that’s what I’d like to see happen.

The other issue with him engaging in activities to get to higher levels with more privileges is that he’s not motivated by goals. If he has to earn 27 points a week for four weeks to progress to level 2, he’s not motivated. It’s too far in the future and he loses the focus quickly.

Is that just him? Are other patients not motivated by incentives for future reward? I have heard of programs (not here) that give immediate rewards for certain activities. For instance, if they make their bed in the am, they get a cigarette. Group attendance earns tokens immediately after the group is over. Those tokens are saved for Fridays and they can use the tokens to buy som**hing at the onsite store. It seems to me that this type of incentivizing would be better for my FM. At least he’s have som**hing in hand right away.

In other news, there was an incident at the facility. My FM was on the patio on smoke break. He had finished his cigarette and sat down to wait for smoke break to be over. Another patient walked over to him and put the hot end of a cigarette against my FM’s cheek! Just below his right eye! My FM reacted appropriately by standing up and loudly asking the guy what he was doing. Staff pulled the other guy away and took him inside. My FM was taken to the nurses' station for first aid. She cleaned his would and put ointment on it. They handled it well. The man who harmed my FM was sent to the local crisis unit to be stabilized.

This isn’t the first time my FM has been injured in a psych facility. Several years ago, a patient broke his collar bone. Another time, a patient struck my FM in the face. These things happen in a place where unstable people are held. Staff are good at watching for these things, but they’re never 100% preventable. This incident happened so quickly!

I’m so glad it was a minor wound. If the man had placed the cigarette a quarter of an inch higher, it would have gone into my FM’s eye! That would have been really, really bad. Thank goodness that didn’t happen.

I saw my FM on Wednesday. We had a good visit. He wanted to shop on my phone. Shopping his favorite activity! He was trying to decide between “goth” clothing or “hippie” clothing. He loves clothes! We couldn’t find anything in goth style that would be acceptable to the facility contraband rules. So, he changed his mind and we shopped for hippie stuff. Much better! I got him a couple of cool shirts, a book, and he wants an amazonite pendant from a local new age store near me. Doable. I am proud of him that he’s able to stay under budget and not continually asking for more ‘stuff’. It gets old quickly.

Actually, since he stopped ECT and the doc is working on a med change, I am seeing good progress! He’s been able to communicate with me better, and me with him. I could tell he was agitated at the visit but he was still doing well. The prior visit, when he was showing mild symptoms, I suggested we walk together around the small patio area. It helped him.

This time, he asked if we could walk around again. He said it helps with the spirits. Excellent insight and great coping skills. We have always had better talks when we’re walking or doing an easy activity. This was good!

We'll keep moving forward. We’ll try new things. We all need to find a way to motivate him to do som**hing he’d like to do. Som**hing more in reality. He has so many beliefs about fairies and aliens and immortality that it’s hard to ground him well enough to guide him to som**hing more likely to help him integrate into the community.

If yours have been able to succeed in transitions into the public after long-term inpatient, what worked? What didn’t work? Why?

As I’m looking for a good picture to include on this post, I had a thought. Since he doesn’t do well with a future goal, maybe his team would consider breaking the goal down into smaller bites. Like the saying about how to eat an elephant: one bite at a time.

So much has been happening! Mostly good, although some not-so-good. He was still struggling with the ECT. Not the ECT, b...
03/25/2026

So much has been happening! Mostly good, although some not-so-good. He was still struggling with the ECT. Not the ECT, but more specifically, the anesthesia. Or rather, the being unconscious from anesthesia. We had to peel back the reasons to get to what he was actually scared of. One more layer peeled and he said that as he goes under the anesthesia, he feels pressure in his head. That’s what scares him.

He knows it helps him. He likes going to treatment, partly because it gets him out of his home for a couple hours. So, he tries. I’d pick him up every Monday-Wednesday-Friday and take him. He’d feel like he could do, and once he was on the table, he couldn’t.
Staff there are amazing! They played music he liked in the procedure room. They know he likes crystals and stones, so one of the nurses brought a stone bracelet he had and asked my FM about its properties. They have all gone over and above, but it wasn’t enough.

