Living With Charcot-Marie-Tooth Disease
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Our mission is to ensure that patients living with rare diseases or chronic illnesses have a safe an It is a safe, secure, and private.
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Living With Charcot-Marie-Tooth Disease
Living With Charcot-Marie-Tooth Disease is Ben’s Friends Facebook landing page for our Peer to Peer Patient Community at: http://www.livingwithpolyneuropathy.org/
Living With Polyneuropathy is an online patient community for patients and caregivers affected by Polyneuropathy. It is a safe, secure, and private. place to get and give support for patients, caregivers, and family affected by polyneuropathy
Our mission is to ensure that patients living with rare diseases or chronic illnesses have a safe and supportive place to connect with others like them.
Our communities have proved a valuable guide for members seeking to understand their diagnosis, symptoms, and their treatment options. Ben’s Friends provides a friendly environment that allows for bonding. Many a lifelong friendship has been forged on our communities. But most of all, Ben’s Friends is successful because it changes our members’ relationships with their disease. “I have the disease; it doesn’t have me” is a mantra often repeated by members, as they gently guide each other toward effective coping mechanisms and enable our patients to live the fullest lives possible.