Hemophilia Outreach Center

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Hemophilia Outreach Center

Dedicated to providing specialized medical care & advocacy for individuals with bleeding disorders.

12/08/2025

to when we first announced our podcast, Beyond the Bleeds, was going to happen 🎙️. We’re coming up on a year of sharing stories and resources, and we’re looking forward to bringing even more to our bleeding disorders community in the next year.

Catch up on the latest episodes here: https://hemophiliaoutreach.org/beyond-the-bleeds/

11/08/2025

HOC is excited to share an amazing opportunity for our bleeding disorder community affected by inhibitors! The CHES Foundation, Inc.'s InhibitCon West takes place October 3–5, 2025 in Portland, Oregon, with tailored sessions, education, and support for caregivers, adults, and kids/teens. Learn more and register at ches.education/inhibitcon.

If you have questions about the event, feel free to reach out to Heather at heatherh@hocgb.org or 920-965-0606.

11/08/2025

Back-to-School is coming up quick, making it the perfect time to set up an educational in-service with an HOC nurse for your child. Our nurses can meet with your child’s teacher and school staff, including daycare providers, provide in-services for campus nurses if your student is heading off to college, and lead fun, interactive classroom sessions to help their peers better understand bleeding disorders.

Contact Heather today at heatherh@hocgb.org or 920-965-0606 to help set it up.

08/08/2025

Welcome to Beyond the Bleeds, where real stories and heart meet medical insight.

We’re thrilled to bring you the highlights from our most recent episode, where we sat down with Dr. Matthew Ryan, Medical Director at the Hemophilia Outreach Center, and Dr. David Groteluschen from Green Bay Oncology. This conversation truly showcases what can happen when dedicated teams come together for people living with bleeding disorders.

𝘏𝘦𝘳𝘦’𝘴 𝘸𝘩𝘢𝘵 𝘴𝘵𝘰𝘰𝘥 𝘰𝘶𝘵 𝘵𝘰 𝘶𝘴 𝘥𝘶𝘳𝘪𝘯𝘨 𝘰𝘶𝘳 𝘥𝘪𝘴𝘤𝘶𝘴𝘴𝘪𝘰𝘯:

𝗖𝗼𝗹𝗹𝗮𝗯𝗼𝗿𝗮𝘁𝗶𝗼𝗻 𝗧𝗵𝗮𝘁 𝗖𝗵𝗮𝗻𝗴𝗲𝘀 𝗟𝗶𝘃𝗲𝘀
Dr. Ryan shared how his partnership with HOC began 15 years ago and how it’s grown into a seamless collaboration between Green Bay Oncology and HOC. Dr. Groteluschen described how this partnership is about providing the same level of care that patients might receive at top universities, right here in our own communities.

𝗘𝘅𝗽𝗮𝗻𝗱𝗶𝗻𝗴 𝗢𝘂𝗿 𝗥𝗲𝗮𝗰𝗵
We discussed the importance of access—how patients from rural areas who would otherwise go without specialized care are finding their way to HOC and Green Bay Oncology, sometimes traveling from six or seven hours away. Telemedicine and shared expertise are helping us bridge those geographic gaps.

𝗪𝗵𝘆 𝗛𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝗧𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁 𝗖𝗲𝗻𝘁𝗲𝗿𝘀 𝗠𝗮𝘁𝘁𝗲𝗿
We firmly believe that every person with a bleeding disorder deserves the full spectrum of care: medical, financial, genetic, and psychosocial support. HOC is uniquely designed to provide this comprehensive approach, and there’s just no substitute for being part of a center focused solely on bleeding disorders.

𝗘𝗮𝗿𝗹𝘆 𝗜𝗻𝘁𝗲𝗿𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗠𝗮𝗸𝗲𝘀 𝗮 𝗗𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝗰𝗲
We reflected on how crucial it is to reach people as early as possible. The sooner someone connects with us, the better long-term outcomes can be, preventing complications like joint damage. Our menorrhagia clinic is opening doors for women who might otherwise overlook their symptoms, demonstrating that what's considered “normal” for one family may actually be a treatable condition.

𝗚𝗲𝗻𝗲 𝗧𝗵𝗲𝗿𝗮𝗽𝘆 𝗮𝗻𝗱 𝘁𝗵𝗲 𝗙𝘂𝘁𝘂𝗿𝗲
Hearing Dr. Ryan and Dr. Groteluschen discuss gene therapy was both inspiring and humbling. It’s not a magic bullet yet, but it’s dramatically improving lives—and we’re excited to see where the research takes us in the next few years.

𝗖𝗼𝗺𝗽𝗿𝗲𝗵𝗲𝗻𝘀𝗶𝘃𝗲, 𝗖𝗼𝗺𝗽𝗮𝘀𝘀𝗶𝗼𝗻𝗮𝘁𝗲 𝗖𝗮𝗿𝗲
Our chat was a reminder that none of us does this alone. Every patient benefits from a whole team: doctors, nurses, social workers, genetic counselors, financial navigators, and, most importantly, their families and communities.

Listen to the episode for even more insights and inspiration. https://hemophiliaoutreach.org/bridging-hematology-oncology-and-hemophilia-inside-the-green-bay-and-hoc-partnership-dr-ryan-dr-groteluschen/

08/08/2025

Counselor Crosby won Counselor Beyond the Call of Duty Award!! Congrats! 🎉

06/08/2025

Welcome to Beyond the Bleeds, where real stories and heart meet medical insight.

