Grady's Krazy Kidney Adventure

Grady's Krazy Kidney Adventure A page dedicated to keep updates on Grady's journey with Congenital Nephrotic Syndrome.

TWO YEARS!! It has been almost 2 years since Grady received his "Kaylie Kidney" as he calls it. He has caught up on almo...
08/05/2025

TWO YEARS!! It has been almost 2 years since Grady received his "Kaylie Kidney" as he calls it. He has caught up on almost all of his milestones. He has the biggest personality and can be quite the brute at times. We are beyond thankful to Grady's guardian angel Kaylie. Also to her family that so feverently prays and thinks of us. We just got done with the routine 2 year biopsy. Now we lay flat until 7 pm, have a little sleepover while waiting for results and hopefully head home decently early tomorrow!

12/23/2024

Well leave it to Grady to fool everyone. No UTI, just norovirus or the common stomach bug that's super contagious. Getting discharged to go home and rest and stay hydrated and spend Christmas at home.

Child Life at Children's always goes above and beyond for these kiddos. Grady woke up from a nap to presents and that de...
12/22/2024

Child Life at Children's always goes above and beyond for these kiddos. Grady woke up from a nap to presents and that definitely lifted his spirits! Shout out to our favorite Child Life specialist Lexi for helping me pick out gifts for Grady and a couple for us to bring home to brothers!!

Prayers for our sweet boy, this UTI is really kicking his butt. We have been fortunate to never of had one before. Betwe...
12/22/2024

Prayers for our sweet boy, this UTI is really kicking his butt. We have been fortunate to never of had one before. Between the fever, stomach cramps and now nausea with it, he's feeling pretty crummy. Hoping with the 2nd round of antibiotics this afternoon he'll start to turn for the better.

After a long wait in our ER room, we are just waiting for a room upstairs now. The culprit is a UTI, hoping for a quick ...
12/22/2024

After a long wait in our ER room, we are just waiting for a room upstairs now. The culprit is a UTI, hoping for a quick stay but will be anywhere from 24-48 hours.

Prayers and good vibes for our Grady. Hoping for a short admission! Dang ole cold and flu season!
12/21/2024

Prayers and good vibes for our Grady. Hoping for a short admission! Dang ole cold and flu season!

12/17/2024
12/14/2024

Not many updates today….

Yesterday Tim helped me hang ornaments from the ceiling to bring the Christmas magic to Calvin’s room.

Today they did a head ultrasound. One of his brain bleeds MIGHT be getting worse, but also might not be. They’re repeating the ultrasound tomorrow.

They’re increasing his feeds again so he’ll be up to 12ml every 3 hours.

Otherwise all of his labs look great.

Dad is hoping to get to the hospital here soon to get an update on his hands and feet.

Calvin and his family could use some extra prayers from Grady's prayer warriors!
12/06/2024

Calvin and his family could use some extra prayers from Grady's prayer warriors!

Not quite as happy of a post as yesterday…

At 6:30 this morning we lost him briefly. His heart became too agitated after the irritation of surgery and flatlined. Luckily our surgeon was two doors down and was able to get in the room and start chest compressions quickly.

He is now on ECMO life support to attempt to let his heart and lungs rest. Today has been rough and we haven’t established a good rhythm yet with the machine but they assure us this is normal.

The next few days will tell us a lot. So for now we’re back to the “hurry up and wait” game while allowing his little ♥️ to rest and recover.

25 years ago, our true hero was born. The day she was born, her parents probably had no idea how many lives she would sa...
07/21/2024

25 years ago, our true hero was born. The day she was born, her parents probably had no idea how many lives she would save, when she left for Heaven. With her families permission, I asked if I could share her story, on what would be a highly celebrated one year anniversary for us; but as I thought on it, I thought what a painful week that would be for them. I want us to celebrate on the day she was born 25 years ago. Instead of just celebrating Grady's one year kidney anniversary, I wanted us to celebrate the life this girl lived and the life she gave not only us but so many others. I want to share a small bit from her obituary to start, something I read often.

Kaylie Jo

"She was the baby of our family and caused us all to slow down and look at the beauty that is in everyday life. On walks, we sometimes called her our pokey little puppy as she was usually a few steps behind enjoying the little things we hurried past. She admired God’s creation in all facets, noticing every distinct detail in the beauty of the earth, often incorporating it in her artwork. Her nurturing instincts were evident anytime she was around animals. She especially doted on her 2 kitties she had as childhood pets. Kaylie graduated from Carlisle High School in 2018. The fruit of the Holy Spirit was evident in Kaylie’s life in her teen years through missions work. Every summer beginning in middle school Kaylie spent a week on a Native American reservation in South Dakota so she could spread the love of Jesus to children and families there. She was always the first to take notice of the lonely or left out children and was intentional about making them feel special. Kaylie was determined to live on the “sunny side” of life and sought to see the best in all people. She expressed her beautiful creativity in so many ways in her early teen years including writing, cosmetics and playing the flute. Later she expressed it through drawing, painting, and most recently preparing unique food at Cheese Bar"

What a life to lead at only 24 years old. Kaylie not only SAVED Grady, but she saved 5 more.

I remember the day so clearly, when I just knew it was her. It had been a couple of weeks since I had sent out our donor-recipient letter through Mid- America Transplant and one evening a girl named Karina started liking posts on Grady's page, and something drew me to her name, and then she liked another post the next day, then someone named Brayden, with the same last name liked a post. I quickly clicked on Karina's profile, I just knew I was about to find Grady's kidney hero. Once I read a post that then confirmed what I thought, I fell to my knees and just cried and prayed. It was such an overwhelming feeling to finally have the missing piece to our miracle. Knowing her and her family, it was all we were missing. From there a letter came in, giving us a small bit of information and then shortly after came our response from Kaylie's family, to our letter. We are slowly building a life-long relationship with them. We couldn’t be more blessed to have these amazing people in our Grady and our lives. They raised such a selfless young lady, who gave Grady and our family this life changing miracle. I am going to attach pictures that will truly show the type of young woman Kaylie was, and why she deserves to be celebrated for all she was and she did before she left for Heaven. I ask you pray for her family today and do something selfless in her honor.

Happy Birthday Kaylie, thank you 💚

06/13/2024
Little shout-out to one of our favorite nurses Lydia, she's moving soon, and will no longer be at SLCH. We are going to ...
06/12/2024

Little shout-out to one of our favorite nurses Lydia, she's moving soon, and will no longer be at SLCH. We are going to miss her so much but we are so excited for her next chapters in life!!

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