BorreliaEtc

26/07/2022

Check out our interview with the legendary Dr. Eva Sapi, leading Lyme Disease researcher, patient, and advocate. Dr. Sapi has pioneered huge change in treatm...

21/07/2022

Tomorrow I am filling in for a dear friend on her podcast, Thursdays With Tracy, because she is busy organizing the Indiana State Medicare For All March coming up this weekend.

I reached out to fellow National Improved Medicare For All activists and advocates from my area (Western WA State) and we were able to plan a balanced and indepth conversation.

Join us Thursday, 21 July, at 4:30p:

30/05/2022

The CG and I have been working on some video projects to add to the site. Our first video is up now!

https://borreliaetc.com/video-portfolio/

BorreliaEtc’s YouTube Channel Welcome to the audio/visual portion of the site! Anna and Lorraine have been taking some time to make some videos that cover educational and emotional topics. Wh…

21/05/2022

We get an average of 476,000 new cases of Borrelia every year in the USA. Read about the numbers here:

https://borreliaetc.com/2022/05/20/how-many-annual-borrelia-cases-in-the-usa/

Have you ever heard about a stadium called “The Big House” in Michigan? It can fit 107,601 people at full capacity. Michigan Stadium, © 2009 Getty Images It would take filling more than…

21/05/2022

I PROTEST!

By Lorraine Hart

About two decades ago now, I was in a dangerous whirlpool of my daughter being so sick with Borrelia etc, while doctors insisted it couldn’t be Lyme, despite her symptoms, despite knowledge of the bites and bullseye rashes she had. Even with the small amount of knowledge we had then, we were leaving doctors in the dust. Their response was to close their eyes and write a prescription for any particular symptom she had mentioned. Frustration at the many spins we had taken with doctors who parroted, “But we don’t have Lyme out here,” frustration at not being heard when I tried to tell them of the horrendous days and nights we were having. Some days she writhed on the bed with so much pain, my husband and I had to stand on each side of the bed, making sure she didn’t throw herself off–and then the next day she couldn’t move one muscle in her body, only blink her eyes for yes or no answers to my questions. As a parent, you spin. As an intelligent human being, you spin. Infections from ticks were real, and right in front of me, and yet we were treated as idiots by many, many medical professionals.

Read more: https://borreliaetc.com/2022/05/19/borrelia-etc-rally-this-weekend-in-purdy-wa/

Day: Saturday, 21 May Time: 3:00p – 4:00p Pacific Time Where: the entrance to the Purdy Spit Bridge, on the green in front of the “Welcome to Purdy!”‘sign. Rally Information…

30/07/2021

https://borreliaetc.com/2021/07/30/brazil-caregiver-asks-for-kindness/

Here is my contribution to the subject of the social drama people who live with Lyme Disease face in terms of relationships. -João Lyme Disease is rare in Brazil and people do not know what it mean…

30/07/2021

Visit the post for more.

24/03/2021

I have a zoom talk with local nursing students about Lyme disease and co infections tomorrow. I haven't done this sort of a talk in a long time, not since before the covid pandemic lockdown. I've never been good at streamlining my story, as how do you "sum up" 24 years of pain, fatigue, ups and downs, and uncertainty? It's no easy task.

But when I reach the students about bedside manner and how important nurses are to us (chronically ill patients) it usually turns into an easy discussion from the heart.

Maybe some notes on the sciencey stuff, though. 😅

02/08/2020

When I try to relax my body - for sleep, meditation, or Qigong - Parkinson-like symptoms start raging within me.

Jerks, spasms, nerve pain, anxiety, heart palpitations, nausea/vomiting, sweats, temperature intolerance, a weird shuffle because it feels like my legs have weights added... I've even had problems with swallowing.

Waiting on the Neuro referral, now for 5 months.

This is painful and interrupting my sleep regularly. I haven't been able to do much, let alone concentrate on writing for the site, life this.

I'm thinking of you all. Please wear a mask & wash your hands. Stay safe, we love you.

26/04/2020

https://youtu.be/nXL0PazeHGc

Download Master Mingtong's Ebook "Ancient Chinese Healing Secrets" FREE: http://chicenter.com/ancientsecrets Wisdom Healing Qigong with Master Mingtong Gu an...

18/04/2020

Come join us now! (Noon Pacific Time)

Zoom Meeting ID: 391 063 607
Password: 034 453

AJ, the Caregiver, and I have been working on a gentle session of Qigong suited especially for the chronically ill. We are going to meet at Noon Pacific Time (12p) on Saturdays and follow a simple …

31/03/2020

Qi & Tea is a brilliant way to start learning some Qigong and breathwork, please come join if it calls to you! All you need is Zoom and an internet connection.

https://borreliaetc.com/2020/03/25/qigong-sessions-by-video/

Important note: today we are meeting at 1p (an hour from writing this)

Qigong has been a game changer in my family’s health. My brother AJ brought us this lifestyle after turning his own life around.. He was a fast-paced urbanite living in NYC, selling high end …

23/03/2020

Free Qigong sessions for the Lyme Community are starting soon! Please download zoom & get in touch with your contact information there if you would like to join us.

Qigong is a type of practice that combines breathwork, meditation, and physical practice that is akin to yoga or tai chi.

18/03/2020

I found a wonderful android app designed to keep a decent log of your health while fighting Lyme disease - it's 4.99US and entirely worth it.
https://play.google.com/store/apps/details?id=com.cellhigh.LymeDiseaseDiary

20/02/2020

Hello Everyone!

A couple friends, Lorraine, and I have made a survey for Lyme patients in the PNW!

Please visit:

https://forms.gle/F4aiPiSF2DzXFkjd6
..to full out your answers. This will help us get some understanding of Lyme statistics in our state and the surrounding areas.

Who is welcome to take this survey? First, only patients, or someone speaking for a patient who cannot take it on their own. (We are making a caregiver survey now!)

This is for residents of the Pacific Northwest and surrounding areas (WA, OR, CA, ID, NV, and BC, Canada) or if you come to WA for treatment.

Your voice counts.

Thank you!

Patient Survey

27/01/2020

Fans can expect to get a glimpse into the popstar’s life, including his long-time struggle with Lyme Disease.

27/01/2020

If you are in WA, please call our state representatives to ask them to support HB 2332 - which says no physician should be sanctioned simply for treating Lyme disease with long term abx.

We need Eileen Cody to move the bill forward, and right now she's not of a mind to because she isn't hearing from many constituents. Please call her and the others on the health committee.

Thank you.