Colon Cancer Previvors and Survivors

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Colon Cancer Previvors and Survivors

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Purpose of this page is to bring awareness of Colon Cancer, specifically but not limited to the rare and deadly Familial Adenomatous Polyposis (FAP) disease and share stories, triumphs, seek advice, give advice including tips on J-Pouch, Ostomy, etc.

12/03/2024

Bryan Joey Hartson update; still in surgery but doing great! About 1/2 way through. Many know the family history of FAP. Some don’t. Here’s a high level summary that may help (especially for prayers). Todays surgery is the colectomy and construction of a J pouch. Second surgery will be in June to complete the J pouch construction.

Familial Adenomatous Polyposis (FAP) is estimated to affect about 1 in 10,000 people worldwide, which is approximately 0.01% of the population.

If a colectomy (surgical removal of the) is not performed in individuals with Familial Adenomatous Polyposis (FAP the risk of developing colorectal cancer is nearly 100%. Without treatment, the mortality rate for individuals with FAP is very high due to the high likelihood of developing aggressive colorectal cancer at a young age. It is important for individuals with FAP to undergo regular monitoring, surveillance, and treatment to reduce the risk of colorectal cancer and improve their chance of survival.

The best treatment for Familial Adenomatous Polyposis (FAP) is typically surgical removal of the colon (colectomy) to prevent the development of colorectal cancer. This surgery is usually done in combination with regular monitoring and surveillance for polyps in the remaining portions of the gastrointestinal tract. In some cases, genetic testing and counseling may also be recommended for individuals with FAP and their family members. Additionally, there are medications available that can help reduce the number and size of polyps in individuals with FAP.

29/11/2021

And do not forget to do good and to share with others, for with such sacrifices God is pleased.
-Hebrews 13:16

28/11/2021

I created this group for those that have questions or input on Colon Cancer and specifically FAP (Familial Adanomous Polyposis). For those just joining and not having an understanding of FAP, I will give my two cents as times goes on. There's a lot of information and an lot of progress with regard to FAP. Here's a couple of low hanging fruit facts:

Fact:
FAP is an Autosomal Dominant Disease. What that means is, if one has the gene, there is a 50% chance of passing the gene on to your children. If the child does not get the gene, the chain is broken, but if the child does get the gene, he or she has the same 50% chance of passing the gene on to their children. Each parent of the child has a 50%/50% chance of carrying the gene.

Fact:
Left untreated, FAP will result in death 100% of the time.

Fact:
FAP can be found by a genetics test at birth. Without the test, signs of the presence of the gene appear at a very young age, under 10 years of age frequently. Signs are blood in the stool.

More facts to come. Leave your comments, add a post!

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