Grady's Krazy Kidney Adventure

Grady's Krazy Kidney Adventure A page dedicated to keep updates on Grady's journey with Congenital Nephrotic Syndrome.

Today marked another milestone for Grady. He officially became accessory free for the first time since he's been 10 Days...
04/30/2026

Today marked another milestone for Grady. He officially became accessory free for the first time since he's been 10 Days old, between central lines, catheters for dialysis, and his Gtube. Also how fitting when I realized it was exactly 4 years ago to the day that Grady got his G Tube placed, he got it removed and surgically closed. He was a trooper and is only dealing with a little discomfort this evening.

11/14/2025

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TWO YEARS!! It has been almost 2 years since Grady received his "Kaylie Kidney" as he calls it. He has caught up on almo...
08/05/2025

TWO YEARS!! It has been almost 2 years since Grady received his "Kaylie Kidney" as he calls it. He has caught up on almost all of his milestones. He has the biggest personality and can be quite the brute at times. We are beyond thankful to Grady's guardian angel Kaylie. Also to her family that so feverently prays and thinks of us. We just got done with the routine 2 year biopsy. Now we lay flat until 7 pm, have a little sleepover while waiting for results and hopefully head home decently early tomorrow!

12/23/2024

Well leave it to Grady to fool everyone. No UTI, just norovirus or the common stomach bug that's super contagious. Getting discharged to go home and rest and stay hydrated and spend Christmas at home.

Child Life at Children's always goes above and beyond for these kiddos. Grady woke up from a nap to presents and that de...
12/22/2024

Child Life at Children's always goes above and beyond for these kiddos. Grady woke up from a nap to presents and that definitely lifted his spirits! Shout out to our favorite Child Life specialist Lexi for helping me pick out gifts for Grady and a couple for us to bring home to brothers!!

Prayers for our sweet boy, this UTI is really kicking his butt. We have been fortunate to never of had one before. Betwe...
12/22/2024

Prayers for our sweet boy, this UTI is really kicking his butt. We have been fortunate to never of had one before. Between the fever, stomach cramps and now nausea with it, he's feeling pretty crummy. Hoping with the 2nd round of antibiotics this afternoon he'll start to turn for the better.

After a long wait in our ER room, we are just waiting for a room upstairs now. The culprit is a UTI, hoping for a quick ...
12/22/2024

After a long wait in our ER room, we are just waiting for a room upstairs now. The culprit is a UTI, hoping for a quick stay but will be anywhere from 24-48 hours.

Prayers and good vibes for our Grady. Hoping for a short admission! Dang ole cold and flu season!
12/21/2024

Prayers and good vibes for our Grady. Hoping for a short admission! Dang ole cold and flu season!

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