Recovery from Spinal Cord Injury

Recovery from Spinal Cord Injury Spinal cord injury counselor
Our goal is to provide emotional and practical support for individuals with spinal cord injury.

05/10/2025
The University from China that did the trial with BSI says this:
04/03/2025

The University from China that did the trial with BSI says this:

03/30/2025

Hello there
I want to discuss another topic that may be helpful
Why people are getting so many UTI’s with suprapubic Catheters ?
Let me tell you something
Because the body is not balanced
How do you balance your body ?
1. Eating plenty of fruits and vegetables
2. Fixing your gut
3. Taking supplements that help the bladder to be healthy
4. Using the right type of catheter for your body
5. Using a lubricant which contains also lidocaine and an antiseptic

Let’s talk more about these :
1. A balanced diet will nourish your body .
Good plant & animal protein, combined with fibers. Having fruits is also very helpful . Forget about sugar and processed foods. Do your research about a healthy diet.
2. Fix your gut with the right supplements according to your issues . For example, my husband is taking marshmallow root, slippery elm root , vitamin C and zinc, folic acid and Vitamin B12 , glutamine , dandelion root and probiotics .
3. What we found out it’s very helpful for bladder health is glutamine , glucosamine, turmeric , and a supplement that has a combination of vitamins plus hyaluronic acid
4. We are using a latex with silver coating catheter which made a big difference .
5 . Also , we are using a special lubricant which has lidocaine and chlorexidine , helping with infection control .
If you have any questions about these, feel free to dm me .

God bless you all

03/26/2025

Here you have a Sample of Weekly Physical Therapy Program for quadriplegics

Duration: 1-2 hours daily, split into morning and afternoon sessions if possible.Setting: Home or rehab facility with therapist supervision.Goals: Maintain joint mobility, reduce spasticity, improve circulation, and stimulate neural pathways.

Monday: Upper Body Focus

• Passive Range of Motion (PROM):
• Shoulder flexion/extension, abduction/adduction (10 reps each, 2 sets).
• Elbow flexion/extension (10 reps, 2 sets).
• Wrist and finger stretching (5-10 seconds per position).
• Active-Assisted Exercise (if applicable):
• Shoulder shrugs or arm raises with therapist assistance (10 reps).
• FES (if available):
• Apply to biceps or deltoids for 20 minutes to stimulate muscle contraction.
• Stretch: Chest and shoulder stretches to prevent contractures (5-10 minutes).

Tuesday: Lower Body Focus

• PROM:
• Hip flexion/extension, abduction/adduction (10 reps each, 2 sets).
• Knee flexion/extension (10 reps, 2 sets).
• Ankle dorsiflexion/plantarflexion (10 reps, 2 sets).
• Positioning:
• Tilt table or standing frame for 15-30 minutes to promote circulation and weight-bearing (if tolerated).
• FES:
• Apply to quadriceps or calves for 20 minutes.

Wednesday: Core and Spasticity Management

• PROM:
• Trunk rotation and lateral bends (10 reps each, assisted).
• Spasticity Reduction:
• Slow, sustained stretches of spastic muscles (e.g., biceps, hamstrings) for 20-30 seconds each.
• Warm compresses or hydrotherapy (if accessible) for 15 minutes.
• Breathing Exercises:
• Deep diaphragmatic breathing (10 reps, 2 sets) to strengthen respiratory muscles.

Thursday: Functional Training

• Task-Specific Practice (if partial arm movement exists):
• Assisted reaching or grasping with adaptive tools (10-15 minutes).
• PROM: Repeat upper and lower body movements from Monday/Tuesday.
• FES or Robotic Therapy:
• Use on arms or legs to simulate functional movements (e.g., cycling motion, 20 minutes).

Friday: Mixed Mobility and Circulation

• PROM: Full-body routine (upper and lower, 10 reps each).
• Standing Frame or Tilt Table: 20-30 minutes.
• Massage Therapy: Light massage to arms and legs (10-15 minutes) to boost circulation.
• FES: Alternate muscle groups from earlier in the week.

Saturday: Neuroplasticity Focus

• Repetitive Movement Training:
• If any voluntary movement exists (e.g., C6-C7 injury), practice repetitive motions like wrist flexion or shoulder rolls (10-15 reps, 3 sets).
• Mirror Therapy (if applicable):
• For upper limbs, use a mirror to trick the brain into perceiving movement (10 minutes).
• PROM: Light full-body routine.

