Andrew's Allies

07/20/2025

Well, monster spent the majority of the day in the emergency room. Heart rate up, low oxygen, fast respirations. All the things we see with aspiration pneumonia. They heart crackles in the lower left lung, but imaging was clear, and he has a low fever. They diagnosed him with a mild virus, elevated white count, and possible pneumonia and sent him home with antibiotics. Follow up with his doctor this week and recheck the pneumonia. They did consult with Cincinatti too.

06/17/2025

04/22/2025

Andrew lost two more CDKL5 sisters this week. Nikisha and Kylee. CDD is a terrible disorder that takes to many of our babies far to soon. Fly free and run wild girls!

04/12/2025

04/09/2025

Newly diagnosed families, please know that you are not alone. The IFCR welcomes you to our CDKL5 community. We have been in your shoes, and we are here to help.
Please visit the "For Families" page on our website: https://www.cdkl5.com/for-families

02/25/2025

Has anyone else recieved this? They are all usually junk, but this one looks legit? I don’t want to loose all of Andrew’s followers and page, if it is legit. But it also asks for ALL the info when you follow the link, I don’t want to turn it all over to hackers either.

01/29/2025

Andrew is finishing up with his Ortho now. He definitely has the buckle fracture, but it’s actually both bones. So, that’s sad. But he also did something amazing!

His dad called me and told me about this, it’s a new first! They showed him the board of color options for his cast. He actually touched the color he wanted (red) and signed want!! That’s a BIG deal!!

01/28/2025

Ok, y’all, this page is about Andrew’s, and Andrew only. His father and I still compare t and get along just fine, event went bowling with our new partners, and the kids, Friday night, where a great time was had by all.
Stephen Ferguson is a great dad, and I have NEVER said anything different, even during the divorce. Our problems were never with the kids, just each other.
No one needs protected on this page, and Stephen and I neither one want people picking sides on Andrew’s page. It is about him and will continue to be so! I can’t believe that I am even having to say any of this here.
I will delete, and continue to delete, any comments that are about his father, or me, as this is not what this page is for. Many people chose sides and stopped following Andrew anyway, which is pretty sad, but so be it.
Please y’all, keep it about our favorite monster!!

01/26/2025

So poor monster had an accident today. His dad was carrying him out to the van and slipped on the ice. Thank god his new girlfriend was behind him!! He started to fall forward with Andrew, and she grabbed him from behind and pulled him back on her. His dad still ended up landing on his leg, just above the ankle, but his girlfriend kept it from being far worse. Andrew didn’t hit his head or anything, but did get a buckle fracture. It’s not a visible crack or break, per se, but it’s dented, for lack of better description. It’s still treated like any other break. He has a splint for now, his dad will call ortho Monday. Tylenol and Motrin for pain. His dad feels super guilty, but everything will be ok. The break is just above the ankle, it looks like a dent in the bone, basically.