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Sio Gene Therapies

Sio Gene Therapies combines cutting-edge science with bold imagination to develop genetic medicines Community Guidelines

Thank you for your interest.

We’re happy that you’ve found our page on Facebook. There are a few things you should know about engaging with Sio Gene Therapies. We work in a highly-regulated environment and must follow certain laws and regulations. Because of this, sometimes comments will be hidden or we will be unable to respond. Also, please note that we’ll be monitoring the page Monday through Friday from 9-5 pm ET, excludi

ng holidays. So if you ask a question after hours or on the weekends it will take us some time to reply. Sometimes we may not know the answer, so please bear with us as we find the best information to accurately respond. To help ensure that your comments stay on our community page, please follow these rules. If your comment includes any of these, we will hide it and won’t be able to respond:
• Offensive, defamatory, abusive or obscene language or images.
• Information to pitch products/services or medical advice.
• Any reference to pharmaceutical products and treatments or questions related to medical advice.
• Any adverse events or side effect possibly due to a medication. Instead, any adverse event concerns should be reported immediately to http://www.fda.gov/medwatch or by calling 1-800-FDA-1088. To keep the conversation focused, comments must clearly relate to Sio's topic. Please be aware that any posts or comments submitted become the property of Sio Gene Therapies. We look forward to a productive conversation. As with any page, the information we post here is not a substitute for medical advice from a healthcare professional such as a physician. Be sure to visit or speak to a qualified healthcare professional regarding any health concerns. Comments shared to the page are not necessarily reflective of the beliefs and opinions of Sio Gene Therapies. We reserve the right to update our community rules or remove this page, or any of its comments, at any time. This page is intended for U.S. residents only. Privacy Policy: https://siogtx.com/privacy-policy/

Terms of Use: https://siogtx.com/terms/

19/04/2022

Our team is composed of scientific experts and pioneers in gene therapy who work with a sense of urgency to optimize an approach tailored to the unique features of each disease. We’re in pursuit of long-lasting, transformative treatments. More here: https://bit.ly/3ty9l7a

07/04/2022

This , we are recognizing the push towards a for ourselves and our planet. At Sio, our focus is to advance the treatment landscape for rare, fatal pediatric disorders. Learn more: https://bit.ly/3qvktQn World Health Organization (WHO)

30/03/2022

Today is ! We’d like to thank all the hardworking physicians around the globe for helping to care for and guide patients and families as they navigate the numerous challenges that come along with rare diseases.

29/03/2022

Our mission is to combine cutting-edge science with bold imagination to develop genetic medicines that aim to radically improve the lives of patients with debilitating neurodegenerative diseases. Learn more: https://bit.ly/3uMJSrB

23/03/2022

At Sio, patients and families are our priority. Visit our website to find educational resources for our gene therapy treatments in development: https://bit.ly/3sGqtWH

18/03/2022

Meet our January MVP, Rob Wiley, Director, Project Management. Rob continues to exemplify our core value of moving quickly and making everyday matter. Rob moves with speed and purpose and has been invaluable in managing, problem-solving, and advancing our GM1 and GM2 gangliosidosis programs. Thank you, Rob, for your dedication and hard work!

15/03/2022

Rare disease patients wait an average of 6.3 years after symptoms present before receiving a confirmed diagnosis, and typically receive several incorrect diagnoses during that time. Sio is a proud sponsor of the Invitae Detect L*D program, which provides no-charge genetic testing and counseling for children suspected of having a lysosomal storage disease (L*D), to help families get closer to answers. Learn more: https://bit.ly/3Ly1eys

28/02/2022

Today is Rare Disease Day! Rare diseases affect 300 million people globally. The Sio team is dedicated to changing the current treatment landscape of rare genetic diseases. Learn more: https://bit.ly/3feDPDr

23/02/2022

Thank you to all the rare disease advocates out there, for your hard work and dedication in raising awareness and providing support for patients and their families. We are forever grateful. Cure GM1 Foundation National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) Cure and Action for Tay-Sachs - CATS Foundation Cure Tay-Sachs Foundation - CTSF Actays Hand in Hand gegen Tay-Sachs und Sandhoff in Deutschland Hand in Hand für Tay-Sachs & Palliativkinder

21/02/2022

Did you know that newborn screening is performed in all 50 states? We have come a long way since The Newborn Screening Act started in the 1960s, but we still have a ways to go. In the United States, only a few types of rare diseases are tracked when a person is diagnosed. Because most rare diseases are not tracked, it is hard to know how many people are affected by rare diseases. Learn more: https://bit.ly/3IWq3BX

17/02/2022

Diagnosing rare diseases can be difficult and patient populations for rare diseases can be relatively small, causing them to be overlooked by the research community. But at Sio, we are proud to fight for the rare disease patients and sponsor the Invitae Detect L*D program for no-charge genetic testing and counseling for children suspected of having a lysosomal storage disease. Learn more: https://bit.ly/3s8kda5

16/02/2022

Tay-Sachs and Sandhoff diseases are the two distinct types of GM2 gangliosidosis. This Rare Disease Day, we are raising awareness for this genetic disorder that has no approved treatments. Learn more here: https://bit.ly/3fRPPLv

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https://siogtx.com/

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Our Story

Sio Gene Therapies combines cutting-edge science with bold imagination to develop genetic medicines that aim to radically improve the lives of patients. Our current pipeline of clinical-stage candidates includes the first potentially curative AAV-based gene therapies for GM1 gangliosidosis and Tay-Sachs/Sandhoff diseases, which are rare and uniformly fatal pediatric conditions caused by single gene deficiencies. We are also expanding the reach of gene therapy to highly prevalent conditions such as Parkinson’s disease, which affects millions of patients globally. Led by an experienced team of gene therapy development experts, and supported by collaborations with premier academic, industry and patient advocacy organizations, Sio is focused on accelerating its candidates through clinical trials to liberate patients with debilitating diseases through the transformational power of gene therapies.

For more information, visit www.siogtx.com.

Community Guidelines Thank you for your interest. We’re happy that you’ve found our page on Facebook. There are a few things you should know about engaging with Sio Gene Therapies. We work in a highly-regulated environment and must follow certain laws and regulations. Because of this, sometimes comments will be hidden or we will be unable to respond. Also, please note that we’ll be monitoring the page Monday through Friday from 9-5 pm ET, excluding holidays. So if you ask a question after hours or on the weekends it will take us some time to reply. Sometimes we may not know the answer, so please bear with us as we find the best information to accurately respond. To help ensure that your comments stay on our community page, please follow these rules. If your comment includes any of these, we will hide it and won’t be able to respond: • Offensive, defamatory, abusive or obscene language or images. • Information to pitch products/services or medical advice. • Any reference to pharmaceutical products and treatments or questions related to medical advice. • Any adverse events or side effect possibly due to a medication. Instead, any adverse event concerns should be reported immediately to http://www.fda.gov/medwatch or by calling 1-800-FDA-1088. To keep the conversation focused, comments must clearly relate to Sio’s topic. Please be aware that any posts or comments submitted become the property of Sio Gene Therapies. We look forward to a productive conversation. As with any page, the information we post here is not a substitute for medical advice from a healthcare professional such as a physician. Be sure to visit or speak to a qualified healthcare professional regarding any health concerns. Comments shared to the page are not necessarily reflective of the beliefs and opinions of Sio Gene Therapies. We reserve the right to update our community rules or remove this page, or any of its comments, at any time. This page is intended for U.S. residents only. Privacy Policy: https://siogtx.com/privacy-policy/ Terms of Use: https://siogtx.com/terms/