Ehlers Danlos Syndrome Support

05/12/2026

There are 6 Major types of Ehlers-Danlos Syndrome

05/12/2026

Bubbles is a young cat with Ehlers-Danlos syndrome, a rare condition that affects collagen production and causes the skin to become extra stretchy, loose, and fragile. Even small scratches or bumps could easily injure her skin and healing takes longer than usual. Her room at the Sanctuary had to be carefully adapted to help keep her safe and comfortable.

Shortly after Bubbles arrived, another cat with the same rare condition began gaining attention on social media. A comment mentioning Bubbles helped connect her story with someone who would eventually adopt her.

Bubbles now lives in New York City with her loving owner, who also has Ehlers-Danlos syndrome. She is safe, cared for, and enjoying life in her forever home.

05/12/2026

His name is Toby, he has Ehlers Danlos syndrome but he is very spoiled and happy!

Credit : Reddit/willo132

05/12/2026

This little pup was diagnosed with Ehlers Danlos syndrome about a year ago. It’s a rare, congenital disease where the skin has abnormal collagen structure and easily stretches and tears.

Reagan’s mom has really been so great at giving Reagan a fantastic life but also keeping her safe. It’s not easy. She has needed many surgeries to surgically close wounds after her skin tears. But this girl is one of the happiest pups I’ve seen. She loves life and she has her wonderful mom to thank for giving her a chance to live!!

And yes, Reagan always wears clothes to keep her from scratching and tearing her skin!

05/12/2026

The more I learn about EDS (Ehlers Danlos Syndrome), the more I feel that problems with interoception in Autistics is EDS going undiagnosed.

05/12/2026

Major Arteries in the Body (Number of Dissections Reported)”

05/12/2026

Sad😖 truth about Ehlers Danlos Syndrome

05/12/2026

Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) are often associated with each other.

🤝 This diagram displays common symptoms. 🤝

(Note that the symptoms shown here are not necessarily the most reported, but rather some of the most indicative symptoms for these conditions.)

This is based on data shared by contributors diagnosed with these conditions.

05/12/2026

Update: Ashley Carnduff had surgery on her ankle this morning to tighten up the joint which was loose due to Ehlers-Danlos Syndrome (EDS). All went well!

05/12/2026

This is my daughter, Hana. She has Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome. Two years ago, she had brain surgery. She struggles every single day with headaches, fatigue, joint pain, dizziness, and nausea. Today, she received her SAT scores. She got a PERFECT score. Not one answer was incorrect. This is what we have learned:

1. Don't believe the "experts" when they say your child can't.
2. Never give up!
3. Disability does not mean inability!

05/11/2026