Periodic Paralysis Association

03/26/2026

Real change for people with periodic paralysis requires action… and World Periodic Paralysis Day is officially powering that! Not someday, not tomorrow, now!

We are thrilled to share the very first World Periodic Paralysis Hill Day in Washington DC hosted by the Periodic Paralysis Association. This week board member, Leslie Wengler and President, Cienna Ditri came together to advocate on Capitol Hill to ensure the needs of this community are no longer overlooked. Together they asked that awareness, research, and advocacy for periodic paralysis are supported by the NIH, CDC, and Department of Transportation. They shared real life lived experiences that emphasize the change that is needed to give everyone in our community the quality of life they deserve throughout all areas of life. Change is coming… stay tuned!

03/23/2026

Breaking News!! 6 States have officially proclaimed March 23, 2026 as
World Periodic Paralysis Day:
Michigan
Oregon
South Carolina
Connecticut
Massachusetts
Nebraska

World Periodic Paralysis Day is by the periodic paralysis community, for the periodic paralysis community. It is our community of members, board members, and leaders coming together that truly make this day special. Thank you to new PPA board member Mark Dysinger for securing the Connecticut proclamation, PPSN Director Ralph Berthiaume for securing Massachusetts, PPA President Cienna Ditri for securing Michigan, advocacy power partner Tashia Tomlinson for securing South Carolina, and advocacy power partner Staci Armburst for securing Nebraska. Together we are truly uniting the global community to power progress for periodic paralysis! Congratulations and thank you to everyone for their hard work raising awareness and advocating this ⚡️🌃🐭

None of this would be possible without our lead sponsor making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/23/2026

Happy World Periodic Paralysis Day from Chicago! Did you know that Chicago was World Periodic Paralysis Day’s first Beacon of Hope? These beacons represent strength, unity, and illuminate hope for people all around the world living with this group of rare neuromuscular conditions.

Not only is Chicago home to the first beacon of hope, but it is also home to who through their programs like free genetic testing, patient access managers, patient mentors, and resources are able to create hope, strength, and unity every day for people living with periodic paralysis.

This year the Periodic Paralysis Association and united to celebrate the change they are partnering to create and to power up periodic paralysis together! The Periodic Paralysis Association is grateful to for being our lead sponsor and partner in creating World Periodic Paralysis Day.

How are you celebrating World Periodic Paralysis Day?

03/22/2026

1 day until World Periodic Parlaysis Day 2026! ✨⚡️🌃🐭 How are you celebrating?
An easy way to get involved is to show your zeal for teal! Wear your World Periodic Paralysis Day T-shirt or any teal/turquoise clothes and post a picture to social media! Remember to tag us and use , together we can power up periodic paralysis!

Looking for more ways to get involved? Check out 6 more ways you can get involved on the 2nd picture or visit www.worlperiodicparalysisday.com to share your story, become an ambassador, and celebrate with us!

None of this would be possible without our lead sponsor making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/21/2026

Action Alert: Do you live near Chicago, Philadelphia, San Diego, or Tampa? Gather your family and friends to see the 2026 World Periodic Paralysis Day Beacons of Hope lit up to raise awareness. Share pictures of the Beacons of Hope on social media to help power up periodic paralysis around the world!

-Chicago Skyline 3/20-3/23
-San Diego Convention Center 3/21
-Philadelphia: 3/21-3/23
* One Liberty Place
* Triad1828
* FirstService Residential
-Tampa: 3/23
* City of Tampa City Center
* Curtis Hixon Waterfront Park
* Old City Hall
* Tampa Riverwalk
* River Tower Park
* Tampa Bridges

A big thank you to our lead sponsor for making this day possible and to the , , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/20/2026

Extra! Extra! Read all about it! World Periodic Paralysis Day 2026 is making headlines! Over 266 syndications have shared about already including Yahoo! Finance, Associated Press, Pittsburgh Post-Gazette, Boston Herald, Houston News Today, The Sun Chronicle, The Chronicle Journal, Capitol Hill Times, Buffalo News, and many, many more!

Periodic Paralysis can be an invisible illness, but this year we are making it visible to the world! Together we can power up periodic paralysis! ⚡️🐭🌃
A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/18/2026

Meet Leslie Wengler! Not only is Leslie a dedicated World Periodic Paralysis Day power partner, but she is also one of the newest Periodic Paralysis Association Board Members (introduction coming soon)! Leslie has been a big part of the periodic paralysis community for many years, but this year has gone above and beyond getting the Ocala and Belleview proclamations.

What’s in a proclamation? The proclamation officially proclaims that both of these areas declare March 23rd as World Periodic Paralysis Day. Not only that, but they share important awareness information with the community.

