12/11/2021
Please pray for Elijah and his family 💛💛💛💛💛💛💛💛💛💛💛💛💛💛💛
I'm sorry. I know you're waiting for an update. The scan results aren't back yet but I don't need the final results to know what is happening.
Elijah is dying. The tumors in his lungs grew. I know that. The tumor in his jaw is completely wrapped around to the other side. Half of his tongue is numb, so it's hard for him to swallow. His tumors in his mouth are so big, he can't close his mouth. He can't eat solid food. He can hardly swallow liquid anything. Since it's hard to swallow, he'd rather just not eat or drink. He is sleeping nearly all day. He peeps his eyes open to see if I'm there or to let us know he is listening. I check his oxygen often throughout the day. When I checked it tonight, it was 85%. So, I put him on oxygen. Hopefully hospice is coming tomorrow so we can talk about pain management and steps moving forward.. My sweet boy is so miserable. The whole tumor in the mouth thing is terrible. I can barely understand his words because he can't talk. 😭
Elijah has officially been pulled off the trial we were on per his oncologist. We will continue at home supplements the best we can. We will pray for a miracle because GOD CAN. We will snuggle him, and tell him we love him a million times in each day.
This has to be the hardest part of our 5 years. Harder than day 1. Just watching his deteriorate right before my eyes. I had to tell Emma today that he brother will most likely die soon. With tears in her eyes she said "Dying? But mom, I love to play with him!" She is so so sad and has pretty much clung to his side since. I wanted her to get her hugs in. That was hard.
Please pray for us. Pray that my sweet 'Lijah boy would be free of pain. I love him with every ounce I've got. So so much. This is so hard. 😭
Please know that I am spending time with my boy. I may not answer questions or messages. Please don't be offended. Please know that we have tried nearly everything we've come across -supplements wise- (We have a pharmacy worth of vitamins, supplements, tinctures, oils, etc). We've sought out doctors across the country. Please don't tell me to seek out St. Jude.
You have all been so supportive these last 5 years. ❤ I am forever grateful for your kindness to our family. Thank you for praying. For loving. For thinking of us.
I will update as often as I can.
