Love For Austyn, Amelia, Aubrey, & Addy

Love For Austyn, Amelia, Aubrey, & Addy Adalee(12) Aubrey(9) Amelia(5) and Austyn(4) all have Chiari 1 Malformation and tethered spinal cords

Austyn’s Iron infusion has started. She was so brave getting her IV. Pray for no reactions and an easy day. 💜
07/07/2025

Austyn’s Iron infusion has started. She was so brave getting her IV.
Pray for no reactions and an easy day. 💜

Please say a prayer for Austyn today. She is currently in  her second brain surgery for Chiari Malformation. 💜
02/24/2025

Please say a prayer for Austyn today. She is currently in her second brain surgery for Chiari Malformation. 💜

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01/27/2025

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"Millie is five years old and travels to Cincinnati from West Virginia for appointments & consults along with her four sisters for multiple diagnoses. Millie got to meet Millie, a therapy dog, while staying at RMH Cincinnati. We are forever grateful for RMH (Cincinnati and NYC) and how it has allowed our family to get the medical care our children need that we can’t receive at home." -Paul, guest dad

12/01/2024

The winner of the co****le drawing is Robin Hudson!!!

We went live and we didn’t know that my phone was connected Aubrey’s Bluetooth headphones.

We went live a second time to let everyone who won! It was chaos. 😂😂 I promise Austyn was totally fine she was just upset that he was holding the back of her shirt and flopped to the ground. She likes to do that when she’s mad. 😬😂

Just to recap since there was a screaming kid through half of the second live.

We want to thank everyone who bought a ticket!!! We appreciate everyone’s support so much! The past two years have been a whirlwind but we are so thankful for every single person who’s stepped up to help us.

We also want to thank Andy and Amber March for the custom co****le boards and helping us with this!!! We appreciate you all so much!

💜💙💚❤️

Yesterday was Austyn’s First Day of Preschool. My last baby. 😭😭 I have had a baby home with me for the last 19 years. We...
10/08/2024

Yesterday was Austyn’s First Day of Preschool.

My last baby. 😭😭 I have had a baby home with me for the last 19 years.

We have been fighting for so long to get her into PreK as the next step from Birth to Three that I have been avoiding feeling anything over it besides on a mission to advocate for her and what’s best for her.
Being in this quiet, empty house is hitting me hard. I am sad that she’s not home with me and that this part of our lives is changing, but I am so excited for her. She is going to do amazing and I know she is in the best hands.

The best part is she is in class with her best friend(and sister) Amelia. ❤️

“Kid, you’ll move mountains! Today is your day! Your mountain is waiting. So get on your way!”
- Dr. Seuss

“How lucky am I to have something that makes saying goodbye so hard.” — Winnie the Pooh

We are doing a Co****le Board Raffle to help offset some of the expenses with the girls medical and travel expenses. Win...
08/31/2024

We are doing a Co****le Board Raffle to help offset some of the expenses with the girls medical and travel expenses.

Winner can chose any design they want for the Co****le Boards. We will do the drawing November 30th. Just in time for a nice Christmas gift!!! 🎄🎅🏻

We are so incredibly thankful to Andy N Amber March for offering to help us with this fundraiser!!!

Our girls medical journey seems to keep growing and growing and with the cost of living, we are drowning. We appreciate everyone’s support this far!!!!

Please share this post and if anyone is willing to hang up a flyer or take one to work with them, we can send you a copy for printing or print it for you!!!

You can message Paul Higginbotham or myself with any questions or payment options. There is also the links on the bottom of the flyer to pay by PayPal or Cashapp(just hold down on the barcode and it should pop up)

Make sure you comment on original post or message us so we can make sure we have your name down unless you are paying through PayPal or cashapp link.

We appreciate the support so so much!!!

We are doing a Co****le Board Raffle to help offset some of the expenses with the girls medical and travel expenses. Win...
08/26/2024

We are doing a Co****le Board Raffle to help offset some of the expenses with the girls medical and travel expenses.

Winner can chose any design they want for the Co****le Boards. We will do the drawing November 30th. Just in time for a nice Christmas gift!!! 🎄🎅🏻

We are so incredibly thankful to Andy N Amber March for offering to help us with this fundraiser!!!

Our girls medical journey seems to keep growing and growing and with the cost of living, we are drowning. We appreciate everyone’s support this far!!!!

Please share this post and if anyone is willing to hang up a flyer or take one to work with them, we can send you a copy for printing or print it for you!!!

You can message this page or Paul Higginbotham or Ashlee Taylor-Higginbotham with any questions or payment options. There is also the links on the bottom of the flyer to pay by PayPal or Cashapp!!

We appreciate the support so so much!!!

UPDATE!!! Austyn did well with surgery. They were able to save one molar and put a crown on it. The other one was to far...
08/14/2024

UPDATE!!! Austyn did well with surgery. They were able to save one molar and put a crown on it. The other one was to far gone and had to be removed. We decided to get a hotel for the night in Cincinnati to be close to the hospital in case of any bleeding since she has a bleeding disorder(RMH was full).

Unfortunately, Amelogenesis Imperfecta will affect her baby and adult teeth so this will be a life long journey.

More info on the Ensure Lasting Smiles Act that would require insurances to acknowledge genetic conditions and make things like dental reconstruction surgeries a medically necessary procedure instead of cosmetic.

I had one dentist offer to hold her down in office and pull some of her teeth out before we had a definite diagnosis bc he believed it was bottle rot(it absolutely wasn’t). He also wanted to pull all of her teeth and said she would adapt. Obviously he was no longer her dentist after that first consult.

https://nfed.org/get-involved/advocate/ensuring-lasting-smiles-act/-

Please whisper a prayer for our precious Austyn Delaney! She was just taken back for surgery to remove two teeth and che...
08/13/2024

Please whisper a prayer for our precious Austyn Delaney! She was just taken back for surgery to remove two teeth and check all of her crowns. This makes 8 teeth she has had to have removed, her fourth surgery, and her 8th time under anesthesia.
(Amelogenesis Imperfecta is a horrible condition) 😭

She had to have her IV placed before surgery and she didn’t even flinch. She didn’t make a sound. We were all blown away. She’s one tough girl. Child Life came in and gave her Chiari Bear his own IV and Austyn assisted. They got her bear all cleaned up and a brand new gown put on it. 😊
❤️💜💙💚🦓

This Saturday APRIL 27!!!! Please consider coming out and supporting our girls medical journey(which is far from over). ...
04/23/2024

This Saturday APRIL 27!!!! Please consider coming out and supporting our girls medical journey(which is far from over).

Please share 💜💚💙

Aubrey is having a really bad day. Still tons of pain. Back on IV fluids. She did do 4 steps in Physical Therapy. Everyt...
12/03/2023

Aubrey is having a really bad day. Still tons of pain. Back on IV fluids. She did do 4 steps in Physical Therapy. Everything seems to be ok as far as healing but her pain is bad. She wants to come home so bad. It’s honestly heartbreaking.
Please pray for some pain relief and comfort for her. A lot of tears have been shed today. I pray today is the turning point for her and she wakes up feeling better tomorrow. 😭 💜

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Saint Albans, WV

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