Gunner’s Journey

02/26/2026

🔥NEW HATS ARE HERE… AND THEY HIT DIFFERENT 🔥

Y’all… these new leather-patched Gunner’s Journey hats made by Texas Laser Works are something special. 🙌🧢

What started as a simple way to keep friends and family updated has turned into a movement powered by faith, love, and an army of people who refuse to let Gunner walk this road alone.

Every hat you see here represents:
✨ Awareness being spread
✨ Prayers being lifted
✨ Hope moving forward

We don’t take a single bit of this support lightly. Truly. God continues to open doors and move through people in ways that humble us daily.

If you wear Gunner’s Journey gear (his merch store is linked in his profile)— know this:

You’re not just wearing a hat, a shirt or a hoodie.
You’re standing in the gap with our boy. We take a LOT of pride in seeing Gunner’s Journey gear being worn . It serves as a reminder of just how fortunate we are despite what’s happening in our lives .

From our family to every single one of you…

Thank you. We see you. We appreciate you. We love you.

And as always —
✝️ God’s got Gunner.

02/20/2026

We want to give a heartfelt thank you 🙏 to Hope Physical Therapy and Mr. Rob for consistently going above and beyond in the care and love they pour into Gunner. What you do is so much more than therapy — it is encouragement, patience, strength, and hope in action.

We truly believe God places the right people in our path at the right time, and Mr. Rob, you have been a blessing to our family. Thank you for the way you show up for Gunner, push him, believe in him, and care for him like he’s your own.

If you or your loved one needs physical therapy, we HIGHLY recommend Hope Physical Therapy. They are the real deal.

Your work matters more than words can express. 💙

God’s got Gunner — and we’re grateful for the hands and hearts He’s using along the way.

02/17/2026

🤞🏼🙏🙌

Skyclarys restored nerve cell health in lab models of Friedreich’s ataxia, improving mitochondrial function and reducing oxidative stress. https://buff.ly/ZlXTnXo

02/16/2026

Gunner’s Journey 💙

We didn’t start this page for clicks — and we don’t post every day.

We started it to share real, meaningful updates with the people who truly care about Gunner.

Because of YOU, we’ve now passed 350 followers, and we are deeply grateful. Every prayer, share, and word of support truly matters.

Thank you for standing with our boy. God is moving.

— The Roth Family

02/13/2026

Craft beer, crawfish and caring???

Yes please!!!

We are thrilled to announce that Roger Creager will be taking the stage at our inaugural Houston St. Jude Crawfish for a Cure event!

A special thank you to our friends at 93Q for helping us secure such an incredible artist for this FUNdraiser for the children and families of St. Jude.

🎟️ Tickets are officially on sale—don’t miss out! Visit stjude.org/houstoncrawfish

02/13/2026

🙏

Biogen is sponsoring a postmarketing (phase 4) clinical study to learn more about the long-term safety of omaveloxolone (also known as BIIB141 or SKYCLARYS) in people with Friedreich’s ataxia who started taking omaveloxolone for the first time within the last 12 months.

Recruiting for the study is open at select sites which are part of the FA Global Clinical Consortium with additional sites to open recruitment in the future.

Participants must have a documented diagnosis of FA confirmed by genetic testing, be 16 years or older, and start taking omaveloxolone for the first time within 12 months of joining the study. Individuals who have previously taken omaveloxolone are not eligible for this study.

More information and eligibility requirements available at https://ow.ly/w40H50XtAbG

Anyone considering participating in a clinical trial should discuss the matter with their physician. FARA does not endorse or recommend any particular studies.

02/11/2026

‼️Breaking News: Rare Pediatric Disease PRV Program Reauthorized by Congress!

After a two-year campaign to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program, the rare disease community’s relentless advocacy has paid off.

Congress has passed the Labor, HHS, and Related Agencies Appropriations bill, effectively reauthorizing the PRV Program for five years while also funding a number of other critical healthcare agencies.

We applaud the reauthorization of the PRV Program and renewed investments in critical health research and public health programs.

Thank you to the congressional champions who have partnered with our rare disease community to secure these advances. While significant work remains to enable all those living with rare diseases to thrive, today’s progress will accelerate innovation, expand access to life-changing therapies, and offer renewed hope to children and families whose futures once seemed beyond reach.

To learn more about the full healthcare package, please visit our website: https://everylifefoundation.org/congress-passes-five-year-reauthorization-of-rare-pediatric-disease-prv-program/

02/11/2026

Before you scroll past, please take a moment to read this entire message — it comes from the very bottom of our hearts.

As you know, February 8th has officially been recognized as Friedreich’s Ataxia Day in Texas, in honor of Gunner.

On a day that holds such deep meaning for our family, it felt only fitting to pair Gunner’s proclamation with another powerful symbol of this great state. The Texas flag shown here proudly flew over The Alamo — a place that represents sacrifice, perseverance, and standing firm in the face of overwhelming odds. The symbolism in all of this is not lost on us.

We cannot say thank you enough.

Many of you may not realize the difference you’re making. You might think that following Gunner’s page, sharing a post, praying for him, or purchasing a piece of his “merch” is something small — but we promise you, it is not. Because of you, Gunner is known far beyond his family, his doctors, or his hometown.

Gunner’s Journey is now present in Texas, California, Alabama, Tennessee, and many other places. His story is being worn and shared by family, friends, teachers, healthcare providers, professional athletes, members of the Governor’s office, and countless others whose lives have been touched by Gunner and his journey.

That doesn’t happen by chance.
That happens because God moves through people.

So to you — thank you for showing up. Thank you for caring. Thank you for standing with our family. Thank you for being part of Gunner’s story. And above all, thank You to God, and to our Lord and Savior Jesus Christ, for carrying us, strengthening us, and placing the right people in our lives at exactly the right time.

While our ultimate prayer is for a cure for Gunner, our hearts are also set on a greater purpose. No matter what the future holds, we want his story to bring awareness to rare diseases and to offer hope to families who may feel unseen or alone in their hardest moments.

We are humbled.
We are grateful.
And we are forever thankful — to God and to each of you.

All glory to Him. 🙏💙

02/10/2026

02/10/2026

Some of it’s good , some of it’s not but every last bit of it is

02/10/2026

We had another successful trip to the Peabody Hotel, Memphis , Tenn to see the the famous Duck March and Duck Master. We were able to tell him how his encouraging words helped us in our fight and Journey. We also met the sweetest young lady with the sweetest accent and her precious Mama!!! Destin Sims your angel is amazing and from the short visit with y’all we ADORE her! Here’s a couple of photos we got! ❤️

11/10/2025

Gunner got to meet and spend a little time with an amazing group of guys! Thank you Dustin Ringuet for setting this up for him!