Awareness 4 JJ

Awareness 4 JJ By sharing JJ's story we will together increase awareness and educate future potential marrow donors. were blessed with their son Anthony James III (JJ).

Join the Be The Match Registry at: Join.BeTheMatch.org/Awareness4JJ When Danielle Murnin was just 18 months old, she was diagnosed with Severe Chronic Neutropenia and began what she thought would be a life-long battle. Without the neutrophils to fight off infections, she endured countless trips to the hospital until her condition got so severe that a Bone Marrow Transplant was her only hope for su

rvival. Danielle was lucky enough to have a little sister who was a perfect match; after months in the hospital and many checkups, she was officially free from the disease. Danielle was assured that her condition was not hereditary. Fast forward 14 years later Danielle and Anthony Jonasson Jr. JJ at just two days old was diagnosed with Severe Congenital Neutropenia; now Danielle, Anthony, and JJ face a new battle of their own. In hopes of finding a match, they would like to bring awareness to stem cell and bone marrow donation. Matches are based on ancestry and DNA. JJ is Latino/Caucasian and only 4% of donors on the national registry are of mixed heritage. Might you be the CURE someone like JJ is searching for? Join the Registry today at: Join.BeTheMatch.org/Awareness4JJ

Little Miss Luna started her chemo today!! She’s such a champ and is going to you got this girlfriend! 💜💜💜
05/03/2019

Little Miss Luna started her chemo today!! She’s such a champ and is going to you got this girlfriend! 💜💜💜

Our friend Luna is headed into transplant tomorrow!! This strong little warrior has been such an inspiration. She is so ...
04/29/2019

Our friend Luna is headed into transplant tomorrow!! This strong little warrior has been such an inspiration. She is so positive. She’s already shaved her head ❤️ and I know she’s going to handle this whole transplant thing like a champ! Please keep her in your thoughts and prayers through the next few months. She was diagnosed with Neutropenia at just a few days old like JJ and is finally going to be able to live a normal life so soon! 💜💜💜

And just like that, JJ is TWO! We have been living life as a normal boy! JJ is happy, healthy and the absolute strongest...
12/03/2018

And just like that, JJ is TWO! We have been living life as a normal boy! JJ is happy, healthy and the absolute strongest little boy we know! He has been cleared to now only go in to see the doctors at Ucsf every 4 yes 4 months!!! Yayyyy!!! We’ve come a long way from three times a WEEK! He is growing, thriving, and amazes us daily!

Thank you all for your unconditional love and support! ❤️💙❤️💙❤️💙

Hello everyone!!! We are just leaving JJ’s ONE YEAR TRANSPLANT CHECK UP!!! Whatttttt!! JJ is doing absolutely fabulous a...
10/10/2018

Hello everyone!!!

We are just leaving JJ’s ONE YEAR TRANSPLANT CHECK UP!!! Whatttttt!!

JJ is doing absolutely fabulous as we have worked so hard to get him where he is today we are not ready to risk throwing it all away this flu season. Per doctors orders we have to ask our friends and family one more time to please please please get your flu shot this year. Not only to prefect yourself but also JJ.

Thank you again for everyone’s love and support through this crazy journey of ours! ❤️

09/13/2018

One year ago today, prior to surgery!

On this day last year, we were pretty sleepless and had to wake up early to be in the city to take the first big step to...
09/13/2018

On this day last year, we were pretty sleepless and had to wake up early to be in the city to take the first big step towards transplant. JJ got his central line placed and it was the start of our journey... JJ started this week last year with a fresh hair cut, cake pops, the longest baths ever and spending his last evening with his best friend Kenzie ❤️ he handled getting his line placed the next day like a champ and was all smiles again shortly after surgery and we soon learned he would handle everything in the same matter! He may not know it now but I hope one day soon he knows that he is my hero! 💙

Hello everyone!!! As we just celebrated one year since our event for I wanted to follow up with an update. I know I ha...
07/11/2018

Hello everyone!!!

As we just celebrated one year since our event for I wanted to follow up with an update. I know I have totally dropped the ball on updates since being home. Life has been fabulous but oh so crazy busy!

JJ is 19 months now! 😩 where has the time gone!? The last 6 months have been smooth, he was released off isolation just THREE short months post transplant! 😃 he exceeded all of the doctors expectations but of course we were not so surprised but how amazing he had done! He has been off all medications and living a total normal life since March!!!! He’s thriving, growing so fast and is so smart! We couldn’t be more blessed ❤️

He loves camping, boating, eating of course! He loves hanging out with all of his friends and cousins! He is the most happy in the water! He’s talking and full of personality.

The most common question asked is... “what’s next” and we are so lucky to inform people that preschool is next!

As of joining be the match wasn’t easy enough, they have made joining the registry even easier!

All you have to do is:
Pull out your cell phone
Text Cure14 to 61474
Complete online registration
Swab kit will arrive within 3-5 days!!!
SAY WHATTTTT!!!!

That's it! You are on your way to saving being a life-saver! Help us out by joining to be a cure for someone like JJ who’s in need!!!

Thank you for all of your continued love and support and I promise to be better at updates! 😊

01/09/2018

Thank you to each and everyone one of you for the love and support you provided JJ and his parents, Danielle and Anthony in 2017.

Wishing all of you a healthy & happy 2018!

I know that i have totally dropped the ball on updates but this little now ONE year old has had us very very busy! Day 6...
12/08/2017

I know that i have totally dropped the ball on updates but this little now ONE year old has had us very very busy!
Day 64 post transplant
Day 36 AT HOME!!!!

His journey has continued to be smooth, til last week. JJ got a minor rash on his arms and legs. Still not sure what is causing is but we have an appointment to see dermatology on Monday. Counts have been good but did drop as of Wednesday. Which could be related to the skin thing. Great news is, they are saying it’s not GVHD. THANK GODDESS!

JJ celebrated his first birthday Sunday and we are so lucky to have such amazing people in our lives!

Jj continues to amaze us daily, he’s taken his first steps, saying a few more words and is so dang smart trying to take things apart and put them back together. It’s truly amazing to watch him grow.

Mama has returned to work, I’ve learned I’m not cut out to be a stay at home mom lol butttt maybe if we were able to leave the house i could probably be a little better at it 🤪

As the holidays are now here we have learned a new meaning to them. We are so lucky and blessed to have Jj as our boy. Not only did he need us as parents, we needed him! 💙

We thank everyone for your unconditional love and support

12/04/2017

Someone special turned 1 years old yesterday! On behalf of Be The Match we would like to wish JJ (and his parents) and very Happy 1st Birthday. Wishing you a lifetime of continuous smiles, giggles, and lost of love. 🎂🎈🎉

In honor of JJ’s birthday and successful transplant we invite you to leave birthday wishes below and continue to educate those around you about Be a The Match. YOU or someone you know might be The life-saving hero someone like JJ is searching for.

join.bethematch.org/Awareness4JJ




First night home 💙We had a long night but worth every snuggle. We have to break the every 4 hour vitals routygebisnnow o...
11/03/2017

First night home 💙

We had a long night but worth every snuggle. We have to break the every 4 hour vitals routygebisnnow on 😫 this morning we payed down snuggling hard and he passed back out. I can now smell the coffee but can’t do anything about it until the beast wakes again! ❤️❤️

Thank you for all the love and texts, we aren’t outta the woods yet so please keep praying 🙏🏼

11/03/2017

As promised!

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