Recovery from Spinal Cord Injury

11/22/2025

🌿 Struggling with constipation? The REAL fix starts in your gut!

Before reaching for laxatives, you need to heal your gut flora first – that’s the foundation. A healthy microbiome = regular, effortless bowel movements.

Here’s exactly what I recommend (and what works wonders for my clients):

✅ Psyllium husk – but ONLY with plenty of water! (at least 2-3 glasses per husk serving)
✅ Magnesium citrate – the most effective form for gentle relief
✅ High-quality probiotics (look for multiple strains + prebiotics)
✅ Glutamine – heals the intestinal lining and supports regularity

Food is your best medicine:
Base your diet on fruits & vegetables

Best choices: berries (small amounts), bananas (not overripe, 1 small at a time), sweet potatoes, zucchini, broccoli, green beans

Quality protein: chicken, fish, grass-fed beef
Magic tea blend: fennel + anise + caraway seeds

✅ Real fermented foods: homemade or good-quality sauerkraut (raw, unpasteurized) + full-fat Greek or natural yogurt from grass-fed milk – these are pure probiotic gold!

🚫 Avoid at all costs: processed meats (salami, sausages, deli meats) – they destroy your gut flora and make constipation worse.
Heal the gut → fix constipation for good.

It’s not about forcing things out; it’s about creating a gut that works naturally again.
Who’s ready to finally feel light and regular again? Drop a 💩 below if you’re committed to healing your gut!

05/10/2025

04/03/2025

The University from China that did the trial with BSI says this:

03/30/2025

Hello beautiful community ❤️
I want to talk about something that worries many of you:
Why do so many people with suprapubic catheters keep getting recurrent UTIs?
After years of trial and error (especially with my husband), we finally understood the real reason:
The body is out of balance – and a catheter alone will never fix that.
Here are the 5 things that truly changed everything for us and dramatically reduced infections:
1️⃣ Feed your body properly
A diet rich in vegetables, fruits, high-quality protein (chicken, fish, eggs, grass-fed meat), and fiber is essential. Say a big NO to sugar, ultra-processed foods, and junk – they feed bad bacteria and inflammation.

2️⃣ Heal your gut – this is NON-NEGOTIABLE
A healthy gut = a strong immune system = fewer infections.
My husband’s daily gut-healing protocol:
• Marshmallow root & slippery elm (soothe and repair the whole digestive tract)
• Glutamine (repairs intestinal lining)
• Dandelion root (natural diuretic & liver support)
• High-quality probiotics
• Vitamin C, zinc, folic acid, and B12

3️⃣ Support your bladder directly
The supplements that made the biggest difference for bladder health and tissue repair:
• Glutamine
• Glucosamine
• Turmeric (with black pepper)
• A multi-vitamin complex with hyaluronic acid (helps rebuild the protective bladder lining)

4️⃣ Choose the right catheter
Switching to a latex catheter with silver coating was a game-changer for us. The silver has natural antibacterial properties and dramatically lowered infection rates.

5️⃣ Use the best lubricant possible
We only use a sterile lubricant that contains both lidocaine (for comfort) and chlorhexidine (powerful antiseptic). It creates an extra protective barrier every time the catheter is changed.

When we combined ALL of these steps, the recurrent UTIs disappeared.
It’s not just about treating infections when they happen – it’s about creating a body that doesn’t allow them to take hold in the first place.
If you’re struggling with the same issue and want more details about doses, brands we trust, or how to start, my DMs are always open. You’re not alone in this.
Sending you all love and healing ❤️
God bless you! 🙏

03/26/2025

Here you have a Sample of Weekly Physical Therapy Program for quadriplegics

Duration: 1-2 hours daily, split into morning and afternoon sessions if possible.Setting: Home or rehab facility with therapist supervision.Goals: Maintain joint mobility, reduce spasticity, improve circulation, and stimulate neural pathways.

Monday: Upper Body Focus

• Passive Range of Motion (PROM):
• Shoulder flexion/extension, abduction/adduction (10 reps each, 2 sets).
• Elbow flexion/extension (10 reps, 2 sets).
• Wrist and finger stretching (5-10 seconds per position).
• Active-Assisted Exercise (if applicable):
• Shoulder shrugs or arm raises with therapist assistance (10 reps).
• FES (if available):
• Apply to biceps or deltoids for 20 minutes to stimulate muscle contraction.
• Stretch: Chest and shoulder stretches to prevent contractures (5-10 minutes).

