EDS Warriors of Utah

02/25/2024

https://healthcare.utah.edu/press-releases/2024/02/alert-nationwide-pharmacy-network-disruption

A cyber-attack that took place earlier this week has shut down a third-party vendor which manages and authorizes insurance payments for patient prescriptions.

06/09/2020

06/07/2020

Great sale on a rollator (walker). $40, marked down from $190. I know of someone who has this one and us very happy with it.

Drive Medical Aluminum Rollator Walker Fold Up and Removable Back Support, Padded Seat, 6" Wheels, Black

10/23/2019

This new Gene therapy has great potential.

Scientists have developed a new gene-editing technology that could potentially correct up to 89% of genetic defects, including those that cause diseases like sickle cell anemia.

05/04/2019

***Important Announcement***
***Picnic Has Moved!***
Due to a glitch in their new computer system, Riverton Park has been double booked. Riverton City has graciously offered to let us use another park for free!

***The New Location is:***
Dr O. Roi Hardy Park
12400 River Vista Dr.
Riverton, UT, 84065

Silent auction, raffle, speakers, games, light refreshment.

02/22/2019

Taking suggestions for EDS Words of the day.

01/18/2019

01/18/2019

This year's EDS conference is in Nashville, July 30 to August 1. Hope to see you all there!

SAVE THE DATES!EDS Global Learning Conference Nashville July 30 – August 1, 2019Medical Professionals Day August 2, 2019 Registration opening soon!Interested in becoming a conference sponsor? Please see our Sponsor Prospectus and commitment agreement or get in touch with Carissa Hocevar, our deve...

12/16/2018

The Ehlers-Danlos Society is presenting the Global Learning Conference in Madrid, Spain on April 6-7, 2019. Hope to see you all there.

Join us for our first conference in Spain! Health Professionals Day is 6 April 2019; Patient Day is 7 April 2019.

11/09/2018

Another common complication of EDS, albeit one of the more minor ones.

11/07/2018

Thank you for your interest in helping to grow our organization. We appreciate it very much. It takes people like you to make things happen. Please take a moment to tell us a little about how you can help.

11/07/2018

Ehlers-Danlos Syndrome, Dysautonomia, and Mast Cell Activation Disorder = the Trifecta.

11/07/2018

Dysautonomia is a common comorbid condition with EDS.

Dysautonomia is a common comorbid condition with Ehlers-Danlos Syndrome. There are many types. Many Dysautonomia patients have difficulty staying upright.

09/29/2018

EDS Warriors of Utah is a local support group for people with Ehlers-Danlos Syndrome. If you fit into that demographic, feel free to join our Facebook group. We have another group by the name of EDS Utah Patient and Provider Discussion Group, where medical providers can learn more about EDS from the patients.