Moms of Mandibulofacial dysostosis-MFD Baby’s

Moms of Mandibulofacial dysostosis-MFD Baby’s My name is Evelyn I have created this page to meet and chat with others parents on your MDF journey.

12/13/2024

Hi everyone I have a lovely 2 year old boy who was diagnosed with mfd and microtia and currently pending to be evaluated for autism. I have made a few post in a different page to ask questions regarding his condition as I personally don’t know anyone who has mfd and I’m trying to see if anyone else has had a similar experience, as well as did your baby’s have allot of sensory needs, do they look at you when you or anyone talks to them. Me as well as his team are wondering if his sensory needs are just due to his condition or if he may be at risk for autism.

12/01/2024
11/25/2024

Treacher Collins Syndrome

11/21/2024

Has anyone else experienced sensory needs with your baby’s ?

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San Diego, CA

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