Mily's Journey

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Mily's Journey 🎗A page dedicated to updating family and friends of Emily's journey to beat cancer🎗

Day 2 & 3 of chemo are done. They are currently giving her a RBC transfusion just to keep her perked up cause her count ...
15/04/2026

Day 2 & 3 of chemo are done. They are currently giving her a RBC transfusion just to keep her perked up cause her count was a bit low. They are gonna recheck her CBC around midnight tomorrow just to make sure she doesnt need 1 more boost before we go home and get ready to start radiation on the 27th.

Ok so, 1st off I want to say Thank You! Thank you to every person who has prayed for our girl, who donated to the Encore...
15/04/2026

Ok so, 1st off I want to say Thank You! Thank you to every person who has prayed for our girl, who donated to the Encore for Emily or her GFM, and to everyone who has followed and supported us on Mily's Journey to beat Ewings Sarcoma. The outpouring of love and support from family, friends and our community has been overwhelming to say the least. With that being said, here its the update from her latest scans. I am posting 3 pics along with this post. The 1st two are the MRI results from her post op showing a front and side view of the cancerous tumor in her L2. The 3rd picture is of the MRI which was done yesterday and shows how her cancer is looking now. So what are you looking at you ask? You are looking at images of a 15 yr old girl who has fought her heart out and is WINNING!!! Yes I said winning because the cancer and tumor is pretty much gone!!! 😭 She will still have to have 6 weeks of radiation but its now more of a preventative measure to make sure it doesnt come back. Is her journey over? No, it never will be, but this part of the fight is almost over and my little mama heart just cannot stop crying with happiness! For the last 2 months I have sat mentally silent in my fear that there would come a day when I may have to face the reality that we may one day have to bury our child but for the foreseeable future that is something I no longer have to worry about and that is why I cant stop crying tears of happiness! She still has a long road ahead as far as learning to walk but I know now that I can look forward to seeing her walk across the stage at graduation, that one day I will get to see her dance with her dad at her wedding and that her neices and nephews will no longer have to come to know her through pictures from the past. TODAY IS WITHOUT A DOUBT THE GREATEST DAY OF MY LIFE! Again, thank you to everyone for the love and support and I hope you continue to follow us on her continuing journey of the warrior princess we all know she is!!!

15/04/2026

We got news coming about her scans and progress but we are telling family 1st so just give us some time and I will update

14/04/2026

Sitting outside watching this little dude munch away without a care in the world while person after person walks by and he isnt even fazed 😂

Day 1 of 5 of chemo is in the bag! They did her contrast CT scan this evening and at about 10pm she is set to go have so...
14/04/2026

Day 1 of 5 of chemo is in the bag! They did her contrast CT scan this evening and at about 10pm she is set to go have some MRI's done that way in the next day or so we can see how the treatment has progressed. PRAY AND PRAY HARD FOR GOOD NEWS!!! She so desperately deserves some good news💛🌻🎗

Its the break of day and we got boba from Down Home Nutrition, so y'all know what time it is! Time to head south for Rou...
13/04/2026

Its the break of day and we got boba from Down Home Nutrition, so y'all know what time it is! Time to head south for Round 6 of chemo. This is a 5 day so we will be back home Friday hopefully to her wheelchair finally arriving!

Getting ready to watch "The Play That Goes Wrong"
12/04/2026

Getting ready to watch "The Play That Goes Wrong"

10/04/2026

Up bright & early getting ready to head to Jacksonville to UF Proton Therapy to get a full contrast CT scan which will be the 1st of a couple that will be done by the end of next week so that we can see how everything has progressed as far as the cancer goes. Praying for some good news! While all of her friends will be returning back to school Monday from spring break, she will be returning to Shands for Round 6 of chemo which will be a 5 day treatment. The most exciting thing is this Sunday she has been invited to go to FSU Performing Arts Theater to watch "The Play That Goes Wrong" and we cant wait! It will be a little fun thing to do before starting chemo on Monday and then on Friday once she is diacharged her custom wheelchair is supposed to be delivered to the house! Then, our girl gets about a week & a half before she will start her 6 week proton radiation treatment in Jacksonville. This week has been everyday traveling to & from Dr. appts but whatever it takes, is what we shall do..

08/04/2026

Had some good workouts at PT yesterday, now its time to head south to see her Neurosurgeon to see how her back is healing since surgery

31/03/2026

Emily is finally laying down and asleep, she had a bit of a rough patch this morn about 2am,she woke up throwing up and having some pains so they gave her some meds including benadryl and she just finally dozed off but until I know for 100% certain she is comfortable & able to sleep, this mama will be awake power chugging coffee! Thank goodness I got caffine on tap lol

30/03/2026

Just got the call that Emilys custom wheelchair will be delivered Friday April 17th!!! I cant wait!! The one she has now is so big & bulky and while it was great for her in the beginning with her issues of BP dropping when she sat up, its no longer practical for her now. When the new one comes in she will be able to move around the house more independently and it wont break my back everytime I got to load it up in the truck 😂

CBC was good so Day1 of Round 5 has officially begun. She didnt sleep well last night so as soon as we got to the room s...
30/03/2026

CBC was good so Day1 of Round 5 has officially begun. She didnt sleep well last night so as soon as we got to the room she fell asleep & has been resting ever since. The next 2 weeks are gonna be super busy with appointments, physical therapy & scans of one sort or another. We go Apr.10th to her radiation oncologist for a full contrast CT scan then on Apr. 13th she will be getting and MRI & PET scan while doing Round 6 so that they are prepared to start Proton Radiation on Apr. 27th.

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