09/18/2025
Our sweet Owen has been fighting such an excruciating battle, and these last few days have been especially hard—trying to make him comfortable while not being able to truly comfort him has been heartbreaking.
Emanuele was able to come up Sunday night to help carry the load with Owen in the hospital, which has been a blessing. Owen still requires support from a BiPAP breathing machine to get enough oxygen through his lungs.
Yesterday, the doctors had planned to take Owen into the OR to examine his nasal fungal infection, as they feared it was worsening due to his high fevers of 103–104. However, they had to postpone because his sodium levels were too high for anesthesia, and they wanted to keep him safe. Today, even with the risks, they decided surgery was necessary in order to get ahead of this fungal infection, because if it spreads, it could threaten Owen’s life. They also needed to check his ear.
The doctors have been very straightforward with us—no sugarcoating—because their goal is to give Owen the very best chance at survival. They explained that because Owen is so sick and relies on breathing support, he would remain intubated after surgery until the inflammation in his body goes down and his lungs have time to heal.
We are grateful to share that the surgeon called us after the procedure and said everything went really well. In Owen’s nasal area, they didn’t notice much infection, which was a huge relief, though they did take biopsies just to be safe. His ear, however, was another story—they found a cyst filled with pus, which they were able to drain. They believe this may have been causing his fevers and discomfort. They also took a biopsy and sent samples for testing. Infections like this are common in children who are immune compromised, especially in the ear and surrounding bone.
Through it all, Emanuele and I continue to pray that Jehovah sustains us on this journey with Owen. This infection needs to be cleared so he can continue with his chemo treatments. Please keep our family, and especially our sweet Owen, in your prayers. This is a very heavy time for us, and we are truly feeling the weight of his treatment.