Today, we had the privilege of sitting down with Dr. Matthew Ryan and Dr. David Groteluschen from Green Bay Oncology for a discussion about the power of partnerships in hematology and oncology care. Their expertise and candor shed light on how collaborative, patient-centered approaches transform lives for those affected by bleeding disorders.

𝘞𝘩𝘢𝘵 𝘠𝘰𝘶'𝘭𝘭 𝘓𝘦𝘢𝘳𝘯 𝘍𝘳𝘰𝘮 𝘛𝘩𝘪𝘴 𝘊𝘰𝘯𝘷𝘦𝘳𝘴𝘢𝘵𝘪𝘰𝘯:

𝗖𝗼𝗺𝗽𝗿𝗲𝗵𝗲𝗻𝘀𝗶𝘃𝗲, 𝗖𝗼𝗹𝗹𝗮𝗯𝗼𝗿𝗮𝘁𝗶𝘃𝗲 𝗖𝗮𝗿𝗲 𝗶𝘀 𝗘𝘀𝘀𝗲𝗻𝘁𝗶𝗮𝗹
Dr. Groteluschen highlighted how teaming up with specialized hemophilia treatment centers raises the standard of care for patients. This type of partnership enables the delivery of comprehensive, up-to-date treatment locally, on par with that of major university hospitals.

𝗘𝗮𝗿𝗹𝘆 𝗜𝗻𝘁𝗲𝗿𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗠𝗮𝗸𝗲𝘀 𝗮 𝗟𝗶𝗳𝗲𝗹𝗼𝗻𝗴 𝗗𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝗰𝗲
Dr. Ryan emphasized that early diagnosis and proactive care for bleeding disorders can prevent chronic complications like joint damage. Increasing awareness among both providers and the community is critical so patients can be identified and supported as early as possible.

𝗡𝗲𝘄 𝗧𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀 𝗠𝗲𝗮𝗻 𝗡𝗲𝘄 𝗢𝗽𝗽𝗼𝗿𝘁𝘂𝗻𝗶𝘁𝗶𝗲𝘀—𝗮𝗻𝗱 𝗖𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀
With advances like gene therapy and longer life spans for those with hemophilia, care teams now face the unique challenge of managing both bleeding and clotting risks, particularly as patients age. It takes a skilled and well-coordinated group to achieve the best outcomes.

The dedication of both the Green Bay Oncology and Hemophilia Outreach Center teams, along with their commitment to bringing expertise and compassionate care closer to home, truly makes a difference.

https://hemophiliaoutreach.org/bridging-hematology-oncology-and-hemophilia-inside-the-green-bay-and-hoc-partnership-dr-ryan-dr-groteluschen/

06/08/2025

Nothing beats a fun-filled day at summer camp! ☀️

05/08/2025

Camp has gotten off to a great start! Best week of the summer! 🏕️

04/08/2025

Welcome to Beyond the Bleeds, where real stories and heart meet medical insight.

Today on Beyond the Bleeds, we sat down with Dr. Matthew Ryan and Dr. David Groteluschen of Green Bay Oncology to uncover the power of collaboration between community oncology clinics and specialized hemophilia treatment centers.

We explored how their partnership brings cutting-edge, comprehensive care closer to home for patients with rare bleeding disorders, and why early intervention and increased awareness are game changers for quality of life.

It's all about building expertise, creating access, and leveraging teamwork to deliver world-class care—even in the most remote communities. If you're curious about innovative models in healthcare, this episode is a must listen!

Listen to the full conversation here: https://hemophiliaoutreach.org/bridging-hematology-oncology-and-hemophilia-inside-the-green-bay-and-hoc-partnership-dr-ryan-dr-groteluschen/

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Opening Hours

Monday	08:00 - 16:30
Tuesday	08:00 - 16:30
Wednesday	08:00 - 16:30
Thursday	08:00 - 16:30
Friday	08:00 - 16:30

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+19209650606

Website

http://www.hemophiliaoutreach.org/

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What is the Hemophilia Outreach Center?

The Hemophilia Outreach Center, located in Green Bay, WI currently serves patients from North Eastern Wisconsin to the Upper Peninsula of Michigan. The Center was founded by two pediatric nurses, Peggy Maier and Audrey Nuskiewicz, in 1974 after being recruited to establish a “clinic” for persons with hemophilia and other bleeding disorders.

After decades of commitment and care from these two nurses, they decided to make their dream a reality by creating a center that is governed by the patients and families it serves. The Hemophilia Outreach Center is one of the few free-standing Hemophilia Treatment Centers in the nation and has grown from the original six patients to currently serving over 350 patients.

Since the beginning, it has been our mission to provide expert, specialized medical care and advocacy for persons with a bleeding disorder. We create and implement programs that educate, empower, and enrich the bleeding disorder community. Our services are designed to enhance our holistic vision of each person.

The Hemophilia Outreach Center’s services include: diagnosis and treatment from a comprehensive care team including physicians, nurses, physical therapist, social worker, reimbursement specialist, and other healthcare professionals; coordination of medical care with other healthcare providers and hospitals; 24-hour on-call coverage 7 days a week provided by medical personnel; education and outreach about bleeding disorders to patients, their families, schools, hospitals, and the community; delivery of hemophilia clotting factor at reduced prices through our Public Health Service 340B Clotting Factor Program.

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What is the Hemophilia Outreach Center?