Do you want to become a power partner like Leslie? Visit www.WorldPeriodicParalysisDay.com to get involved and learn more! Congratulations Leslie and thank you for your hard work, passion, and dedication.

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

Image Description: Leslie, a blonde haired white woman smiles holding a proclamation at a city meeting and in the second picture in front of a piano.

03/18/2026

World Periodic Paralysis Day is coming up soon! This Monday, March 23rd!

6 Ways for you to get involved!

1. Become an Ambassador:
Take the lead in raising awareness about Periodic Paralysis! WPPD
Ambassadors help educate their communities, share resources, and encourage others to join the movement.
2. WPPD Gear:
Wear Your Shirt with Pride
Show your support with this year’s official WPPD t-shirts! Designed to inspire hope and unity, these shirts are perfect for the whole family. Order yours today and wear them leading up to and on March 23!
3. Participate in Activities:
Join exciting activities like visiting illuminated WPPD Beacons of Hope in Chicago, Philadelphia, Tampa, and San Diego or attend the 2nd annual world periodic paralysis day meetup hosted by . From educational sessions to fun community events, there’s something for everyone leading up to and on March 23.
4. Share Your Story:
Your personal journey is a powerful way to educate others. Reach out to local media, write a blog post, or share your story on our website. Together, we can raise awareness and inspire hope.
5. Get Social:
Help spread the facts about Periodic Paralysis! Use our downloadable social media graphics and post leading up to WPPD. Don’t forget to tag us and use
to amplify the message.
6. Donate: Make a difference by supporting WPPD’s mission. Your gift furthers critical awareness, advocacy, and programming throughout the year.

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

Image description: a infographic sharing the 6 ways to get involved in World Periodic Paralysis Day listed above.

03/17/2026

Meet Laser! Laser is the official mascot of World Periodic Paralysis Day! Why?? Scroll through the photos of this post to read Laser’s story and learn why he was chosen as our mascot.

How can you help Laser power up Periodic Paralysis? Visit the Beacons of Hope with family and friends, share pictures of them on social media tagging ,
get involved and together we can create the change our community deserves.

The brighter our hope shines the more cities will light up for us next year! A big thank you to Chicago, San Diego, Tamp, and Philadelphia for becoming beacons of hope to raise awareness for people living with periodic paralysis around the world.

None of this would be possible without our lead sponsor making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/16/2026

We need your help to power up periodic paralysis! This weekend to celebrate World Periodic Paralysis Day (March 23rd), we are creating beacons of hope around the United States! What started last year with the Chicago Skyline has grown to 4 cities!
-Chicago Skyline 3/20-3/23
-San Diego Convention Center 3/21
-Philadelphia:
* One Liberty Place
* Triad1828
* FirstService Residential
3/21-3/23
-Tampa:
* City of Tampa City Center
* Curtis Hixon Waterfront Park
* Old City Hall
* Tampa Riverwalk
* River Tower Park
* Tampa Bridges
3/23

How can you help? Get your family, friends and come see these beacons of hope lit up to raise awareness. Visit the beacons of hope, take pictures of them & with them, share them on social media tagging , and then we need everyone in our community to reshare them.

The brighter our hope shines the more cities will light up for us next year! A big thank you to Chicago, San Diego, Tamp, and Philadelphia for becoming beacons of hope to raise awareness for people living with periodic paralysis around the world.

None of this would be possible without our lead sponsor making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

03/15/2026

Did you know that periodic paralysis is a rare neuromuscular condition affecting about 3,000-4,000 individuals in the United States? 🤔

-many physicians have little or no experience diagnosing it.
-diagnosis often requires seeing many doctors over several years.
-symptoms of periodic paralysis can be misleading because they often occur during attacks with normal muscle function between episodes. This makes diagnosis tricky as clinical exams may appear “normal”.
-common symptoms: severe weakness, high blood pressure spikes, facial palsy, sudden paralysis

A big goal of World Periodic Paralysis Day is to create global unity in the periodic paralysis community for the first time. By coming together and sharing our stories we can create so much hope! Head to www.WorldPeriodicParalysisDay.com to share your story on our global map and create a glimmer of hope! Maybe you will even find someone else near you! 🗺️🦓
A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

12/03/2025

The Periodic Paralysis Association is grateful today and everyday for J. Raymond Construction Corp. and their dedication to support periodic paralysis awareness, science based information, advocacy and research.

This Giving Tuesday, we’re grateful to sponsor the Periodic Paralysis Association. Their mission is simple but powerful: awareness, science-based information, and advocacy for the PP community. Discover more or donate at periodicparalysis.org.