He got the treatment once in the past six attempts. He was getting more stressed out about his fear and told me he felt like a failure. So, the team (my FM, me, and the treatment team) made the decision to discharge from the treatment. It was hard, but continuing like it was counterproductive. He may be able to go back in the future. They left that open for him. But for now, he’s been discharged.
The administrator is back. She had been out for several months on maternity leave. She went out not long after my FM moved there, so we didn’t get to know her well. I’m glad she’s back. She’s reasonable, professional, and knowledgeable. Also, compassionate and passionate about the patients she works with! I’m also relieved that she’s back because of the challenges I had with the interim administrator. I think I mentioned him in and earlier post. The actual administrator runs a tight ship. She’s on top of staff and engages with the patients well. That’s a bit of a load off my mind.
After he discontinued ECT, he and I had an impromptu sit down with her. It was a really good meeting. My FM was so engaged with her. She talked with him about options to help him to achieve his goal of getting out of that level of care while gaining more privileges while he’s there. She listened to my input, as well. I feel like we’re all on the same page now.

His psychiatrist met with him a few weeks ago and called me later that day. He mentioned some med changes he wanted to make for my FM. I didn’t agree with some of what he said, but he explained some of his reasoning. I wasn’t happy with the changes he wanted to make. I explained what I thought would be the best protocol, but knew he’d still want to go with his choices. So be it. At least I planted seeds for what I want for my FM.

One change I wanted was to discontinue the Haldol. My FM has been drooling a LOT since his meds were changed not long after he arrived. He was on daily Haldol and the monthly Haldol injection. He has been sedated for a long time and I have believed the drooling and sedation have been due to the Haldol. The doctor insisted it was all due to the clozapine, not the Haldol. He had been on clozapine for almost six years with no drooling. Drooling is a side effect of clozapine, but it’s also a side effect of Haldol. Since he didn’t drool with clozapine and no Haldol, why would he now drool with clozapine and Haldol? It makes sense that it’s the Haldol.
He needs to be on an injectable, as well. That’s why he was on the Haldol injection. In the past he’d been on Invega Trinza (every three months) and before that he was on Invega Sustenna (monthly). Sustenna had worked well for him but we changed to Trinza because it meant fewer injections. However, Sustenna and clozapine weren’t necessarily the best for him. I wanted to try the Sustenna again and discontinue the Haldol. Doctor and I had agreed that it was worth trying Zyprexa shortly after my FM returned from his three-day absence. It helped as a PRN (when necessary).

Planting the seeds with this doc seems to have helped. We spoke on Friday and he agreed to discontinue the Haldol, increase the Zyprexa as a daily med, and replace the Haldol with Sustenna. As it happened, his shot was due yesterday!
The oral med change was made later on Friday and he got the injection yesterday morning. I visited him in the afternoon and he barely drooled! Hallelujah! He had been carrying around a washcloth to wipe the drool off his beard. He’ll no longer need to do that. He was also more alert and responsive.

It’s too soon to see a difference due to the Sustenna. I’m optimistic that he’s on a better track now. I really hope so. It’s been too long that this young man has had to endure meds that made him drool and sedated. Changes can be good!

He did do the ECT on Wednesday. The staff were great about moving him through the process smoothly. After that treatment...
02/17/2026

He did do the ECT on Wednesday. The staff were great about moving him through the process smoothly. After that treatment, I could tell a difference in him.

But…Friday wasn’t so good. I got him the Ativan earlier than before to be sure it kicked in. When I picked him up from his facility, he was good. Ready to go. But that changed when we got to the parking lot. He was afraid of the anesthesia again. Poor guy. I tried to get him to go in. I offered him a soda after the treatment. He agreed to go in because he wanted a soda.

He was okay in the waiting room. There was one patient ahead of him. Staff didn’t do what they said they’d do. They took the other patient in first. Then took my FM back for the pre procedure (BP, etc. and an injection of som**hing to dry up saliva to lessen side effects of anesthesia.) He was sent back to the waiting room after that. Not to the procedure room as they said they were going to do. That made it harder for him when they did call him in.