Sunday: Rest and Recovery

• Light PROM: 5 reps of each major joint movement to maintain mobility.
• Positioning: Adjust posture (e.g., side-lying, sitting) to avoid pressure sores.
• Relaxation: Breathing exercises or guided meditation (10 minutes)

Great news
03/21/2025

Great news

A patient paralyzed for two years due to a spinal cord injury regained ability to stand and walk independently after undergoing a groundbreaking surgery, HuaShan Hospital Fudan University announced on March 3.The patient is the world’s first total paraplegia to restore walking ability through mini...

The future is here This  is the beginning of a new era For Spinal cord injury !“HUGE and amazing medical breakthroughPat...
03/21/2025

The future is here
This is the beginning of a new era For Spinal cord injury !

“HUGE and amazing medical breakthrough
Patients with spinal cord injuries have been offered the chance to walk again after the success of a Chinese trial.
The paralysis caused by spinal cord injuries has long been considered irreversible.
"In a clinical trial led by Shanghai's Fudan University, four paralysed patients regained control of their legs within 24 hours of a minimally invasive surgery."
"The Chinese team's advance was made possible by implanting electrode chips in the brain and spinal cord to create a bridge or
'neural bypass' - thus reconnecting the body's own pathways."
"China's brain-spinal interface reignites dormant nerves, sparking what researchers call
'neural remodelling' — a rewiring of the nervous system that could ultimately free patients from devices altogether”

Source :

https://x.com/dr_singularity/status/1902709208270643379?s=46&t=nBWEjPZvstNN2Igb37FTbA

03/17/2025

USE OF OPIOIDS
I am writing this post in the idea to check your gut health because that may be the reason of your nerve pain.
I wish I knew it before .

I am a true believer that opioids are causing more bad than good .
Also I believe that “chronic” pain post spinal cord injury is a cause of inflammation .
My husband was diagnosted with chronic pain that was impossible to treat. He had all the existent opioids and those messed up his entire system (Oxycodone, hydrocodone, even dilaudid and morphine)
He was screaming because of pain. No uti, no constipation, nothing that could cause this pain.
Finally after 72 days, we were discharged with the same level of pain because he was clinically stable.
It took us some time to find out that he had opioids induced ileus and small intestine bacterial overgrowth because of antibiotics .
We treated the gut and the pain dissapeared but it was a process to treat the gut . Healthy food, probiotics and other supplements.
Gut is extremely important for the entire system and it’s very known that gut issues can cause muscular and joint pain even for normal people.
My Advice is- check the microbiome for SIBO, SIFO , candida overgrowth, low enzymes, adopt a healthy lifestyle.
With a healthy gut I believe most of the pain will dissapear. I wish the people know this in time to avoid over medication.
If there is some nerve pain, lyrica may be a better alternative, also medical cannabis .

PS: I forgot to mention he had terrible withdrawal symptoms for 4 weeks after 1 year of opioids.
God bless you all!

Thought of the day You have to be very very strong to deal with spinal cord injury
03/16/2025

Thought of the day
You have to be very very strong to deal with spinal cord injury

01/18/2025

“When something is important enough, you do it even when the odds are not in your favor”

Hi there I just wanted to create a short post about constipation If you think you are constipated:You might have lack of...
01/04/2025

Hi there
I just wanted to create a short post about constipation
If you think you are constipated:

You might have lack of motility that’s caused by an overgrowth of (bad) bacterias there in the intestines .

What is motility?

Intestinal motility is the term for the contractions and relaxations of the muscles in the small and large intestines that move food through the digestive tract. The coordinated movements of these muscles are called peristalsis.

Please, see a good GI doctor or a naturopath and ask him to test you for SIBO. Any dysbiosis in the intestine can cause decreased motility .

Also , for constipation you can try :

A high fiber diet , also based on liquids and soups

Dulcolax suppositories every time at bowel regimen

Ginger capsules
Artichoke capsules
Increased fiber like Metamucil
5-HTP amino acid
L-Carnitine
L-glutamine

You can find all of them on Amazon!
They have some products with good reviews and not too expensive :

https://a.co/d/20vWGN0

https://a.co/d/d0JFZpU

https://a.co/d/eqn0jdi

https://a.co/d/b0sEn9T

https://a.co/d/asSHsJ2

The doctor can prescribe you a short course of metoclopramide or low doses of erythromycin for MOTILITY.
Ask him about what I said- the possibility to have a dysbiosis in the intestines , to cause decreased motility!

