MPS Cure Hunter

MPS Cure Hunter Wesley was diagnosed with a terminal illness called Hunter Syndrome when he was 19 months.

We will post updates on him and also his unfortunate current situation with being denied for Medicaid and Care. ๏ฟฝ

Happy Memorial Day Weekend! โค๏ธ๐Ÿ’™We will be relaxing and then infusing on Monday. We have more spots to fill for Wesley's ...
05/23/2026

Happy Memorial Day Weekend! โค๏ธ๐Ÿ’™

We will be relaxing and then infusing on Monday.

We have more spots to fill for Wesley's second ever fundraiser!

A fun night out (or in) on Saturday June 27th at 6pm! Join us at Wesley's home or virtually from wherever you want and chat with us via zoom.

This could be such a fun friends get together event that you could have at your home. For an incredible cause. Project Alive

๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

Cost: $50 per person

In person includes:
Bookish arrangement supplies, snacks, drinks, and a fun evening at our home.

Virtual includes:
Bookish arrangement supplies shipped to you, a snack bag, artwork from Wesley, and a fun evening of conversation via Zoom.

We will also be having a 50/50 raffle during the event! ๐ŸŽŸ

Spots are limited, so be sure to grab yours!

Venmo: MPS Cure Hunter
Zelle: Please message me

Last day of developmental PreK! Let's be honest, I am emotional. You have progressed so much these last 2 years. I conti...
05/22/2026

Last day of developmental PreK!

Let's be honest, I am emotional. You have progressed so much these last 2 years.

I continue to be blown away by how intelligent and kind you are.

I want to keep watching you grow up and learn new things. I want to continue to see you make new friends. I want so much for you.

But mostly, I just want you to be pain free, happy and present. And you are. And that is all my Mama heart wants for this next year. I know you will continue to be amazing.

I love you more than I could ever say. ๐Ÿ’œ

HAPPY THURSDAY! We still have spots available, join Wesley for an awesome cause and a fun night next month. ๐Ÿ’œJoin us for...
05/21/2026

HAPPY THURSDAY!

We still have spots available, join Wesley for an awesome cause and a fun night next month. ๐Ÿ’œ

Join us for a fundraiser on Saturday, June 27th at 6 PM where weโ€™ll be making bookish arrangements together.

Not local to Indy? No problem! Weโ€™ll ship the supplies you need and have Zoom set up so you can still join the fun and conversation.

All donations will go to Project Alive to help find a cure for Hunter Syndrome.

Cost: $50 per person

In person includes:
Bookish arrangement supplies, snacks, drinks, and a fun evening at our home.

Virtual includes:
Bookish arrangement supplies shipped to you, a snack bag, artwork from Wesley, and a fun evening of conversation via Zoom.

Spots are limited, so be sure to grab yours!

Venmo: MPS Cure Hunter
Zelle: Please message me

05/15/2026

Thank you Tendercare Home Health Services, Inc. for helping us spread awareness today. ๐Ÿ’œ

Today is the day!!! ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œInternational MPS Awareness Day.We invite you to join Wesley in celebrating todayโ€”dancing, sharin...
05/15/2026

Today is the day!!! ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

International MPS Awareness Day.

We invite you to join Wesley in celebrating todayโ€”dancing, sharing, and helping us raise awareness in anyway you would like.

Every post, every conversation, every moment of visibility helps shine a brighter light on MPS and Wesley.

Please talk about Wesley and Hunter Syndrome today. Please share our post on you social media. Please donate to help us find a cure for our kids.

Text: BOOGIE4MPS to 44834 ๐Ÿฅฐ๐Ÿ’œ

Infusion day- Boogie 4 MPS style. I got my sweatshirt from the National MPS Society and I LOVE it! Get yours before they...
05/14/2026

Infusion day- Boogie 4 MPS style.

I got my sweatshirt from the National MPS Society and I LOVE it! Get yours before they are gone.

If you haven't showed us your dance moves for awareness- please consider donating instead!

TEXT: BOOGIE4MPS to 44834 ๐Ÿ’œ

05/12/2026

Boogie 4 MPS!! ๐Ÿ’œ

Wesley's Nee Nee and her entire office take on the challenge. Can you?!

International MPS Awareness Day is just 3 days away.

If you are too shy to dance; please consider donating to the National MPS Society instead. Nothing is too small for rare diseases.

Just text: BOOGIE4MPS to 44834

05/11/2026

It is officially MPS Awareness Week!

Boogie 4 MPS and share on social media. ๐Ÿ˜

Tell a new friend about Wesley and Hunter Syndrome.

We need to raise awareness.

We need a cure.

If you are shy and don't want to show off your dance moves; that's ok. We aren't all as talented as Wesley. ๐Ÿฅฐ

Please consider donating to the National MPS Society instead.

It ia super easy: just text BOOGIE4MPS to 44834

๐Ÿ’œ

05/11/2026

Boogie 4 MPS! ๐Ÿ’œ

We love Wesley's nurse more than words. Thank you for showing up and dancing!

You never let us down. ๐Ÿฅฐ

CURE HUNTER SYNDROME!!

05/10/2026

SO CLOSE TO MAY 15TH WHICH IS MPS AWARENESS DAY!

Wesley is nominating new dancers. He wants you to show him your best moves and share for awareness. Please tag us!

Briana Dulworth Ashlie January Emily Sargent Jean Anna Courtney Langowski

We are counting on you five!! ๐Ÿฅฐ

Boogie for MPS! ๐Ÿ’œ

Address

Sheridan, IN

Telephone

+13132659770

Website

https://www.gofundme.com/f/give-wesley-the-medical-care-he-deserves

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