Ordinary Mutants

28/04/2024

I've said this for years...

03/11/2023

It's 22q Awareness Month! Stay tuned for info throughout the next few weeks!

03/11/2023

I haven't posted on my blog in a while, but tonight I just had to share a sensory win! It may be small, but it's huge for us.

www.ordinarymutants.com/blog/learning-advocacy

Today marks a big step for Moose… Tonight Moose was supposed to go with his church youth group to a guys-only evening of Lazer Tag, Pizza, and fun. It’s been on the books for a few weeks now and I had heard grumblings of him not wanting to go, but I figured it was just that he didn’t want to l...

17/09/2023

Sharing the annual lighting of Niagra Falls purple for Chiari Awareness

22/07/2023

Do you have a custom shirt idea that you'd like to bring to life? Team shirts? Personalized school clothes? Baby onesies?
Message me!
Our kids have multiple activities this summer that we are raising funds for. We would love to work with you!

14/06/2023

Niagara Falls will be illuminating purple on Saturday September 16th 2023 in honor of Chiari Malformation Awareness Month! The falls will illuminate purple from 10:00 - 10:15 PM Eastern Standard Time. You can watch them live here; https://www.niagarafallslive.com/

A huge thank you to Haley and her mom Agnes Marie(Starr) for working diligently to make this happen each year.

We would also like to thank the Niagara Falls Illumination Board for their continued support to our mission

22/05/2023

I'm super late posting, but HAPPY WORLD-WIDE 22Q AWARENESS DAY!
We missed the Seattle 22q At The Zoo meetup but enjoyed the Zoo none the less!

15/05/2023

I have a confession, today went nothing like I expected. The plan I had in my head last night was that I was going to wake up early and get the kids all picture perfect before church so we could take a picture at the Mother’s Day photo booth our church was going to have set up. I knew it was a sli

09/05/2023

This is so relatable

Audio processing disorder is just like "you are going to be able to differentiate 27 distinct sounds happening simultaneously EXCEPT for when someone's talking to you. Good luck"

People think because my ears are so unreasonably sensitive I must also be able to
"hear" them. This is false. I can hear the clock ticking though.

One time I was watching Avatar with my friends with headphones and I heard my dad open a can downstairs.
I still can't tell what people say to me if more than one person is talking.