Chronically Ry

Chronically Ry HI FRIENDS! I’m Ry and this is my life with Ehlers-Danlos Syndrome :)
(2)

05/28/2026

It’s almost June, which means it’s almost time for one of my favorite events of the year:
United Spinal Association’s Roll on Capitol Hill!

June 23-25, United Spinal Advocates will meet with Congressional members to discuss some of United Spinal’s priority policies on the table that affect the disability community. As a United Spinal advocate and practicing registered nurse, I wanted to take a moment to bring to your attention the three main policies we will be discussing this year!

We would LOVE your help to continue this incredible mission. Head on over to the link in my bio:
https://givebutter.com/ROCH2026
and donate to the ROCH 2026: Advocacy Impact Fund. Every dollar donated assists to amplify voices who deserve to be heard and policies that affect the REAL needs of our community.

[VD: Ry, a femme presenting human, speaks directly to the camera from her living room. She’s wearing bright orange colored scrubs and seated in her wheelchair. Her auburn hair/rainbow streak are pulled back into a low ponytail and her earrings are tiny Medicare cards. Behind her is a fireplace covered in plants and random nicknacks.]

05/28/2026

Just another day in the life of an Acute Care RN Case Manager! 😅🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️
And why, if you ever receive any kind of insurance denial that makes NO sense- you should follow up with your insurance provider ASAP.

05/26/2026

I was watching when this scene in S1E3 (no spoilers here!) gave me IMMEDIATE flashbacks to my own college experience- particularly the one where I broke my foot (in a now viral video with over 250K views- ya weirdos 😅) a few weeks prior to graduation and I 112% bedazzled my boot and got to it. 😂 🩼🎓
—————————————

Class of 2013! Go Dukes! 💛💜
For part 1- check out “How I Broke My Foot” a few videos back. 😅😉

05/19/2026

May peace love and strength be with all who were affected by the tradgedy that occurred yesterday at the Islamic Center of San Diego.

“Darkness cannot drive out darkness. Only light can do that. Hate cannot drive out hate. Only love can do that.” 🕊️❤️🤟🏻

This week was full of new experiences!:• I saw a Clinical Psychiatrist for the first time.• Which meant I got to relive ...
05/17/2026

This week was full of new experiences!:

• I saw a Clinical Psychiatrist for the first time.
• Which meant I got to relive all the major traumas I’ve been through in my life. (LOL 😂)
• I was (re) officially diagnosed with ADHD and Major Depressive Disorder.
• I started trialing medication for my ADHD.
• I came back to the mantra that I adopted the first time tried open water distance swimming: “All Forward Motion Counts.”
Stay tuned for updates as this journey continues. Baby steps my friends ♿️❤️🤟🏻
[VD: Ry, a femme presenting human, takes a selfie on the beach. They’re wearing a tan jumpsuit over a multicolored Dino-print tank. Her wavy reddish brown hair and faded rainbow streaks are swept over one shoulder. She wears a hot pink SD Padres bucket hat and has in larger sized silver rhinestone hoop earrings. She’s smiling at the camera and the beach and palm trees can be seen in the background.]

05/16/2026

HELLO THIS NOT A DRILL!! ♿️

Coworkers, patients, friends that utilize UCSD Hillcrest for care- recently a QR code/survey was placed on all the accessible parking spots at UCSD Hillcrest! Please, I beg you, if you are a UCSD patient or a coworker/friend that gets it- I beg you to utilize the QR at the end of the video and explain the disservice they are doing to their disabled patients and employees by not utilizing their parking situation effectively. (Ya girl loves the new Bachman parking structure, but it’s still 2 blocks from the hospital.)

UCSD Hillcrest has SO many valet spots (that were at one time ADA parking…) that are NEVER filled. They have the money and ability to fix this situation! Fill out the survey and let them know! ❤️♿️❤️

05/15/2026

Mama Ry here to remind you that using a mobility aid is SO far from the worst thing that could happen to you. Mobility aids grant us independence, quality of life, and the ability to live our lives on OUR terms! ♿️☀️
[VD: Ry, a femme presenting human, can be seen speaking directly to the camera from her wheelchair in their backyard. They have their reddish brown hair with rainbow highlights pulled into a messy low bun. She’s wearing a bright blue v-neck tshirt for her partner’s business (Master Mechanics). She’s very animated and talks with her hands- a lot. 😅]

05/13/2026

My college roommate sent me this song to prepare for the next time we’re in the same zip code & can sing together. We call this prep work 😅😂😂😅
🎤: Kassi Ashton

05/11/2026

It’s been a long time coming, but the new Di**os & Dislocations sign is up and better than I imagined thanks to my better half! So before I start recording season 2- here’s a lil intro reel for anyone who’s a new follower. ❤️

I’m so excited to revive D&D! Have a subject relating to sexuality and/or disability? Drop ‘em below! ♿️❤️🏳️‍🌈🏳️‍⚧️
🌈 Rainbow Hair:
♿️: all wheels-
**osAndDislocations

“Cause it’s root, root, root for the PADRES!” 🤎💛⚾️ ♿️ San Diego Padres 📍: Petco Park Stadium- San Diego, CA♿️: Spinergy ...
05/10/2026

“Cause it’s root, root, root for the PADRES!” 🤎💛⚾️ ♿️ San Diego Padres
📍: Petco Park Stadium- San Diego, CA
♿️: Spinergy - Wheelchair Wheels; Motion Composites

Address

PO Box 3380
San Diego, CA
92103

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