Profound Autism Ally

05/03/2026

05/03/2026

05/02/2026

MAKE A STAND 4 AUTISM for autism and the IACC!

04/28/2026

Jillian Eisloeffel of Bobby's World - Profound Autism - "He is my heart, I am HIS voice" published her devotional! Take a peek!

is a gentle, honest devotional created for caregivers who find themselves holding everything together while quietly carrying so much within. Written from lived experience, this book offers space to pause, breathe, and reflect in the middle of days that can feel overwhelming, unpredictable, and...

04/28/2026

Is mitochondrial support being oversimplified in chronic childhood conditions?

Mitochondrial dysfunction is increasingly recognized as a contributing factor in autism, PANS/PANDAS, and other complex pediatric conditions. Yet many interventions focus primarily on “mito cocktails”, blends of supplements designed to support energy production.

But what if that’s only part of the equation?

Join us on April 29 at 1:00 PM ET for a live expert interview with Dr. Sundeep Dugar, PhD, who brings decades of experience in drug discovery and mitochondrial research.

We’ll discuss:
• The underlying biology of mitochondrial dysfunction
• Clinical patterns seen across neurological and developmental conditions
• Limitations of current supplement-based approaches
• The role of mitochondrial biogenesis in long-term recovery
• Emerging strategies that may shift how we think about intervention

This session is designed for parents, practitioners, and anyone seeking a deeper, more nuanced understanding of mitochondrial health.

💛 Save your spot and join the conversation. If unable to attend live, sign up anyway and we will send you the replay! https://documentinghope.com/webinar/why-a-mito-cocktail-might-not-be-enough-for-autism-pans-pandas-and-more-with-sundeep-dugar-phd/

04/28/2026

Interagency Autism Coordination Committee (IACC) meeting votes for recommendations to HHS: (some 'no's' were not announced, but were not common)

1) Attachment A: EPSDT CLARIFICATION REGARDING CLINICAL ASSESSMENT, CO-OCCURRING CONDITIONS, AND SAFETY RISKS FOR CHILDREN WITH AUTISM SPECTRUM DISORDER-27 yes, 12 abstained

2) Attachment B: PROPOSED HRSA CLINICAL GUIDANCE ON STRUCTURED REVIEW OF SYSTEMS, REDUCTION OF DIAGNOSTIC OVERSHADOWING, AND CLINICAL SAFETY ASSESSMENT FOR INDIVIDUALS WITH AUTISM SPECTRUM DISORDER-27 yes, 13 abstained

3) Attachment C: Proposal to Adopt the Term ‘Profound Autism’ with Functional Criteria for Research and Policy-26 yes, 13 abstained, 1 no

4) Attachment D: Proposed Safety Measures and Policy Objectives to Address Urgent and Critical Risks Associated with Wandering and Elopement-34 yes, 7 abstained

You can find the attachments here:

https://iacc.hhs.gov/meetings/iacc-meetings/2026/full-committee-meeting/april/?fbclid=IwY2xjawRd6K1leHRuA2FlbQIxMABicmlkETFqVHRON3NtbmZGcWJGR3Jrc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHkxcx49EErHJHWMFwUABuKW1-9WnO98lyXPNl1fNXLlvAH99A-gml2wMXmjW_aem_tUYtdLMYLTwvbBe2Sc8Y3g

The division is mainly between the federal and public members.