Promotes GI Comfort* Cardiovascular Function* Ginger root (Zingiber officinale) has been used since antiquity to support digestive function and ginger's historical applications have been validated by modern research.* Scientific studies have demonstrated that ginger may help to maintain healthy G...

Reccurent UTII am writing this post because a lot of people are asking about it If you have a catheter , you probably ha...
11/30/2024

Reccurent UTI

I am writing this post because a lot of people are asking about it

If you have a catheter , you probably have more inflammation than UTI

Anyway , These supplements are what we are currently using to control UTI and help with the inflammation

1. glutamine / glucosamine - these are protecting the bladder walls from damage (can be any brand)

2. URINARI-X a combination of cranberry and other plants to help flushing the bacterias and protect the bladder

3. vitamin c- increased urine PH and bacterias don’t like to live there

3. Wound- vite - this has also Vit. C and a combination of vitamins and plants that are helping with the recovery of the body , especially with inflammation

❣️ don’t take wound-vite and C vitamin together , because the first one already has Vitamin C

3. Oregano oil / leaf
Oregano oil is stronger so it will be taken for 4-6 weeks - better ask your provider about it
Oregano leaf - can be taken for several months

Below you have the brands we are using :
Please ask your provider before staring any supplement!

God bless you!

11/18/2024

CORRELATION BETWEEN CONSTIPATION- NERVE PAIN- AUTONOMIC DYSREFLEXIA

If you are one of the “lucky” spinal cord survivors who deals with nerve pain, this post is for you.
From our experience , nerve pain can very easily come from constipation .
But what causes constipation?
In terms of spinal cord injury, constipation can be caused by several reasons like -
Doctors are saying - nerve related issues - the muscles of the intestines are not working properly but many times they don’t dig deep enough and constipation has causes easier to treat like:

1. Electrolyte imbalance
Too high electrolytes:
Sodium: Hypernatremia.
Potassium: Hyperkalemia.
Calcium: Hypercalcemia.
Chloride: Hyperchloremia.
Magnesium: Hypermagnesemia.
Phosphate: Hyperphosphatemia.
Bicarbonate: Alkalosis (low alkaline base).

Too low electrolytes:
Sodium: Hyponatremia.
Potassium: Hypokalemia.
Calcium: Hypocalcemia.
Chloride: Hypochloremia.
Magnesium: Hypomagnesemia.
Phosphate: Hypophosphatemia.
Bicarbonate: Acidosis (high acid levels).

I am writing the names maybe you want to do some research -
For example- you will find out that hypoalkemia and hypomagnesemia is causing very often spasms and constipation

2. Gut Microbiome imbalance - especially after antibiotics
3.Not drinking enough water
4. Not eating enough fiber

From our experience and I think It happens to a lot of paralysed people and it’s hard to have a right diagnosis- we dealed with antibiotic induced lack of intestinal motility.

So , the antibiotic is killing the good bacterias and the bad ones are coming from the large intestine to the small intestine - causing SMALL INTESTINE BACTERIAL OVERGROWTH.

This is pretty ugly even for healthy people , but for my husband was a nightmare, causing him a lot of nerve pain. He was completely healthy and screaming because of pain. Doctors diagnosed him with CHRONIC NERVE PAIN.
But it wasn’t chronic nerve pain, it was just SIBO.
The good part is - this is highly treatable , the bad part is - FDA doesn’t consider it an ilness so they don’t approve treatments for SIBO. But a good gastroenterologist or naturopath can help you.
It can be treated even naturally, i will write a post about it later .

This SIBO is causing the lack of motility, malabsorbtion , and even ILEUS.

Ileus = Inability of the intestine (bowel) to contract normally and move waste out of the body.
So a part of the intestine doesn’t move .
This is very very painful and it can produce also intestinal obstruction.

Of course, all this story with CONSTIPATION and SIBO is also causing autonomic dysreflexia for people with higher spinal cord injuries.

So, people with spinal cord injury dealing constipation, test yourself for SIBO ! It’s highly possible to develop it after a course of antibiotics and it can cause you secondary health issues .

Don’t let your doctor to say it’s nerve related and you have nothing to do than to accept it.

Good luck, my spinal cord injury friends ❤️

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