Tyla's Journey

12/10/2025

If you’ve lost a loved one to epilepsy, you’re not alone. Our support groups provide a space for those navigating grief. Whether you choose to share or simply be present, you’ll be surrounded by people who understand. To learn more or to register, please email sudep@efa.org

12/10/2025

12/10/2025

Health care costs are skyrocketing. If Congress does not extend health care tax credits, costs could double or even increase further for millions of patients and families. You can help! Call your members of Congress at 202-224-3121 and ask them to extend health care tax credits.
https://www.epilepsy.com/advocacy/advocate?vvsrc=/campaigns/129784/respond

12/10/2025

Raising awareness helps families recognize the signs sooner and empowers providers to act quickly. Together, we can help every child get the care they need—when they need it. Learn more at infantilespasms.org

12/10/2025

Awareness is not just a month — it’s every day for families living with epilepsy.

Here are a few myths we’re breaking today to help educate and support our community.

If this teaches you something new, please share so others can learn too.

💜 Follow Tyla’s Journey for more resources, encouragement, and real stories

12/02/2025

Three years ago, our world stopped as Tyla fought one of the hardest battles of her life. 💜
Today, she is smiling, healing, thriving, and inspiring so many families walking through epilepsy.

On this Giving Tuesday, I’m grateful for every person who has supported Tyla’s Journey — through your prayers, your shares, your encouragement, and your support of our mission to spread epilepsy awareness.

Thank you for being part of our story and helping us continue this work. 💜✨

If you’d like to support today, visit our Etsy shop or share this post to help raise awareness. Every share helps another family feel seen. 💜
👉🏾 https://tylasjourney.etsy.com

03/26/2025

Today we wear purple.
For Tyla.
For every warrior, family, and caregiver facing epilepsy with strength and love.💪🏾💜

Let’s raise awareness, spark conversations, and stand together. 🫶🏾💜
Epilepsy is more than seizures—it’s resilience, bravery, and community.

Tag someone you’re wearing purple for today.

03/24/2025

Being a parent to a child with epilepsy means wearing many hats—advocate, protector, encourager, and the fiercest cheerleader. You speak up when they can’t, fight for what they need, and celebrate every win—big or small.

This journey isn’t easy, but your love and strength shine through every step. Today, we see you, we honor you, and we stand with you.

Keep showing up. You’re doing an amazing job.

03/23/2025

In honor of Purple Day®, organize your school or workplace to wear purple on March 26. Use this opportunity to print out a Seizure First Aid poster and share it with your colleagues or classmates to raise awareness. Get involved at: https://epilepsy.com/purpleday?utm_campaign=purpleday&utm_source=facebook&utm_medium=social&utm_content=1742667360

03/19/2025

✨ Thriving with Epilepsy ✨
Tyla’s journey is a testament to strength, perseverance, and resilience! Despite the challenges, she continues to thrive, achieving milestones that inspire so many. From high school graduation to making the Dean’s List in college, she proves that epilepsy does not define her! 💜💪

If you or a loved one is on a similar journey, know that you are not alone. Keep pushing forward, keep believing, and keep thriving! YOU got this! 💜

02/25/2025

💜💜

We are excited to partner with the Anita Kaufmann Foundation for the Purple Day® Expo 2025! Join us at Disney’s Coronado Springs Resort in Orlando, Florida, on March 8 for an unforgettable day of family-friendly fun, celebration, and support for the epilepsy community. Register today at PurpleDayExpo.com – we can’t wait to see you there!