After a few minutes, the nurse came to get me. I went back and my FM was sitting up. Refusing the procedure. He asked for his bag of stuff (shoes, jacket, etc.) We all tried to talk him into staying. He was getting upset so we left. Before doing so, I talked with him about continuing the treatment. I gave him the choice of stopping treatment for the time being. His fear was too great for him to continue. So, they agreed to discharge him from the program. We can always re-enroll when he’s up to it.

We got hugs and nice goodbyes from the other patients and families in the waiting room. They also tried to encourage him. He was done.

ECT is the only treatment that has really worked for him. Well, it worked better than anything else. I hope he’s able to go back soon without the fear.

This process made me think about a lot of things. I realized a couple of weeks ago that most of the patients where he lives seem way overmedicated. I can’t understand most of them when they talk to me. They have dazed looks on their faces. Some of them communicate better than most.

I also realized that my FM is no better than he was when he moved into to that facility. In fact, he may be worse. He drools, even though he’s on a med to reduce drooling. He is often low energy. Doesn’t engage. Hard to understand because he’s sedated. I don’t know what the difference is. I have been checking the MAR (medication administration record) to confirm that he’s on the right doses and has been receiving the meds. They check out. (Except for when he came back after eloping and they left him on the same dose of clozapine that he’d been on when he left.)

It's hard to know what to do. If only there were a place for him that has the best of each of the places he’s lived in for the past six years. What would that look like?
The first placement after he was conserved was up in the mountains. Beautiful area with lots of trees. They had two cats and a chicken coop. The residents could volunteer to feed the chickens in the afternoon. My FM liked that part. He could have his video games and music. He was mostly ok, except that he couldn’t smoke there. Then Covid hit. They didn’t allow any visitors for over a year. I don’t really know how things were there since I couldn’t visit. I do know that there several medication errors. Serious errors like misreading an order to stop clozapine serum levels as an order to stop clozapine. The gave him Lithium against my wishes. They missed his Haldol shot. There were more, those are the significant errors.

The next placement was good. He could earn the privilege of leaving the facility. He could smoke when he wanted. He had friends there. The biggest challenge was the food. They believe food is medicine and prepare only healthy foods. Quinoa, Kale, lots of fish, etc. He would not/could not eat the food. He would sometimes eat the parts of the meal that were ok with him. But he was very picky. At one point, he started awoling and using m**h. He was doing that more often and it became hard to manage. So, I pulled him out.

Then to another one. This one was very strict. They had some good points, like having the clinic at a different site so the home could just be home. He really liked the food there. He gained insight for the first time. The problem I had with it was management and staff. They didn’t know how to work with a private conservator. They were rude. Communication was poor. They required groups at the clinic in order to go on weekend outings. That’s cool. However, if he missed even one group, he couldn’t go. He was sick on a Monday but attended groups the rest of the week. That didn’t matter. They kept his money/card locked up for shopping and outings. His clinician forgot to put it back and he was unable to go on the weekend outing because of her error. So much more! It was an uncomfortable place.

Then to the community in an augmented board and care home. He had freedom. He had supervision. But staff didn’t engage him or monitor daily activities. He knew where to find drugs. He had video games and would stay in his room and play games most days.
I pulled him because he was slipping deeper into depression and isolation. He had an outpatient clinician who didn’t do as much as I’d have liked. Basically, they’d ask him if he wanted to do anything. Or they’d bring up a specific activity. If he said no, they’d leave it at that. Too little interaction.

Then to a brief placement in an adult residential facility. They are the same company that practices “food is medicine”. Their variety of food was better than the first place. The downside? He had to take meds at a certain time. If he wasn’t up in time, he didn’t get meds. Backwards, right? Many people like my FM don’t want to take meds badly enough to get up early for them. But they blamed him for not getting up. Again, a move.

Keep in mind these moves are over a six-year period.
Again, we tried another facility owned by the food is medicine company. That place was excellent! He did well with the food. Staff were amazing! Programming was fantastic! The problem? Constant eloping to get energy drinks or m**h. They kicked him out.
His current placement was wonderful in the beginning. I guess I expected more from them. They do treat the residents like patients. It’s very medical. It just seems like the patients are much sicker than my FM, and/or overmedicated.