Tuesday: Lower Body Focus

• PROM:
• Hip flexion/extension, abduction/adduction (10 reps each, 2 sets).
• Knee flexion/extension (10 reps, 2 sets).
• Ankle dorsiflexion/plantarflexion (10 reps, 2 sets).
• Positioning:
• Tilt table or standing frame for 15-30 minutes to promote circulation and weight-bearing (if tolerated).
• FES:
• Apply to quadriceps or calves for 20 minutes.

Wednesday: Core and Spasticity Management

• PROM:
• Trunk rotation and lateral bends (10 reps each, assisted).
• Spasticity Reduction:
• Slow, sustained stretches of spastic muscles (e.g., biceps, hamstrings) for 20-30 seconds each.
• Warm compresses or hydrotherapy (if accessible) for 15 minutes.
• Breathing Exercises:
• Deep diaphragmatic breathing (10 reps, 2 sets) to strengthen respiratory muscles.

Thursday: Functional Training

• Task-Specific Practice (if partial arm movement exists):
• Assisted reaching or grasping with adaptive tools (10-15 minutes).
• PROM: Repeat upper and lower body movements from Monday/Tuesday.
• FES or Robotic Therapy:
• Use on arms or legs to simulate functional movements (e.g., cycling motion, 20 minutes).

Friday: Mixed Mobility and Circulation

• PROM: Full-body routine (upper and lower, 10 reps each).
• Standing Frame or Tilt Table: 20-30 minutes.
• Massage Therapy: Light massage to arms and legs (10-15 minutes) to boost circulation.
• FES: Alternate muscle groups from earlier in the week.

Saturday: Neuroplasticity Focus

• Repetitive Movement Training:
• If any voluntary movement exists (e.g., C6-C7 injury), practice repetitive motions like wrist flexion or shoulder rolls (10-15 reps, 3 sets).
• Mirror Therapy (if applicable):
• For upper limbs, use a mirror to trick the brain into perceiving movement (10 minutes).
• PROM: Light full-body routine.

Sunday: Rest and Recovery

• Light PROM: 5 reps of each major joint movement to maintain mobility.
• Positioning: Adjust posture (e.g., side-lying, sitting) to avoid pressure sores.
• Relaxation: Breathing exercises or guided meditation (10 minutes)

03/21/2025

Great news

A patient paralyzed for two years due to a spinal cord injury regained ability to stand and walk independently after undergoing a groundbreaking surgery, HuaShan Hospital Fudan University announced on March 3.The patient is the world’s first total paraplegia to restore walking ability through mini...

03/21/2025

The future is here
This is the beginning of a new era For Spinal cord injury !

“HUGE and amazing medical breakthrough
Patients with spinal cord injuries have been offered the chance to walk again after the success of a Chinese trial.
The paralysis caused by spinal cord injuries has long been considered irreversible.
"In a clinical trial led by Shanghai's Fudan University, four paralysed patients regained control of their legs within 24 hours of a minimally invasive surgery."
"The Chinese team's advance was made possible by implanting electrode chips in the brain and spinal cord to create a bridge or
'neural bypass' - thus reconnecting the body's own pathways."
"China's brain-spinal interface reignites dormant nerves, sparking what researchers call
'neural remodelling' — a rewiring of the nervous system that could ultimately free patients from devices altogether”

Source :

https://x.com/dr_singularity/status/1902709208270643379?s=46&t=nBWEjPZvstNN2Igb37FTbA

03/17/2025

A HARD TRUTH ABOUT OPIOIDS & “CHRONIC” NERVE PAIN

(I wish someone had told us this years ago)
If you or your loved one are suffering from severe nerve pain after a spinal cord injury (or any injury) and doctors keep pushing stronger and stronger opioids… please read this.

What they call “chronic untreatable pain” is very often NOT coming from the nerves alone.

It’s coming from a destroyed gut and massive inflammation.

My husband was labeled with “intractable chronic neuropathic pain”.

He was on Oxycodone, Hydrocodone, Dilaudid, Fentanyl patches, even Morphine… nothing helped.

He was literally screaming in pain 24/7 – no UTI, no constipation, no obvious trigger.
After 72 agonizing days in hospital they sent us home “clinically stable”… with the exact same level of pain.

Then we discovered the truth:
Years of opioids + rounds of antibiotics had caused

→ Opioid-induced ileus
→ Severe SIBO (small intestinal bacterial overgrowth)
→ Total gut dysbiosis and systemic inflammation

That “neuropathic” pain? A huge part of it was coming from his gut screaming for help.

Once we started healing his microbiome (real food, targeted probiotics, glutamine, marshmallow root, SIBO protocols, antifungals when needed), the pain started melting away. It wasn’t instant – healing a destroyed gut takes time – but week after week the screaming stopped, the burning calmed, and he got his life back.

