03/09/2026
“Why do you post about your health on social media?”
Because if somebody sees me like this… they won’t feel so alone.
Living with multi-system chronic illness is one of the most isolating things a person can go through. You can look completely fine on the outside while your body is in absolute chaos on the inside. And when you start searching for answers, the road can be long and discouraging.
For many of us, finding knowledgeable doctors is incredibly hard. Gaslighting can be strong. Being told “everything looks normal” while you’re clearly struggling is something far too many chronic illness patients experience.
And when you go searching online for answers?
There often isn’t much there either.
Part of the reason is because some of these conditions are still relatively new to modern medicine.
For example, the diagnostic criteria for Mast Cell Activation Syndrome (MCAS) wasn’t established until 2012. That’s not very long ago in medical terms, and many doctors were never trained to recognize it.
And conditions like POTS (Postural Orthostatic Tachycardia Syndrome) can be incredibly difficult to diagnose because symptoms overlap with so many other things — dizziness, heart rate spikes, fatigue, brain fog, fainting, GI issues, and temperature regulation problems. Many people go years searching for answers.
So yes… sometimes you’ll see the highlight reel of life here.
But sometimes you’ll also see the IV fluids, the tremors, the heart rate spikes, the near-syncope episodes, the blood pressure crashes, and the days when getting through normal life takes everything.
Not for attention.
Not for sympathy.
But because someone out there is scrolling tonight wondering if they’re crazy… wondering if they’re the only one… wondering if anyone understands.
If one person sees it and thinks,
“Wait… that happens to me too,”
then sharing it is worth it.
“But He said to me, ‘My grace is sufficient for you, for My power is made perfect in weakness.’”
— 2 Corinthians 12:9
God has carried our family through so much, and even in the hardest moments, He continues to show His strength in the middle of our weakness.
If you live with chronic illness — seen or unseen — you are not alone. 🤍
If you feel comfortable sharing, what was the hardest part of your journey to getting answers?