I’m sorry this is so long. I’m thinking ‘out loud’ as I write. I would love to find a perfect placement, but it obviously doesn’t exist. What would be ideal, in your opinion? Better activities? Ways to engage them in individualized activities? Building confidence and purpose? How will we make this happen? I’m too exhausted to do the work, but ideas here may help others push for better homes.

He’s back in ECT. I kept him out until he recovered from his time on the streets without meds. His symptoms are still no...
02/13/2026

He’s back in ECT. I kept him out until he recovered from his time on the streets without meds. His symptoms are still not so good, but it was time to take him back. It was so obvious that the ECT had worked well after seeing how he’s been without it. It made a huge difference!

After he returned, his doctor and I talked about the opportunity we had. Since he had been off clozapine for more than 72 hours, they’d have had to start him back at a low dose. The doctor and I agreed that it would be a good time to try Zyprexa, instead. Excellent. Crisis becomes opportunity.

Not quite. When I talked with the doctor at the end of that week, he told me (casually) that he was on clozapine still. Huh? I thought he was changing meds. His explanation was that the nursing staff had started him back on the same dose of clozapine that he was on before he took off. NO! Not good. If he were put back on clozapine, they should have started low and gradually increased the dose. It seems risky to me, what they did, but the doctor said it was fine and happens often. Wow.

So, he’s drooling a lot. Doc says it’s the clozapine but he didn’t drool until he got to this facility. Why would that change? That’s the least of my worries. It’s just gross.

I scheduled him for Monday, at the beginning of this week. He was all for it! Ready to get back to it. Yay! Or not. It was easy to get him there. But the anxiety set in when we arrived. He was (again) afraid of the anesthesia. I get it. That could be scary. But he’d done it 14 times before.

I got him to go into the office with me. He told staff he didn’t want to do it. Staff there are wonderful! They tried to encourage him to do it. The doctor gave him a 1mg lorazepam to relax him. There were patients in the waiting and family members that we’ve gotten to know during the treatment process. They talked with him about their experiences and the experiences of their loved ones. It was just amazing. A real community of care.

He still wouldn’t do it. I don’t think he got the anxiety med soon enough. The ECT doc had asked me to ask his inpatient doc to prescribe the Ativan so he could take it at least an hour before treatment. He refused to prescribe Ativan and prescribed Zyprexa instead. Huh? Zyprexa is an antipsychotic. Ativan is anti-anxiety. He has anxiety. The doc’s reasoning is that Ativan is addictive. Well, alrighty then.

I told the ECT doc about the doc only prescribing Zyprexa. So she sent a prescription for my FM to my pharmacy so I could hang onto it and give him one when I pick him up for
ECT. Whatever works.

He had one right after we left the facility on Wednesday. It didn’t kick in quickly enough and he was anxious again. This amazing staff called him in to check-in before others, so they could get him started. Typically, the patient comes back to the waiting room after vitals are checked, etc. This time, they took him straight to the procedure room, so he wouldn’t have a chance to take off. They had me go back to be with him while they prepped. I wanted to stay for the procedure, but that was a no. Darn it. I’d be curious to watch.

When he came out of recovery, he had some cookies. The office manager had told him he could have them after the treatment. She is so cool! She also told me they were going to take him in right away on Friday and go from the check- in to the procedure right away. Amazing creativity and care!

***********************************************************

I just remembered a negative thing that happened with the facility. I’m still pretty ticked off. A couple weeks ago, we had the monthly meeting with the county. The facility contracts with the county for the services for conservatees. It’s a brief meeting, no more than fifteen minutes.
One of the administrators was on the call. I hadn’t met him since my FM has been at that facility. He was fairly quiet until the end of the meeting. Then he attacked me. Sort of. He started telling me that staff were not happy with me about items I brought in for my FM. He said my FM had a skull ring that isn’t allowed there. I never got him a skull ring, and I don’t think he has one. I told the administrator that. He then told me he knows there were other contraband items I had taken in. Two lighters were found in my FM’s room. I’m sure he forgot those in his pocket when we’d been out for ECT. Easy to overlook and forget about. But apparently, I have to check him before he goes back in. Good grief.