Science now shows what we lived:
An inflamed, leaky, overgrown gut sends pain signals that feel exactly like nerve pain – even in able-bodied people!

My message to every warrior fighting “chronic” pain:

Before you accept a lifetime of opioids (or believe the pain is “impossible” to treat), PLEASE check your gut:

• Test for SIBO, SIFO, Candida overgrowth
• Check pancreatic enzymes and stomach acid levels
• Heal the gut lining and repopulate good bacteria

A healthy gut calms the nervous system and turns down inflammation like nothing else.

P.S. When we finally got him off opioids after more than a year of daily use, he went through 4 weeks of pure hell – withdrawal was brutal. Nobody warned us.

There ARE better options for real nerve pain when needed (Lyrica/pregabalin for some people, medical cannabis for many others), but please… don’t let opioids destroy your gut before you’ve even tried healing it.

You deserve to know the truth.
Your pain might not be as “permanent” as they say.
Sending all of you so much love and hope on this journey
God bless you ❤️

03/16/2025

Thought of the day
You have to be very very strong to deal with spinal cord injury

01/18/2025

“When something is important enough, you do it even when the odds are not in your favor”

01/04/2025

Hi there
I just wanted to create a short post about constipation
If you think you are constipated:

You might have lack of motility that’s caused by an overgrowth of (bad) bacterias there in the intestines .

What is motility?

Intestinal motility is the term for the contractions and relaxations of the muscles in the small and large intestines that move food through the digestive tract. The coordinated movements of these muscles are called peristalsis.

Please, see a good GI doctor or a naturopath and ask him to test you for SIBO. Any dysbiosis in the intestine can cause decreased motility .

Also , for constipation you can try :

A high fiber diet , also based on liquids and soups

Dulcolax suppositories every time at bowel regimen

Ginger capsules
Artichoke capsules
Increased fiber like Metamucil
5-HTP amino acid
L-Carnitine
L-glutamine

You can find all of them on Amazon!
They have some products with good reviews and not too expensive :

https://a.co/d/20vWGN0

https://a.co/d/d0JFZpU

https://a.co/d/eqn0jdi

https://a.co/d/b0sEn9T

https://a.co/d/asSHsJ2

The doctor can prescribe you a short course of metoclopramide or low doses of erythromycin for MOTILITY.
Ask him about what I said- the possibility to have a dysbiosis in the intestines , to cause decreased motility!

Promotes GI Comfort* Cardiovascular Function* Ginger root (Zingiber officinale) has been used since antiquity to support digestive function and ginger's historical applications have been validated by modern research.* Scientific studies have demonstrated that ginger may help to maintain healthy G...

11/30/2024

RECURRENT UTIs & CATHETERS – What Actually Helped Us Stop the Cycle
So many of you keep asking: “Why do I get UTI after UTI even with a catheter?”

The truth we learned the hard way: most of the time it’s not a full-blown infection… it’s massive inflammation that feels exactly the same (burning, urgency, spasms).

Here’s the exact supplement protocol we use now that finally keeps things under control (infections are rare and inflammation is way down):

1️⃣ Glutamine + Glucosamine
These two rebuild and protect the bladder lining so bacteria have nothing to stick to. Any good brand works.

2️⃣ Urinari-X (by Nature’s Life)
Powerful blend of cranberry, D-mannose, uva ursi and other herbs that help flush bacteria and calm the urinary tract.

3️⃣ Vitamin C (buffered or liposomal)
Makes urine more acidic – most bad bacteria hate that environment.

4️⃣ Wound-Vite (by LifeSeasons)
Amazing all-in-one with extra Vitamin C, zinc, turmeric, bromelain and herbs that fight systemic inflammation and speed tissue healing.
❣️ Important: If you take Wound-Vite, skip the separate Vitamin C – it already contains plenty.

5️⃣ Oregano (oil or leaf)
One of the strongest natural antimicrobials.
• Oregano oil (in capsules) → very potent, we use it 4–6 weeks max when things feel “off”
• Oregano leaf capsules → gentler, safe for several months of daily use
Brands we personally trust & use every day:
• Glutamine: Thorne or Pure Encapsulations
• Glucosamine: Now Foods
• Urinari-X: Nature’s Life
• Wound-Vite: LifeSeasons
• Oregano leaf: Gaia Herbs or Nature’s Way
• Oregano oil (only short-term): Zane Hellas or Gaia Herbs
Always check with your doctor or pharmacist before starting anything new – especially if you’re on medication or have kidney issues.
This combination changed everything for us. Fewer antibiotics, fewer hospital visits, and way more calm days.
You’re not alone in this fight 💪❤️
God bless you all!