This administrator actually told me that if I kept doing that, he may have to limit visits with my FM. Uh, he can’t do that. I’m the conservator. He was completely unprofessional and rude in that meeting. The county called the meeting, and he used their time to tell me about issues he has with me? So wrong. I hope the county rep who was on the call said som**hing to him, too.

Their rules are hard to understand. The staff aren’t always consistent with their understanding of what is allowed and what’s not allowed. When he first got there, he had rosary beads. One nurse said that was fine and an administrator said he couldn’t have them. Necklaces were fine, at first. But then I was told that they would need to have breakaway clasps. No problem. I bought the clasps and changed them out. He can have some crystals but not others. I haven’t been able to determine which are ok and which aren’t. It’s really strange.

I’ve always thought about inpatient crisis units and their regulations, as well. They say no belts due to possible harm. I get that. But one facility said he couldn’t have his little stuffed Pokémon doll. How dangerous could that be? I know they do the best they can and can’t stop harm 100% of the time. But it seems they could be more consistent and clearer.

After that county meeting, it seems rules at the facility have changed. Suddenly, anything I bring to him, even fast food, has to be checked by a nurse. I had a canvas bag with a couple books and food in. They had to check that. Our visits are limited to one hour. I’m not sure if these new rules are just for me or if the change is for every visitor. It had better be the latter.

Then, last time I visited, they didn’t have to check my bag. Everything seemed back to normal. I don’t know why. It felt like I had been harassed because of the new rules. But maybe I was a little paranoid? Whatever the reason, I have no respect for that man.

The good news is that he’s back in ECT. I’ll deal with the situation with the administrator when I need to. I hope I don’t need to. My FM is getting back on track and that’s what’s important.

Part 2. The past week. The ECT post I shared before this one was positive. Hopeful. Wonderful. Then he had a setback. On...
01/23/2026

Part 2. The past week.

The ECT post I shared before this one was positive. Hopeful. Wonderful. Then he had a setback.

On the Monday before last, I picked him up to go to ECT. He has to fast and can’t take meds before the treatment. Staff reminds him that he can’t eat but they missed once or twice. It happens.

We pulled into the parking lot of the clinic. He said he forgot that he wasn’t supposed to eat. He told me he had eggs and juice. Just great. So I took him back to his home. I told staff that he said he ate. They said he did not eat. But my FM was so specific about what he ate. That’s why I cancelled his appointment and took him home. I should have called staff before taking him back. But I believed him.

He missed Monday’s treatment. I picked him up for Wednesday’s treatment. He said he was scared to be “put to sleep”. I asked him to go anyway in case he felt better. When we got there he refused to get out of the car. I tried to convince him to just go in. He refused. I went to the clinic to see if they could help. The head doctor came out to the car to talk with him. She offered Ativan to help with the fear if he’d come in. He refused. We went back to his home.

I had scheduled an office appointment with his ECT doc for the next day. It was a follow up on his treatment but as it turned out, it was also a good opportunity for her to talk to him about his fears.

The appointment went well. He said he still wants to continue ECT and that he believes it helps.

After the appointment, we went to Jack in the Box. He said som**hing about taking off, asking what would happen if he did. We talked about it and I reminded him that he could lose his bed at his home and that he’d have to start all over earning privileges. He didn’t leave. Good.

Not good. I got to the stoplight to turn onto the road he lives on. There were several cars in front of us. Suddenly, he unbuckled his seatbelt and jumped out of the car!!!

He ran across the busy street. When I could, I got to the other side of the street to find him. He had disappeared!

There was a Target not far away. I thought he might try to shoplift or panhandle for an energy drink. I “staked out” the front door for several minutes. I thought I’d find him there or that I’d find cops showing up. If he’d have shoplifted they’d have called the cops.

I drove around for some time before going back to his home. I wasn’t sure about the facility’s policies in this situation so I wanted to involve them. I called the cops and made a report. I told the officer he was at risk because he’s in a locked facility and is conserved. He wouldn’t have access to his meds. He had nothing but the clothes he was wearing.

Apparently, the cops don’t search for missing persons. Missing at-risk persons in this case. I was hoping my FM would just show up later or call me. I wasn’t too worried at first.

When he was still gone the next day (and missed another ECT treatment), I started to get worried. I drove back to the area he was in and searched more. On my way back home, I got a call from a staff member. She said a man who runs one of their groups notified them that he had spotted my FM! She told me where he was seen and I turned around and went to that location.

I called the cops to tell them where he was seen. I asked them to come check for him. They told me they “don’t do that” unless the person is at-risk. I told them he is! They said he was not listed as at-risk so they couldn’t do anything unless he was standing right by me and refusing to leave with me. Unbelievable.

By the time I got off the phone with the cop, I was too late. He wasn’t there. I drove around the area several times. Since I couldn’t find him I went home.

It was so cold at night. The area he was last seen in is a rough area. Lots of homeless and drugs. Not a good place to be. I couldn’t keep looking around so I went back home.

The next am (Saturday), another staff member called me. She had seen him not far from the area the other person reported seeing him. It was super foggy so waited until the afternoon to go. I asked my good friend Joanna to drive me so I could look for him. We’ve done this before and we’re usually good at it.

Not this time. We drive around the area for a couple hours. Then we drive back towards his home in case he was on his way back there. We stopped at the ER close to his home. I went in to ask if he was there and if they’d seen him. He wasn’t there but I showed the security staff his photo and asked them to tell him to call me if they saw him.

The next morning, I wasn’t sure I’d go back to search for him. I thought the only way I’d get him back was if he contacted me. That I’d just have to wait. So I waited.

At 2pm I got a call that showed it was from the ER I stopped at the day before. I was sure it was him or the staff calling to tell me he was there!

I was right! I heard his voice in the background and a woman telling him I was on the phone and he needs to talk to me. She was the security guard I talked to the day before. She recognized him and made him call me!

I told him to stay put. I’d be there in 30 minutes. When zi got there, he was going back in after smoking a cigarette. We went in together. I asked intake how long he’d been there. He was there for 3 hours before I heard from him. He was exhausted. It was like he was a zombie. He tried to sleep in the chairs and leaned on me to be more comfortable.

The front desk person told me we were waiting on a social worker. I don’t know why they thought he needed one, since they’re typically used to place psych holds and find placement. Since he is conserved and already has placement, we didn’t need a social worker.

Still, I decided to wait. We were there a couple hours longer and I asked again. This time the clerk contacted the head nurse and that nurse sent the doc out to talk with us. He hadn’t realized I was his conservator. When he found out, he decided to discharge my FM to my care. Thank goodness! But they had done no tests. I asked him to run a urine test for drugs because his home would need that before considering taking him back.

Well, he was positive for m**h. No surprise. I was more concerned about fentanyl due to the sketchy area he had been in. Fentanyl was negative. Thank goodness!

He wasn’t symptomatic at this point. He ate lunch and dinner at the ER and was trying to sleep. He told me all he wanted was a shower and his bed. Bless his heart.

So I got him home. He got his shower and bed. I didn’t hear from him for a couple days so I knew he was sleeping and recovering. No news is good news.

His doctor and I had a conversation about his meds. He had been off clozapine for more than 72 hours. After that long, he has to start over at a lower dose. Doctor and I had talked about some med changes. So this situation made it a good time to do so. He’ll be taking zyprexa now. It has worked well in the past. The doctor was planning on reducing the depakote anyway, so I suggested we try to get my FM to agree to lamictal. Lamictal had been a really good med for him but he would only accept depakote since “it’s made by aliens.” I talked to him some about replacing depakote with another med that wont be as sedating. He seems open to it. I hope that happens.

I saw him today. He looks so much better. He sounds good. I can tell he’s still recovering. But so far so good.

I put a hold on ECT for now. We need to manage the med changes first. Wouldn’t it be great if the med changes worked so well he wouldn’t need ECT?

If you’re still with me at this point, thank you. It’s been a rough week or so. I appreciate your support. ❤️

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