Dystonia Medical Research Foundation Canada

21/08/2025

Attention Alberta Members! If you haven’t already, be sure to reserve your seat and a complimentary lunch at the upcoming symposium. Reserve your spot today: https://dystoniacanada.org/event/2025AlbertaSymposium

Please help us spread the word by sharing this message.

The Calgary and Edmonton dystonia support groups invite you the 2025 Alberta Dystonia Symposium!

Learn from medical professionals and each other, as well as participate in interactive sessions.
✨ Lunch and refreshments provided. Space is limited—so register today!

📍 Red Deer, Alberta
🗓️ Saturday, September 20, 2025
⏰ 12:00 PM – 5:00 PM MDT
👉 Registration is required. Reserve your seat and complimentary lunch before the August 25, 2025 deadline.

🔗 Learn more & register today: https://dystoniacanada.org/event/2025AlbertaSymposium

For questions, kindly call 1-587-456-8462, or email: albertasupport@dystoniacanada.org.

13/08/2025

Join the Greater Toronto Area (GTA) Dystonia Support Group at the Toronto Waterfront Marathon - 5km Charity Challenge, on October 18, 2025.

Have a colleague, friend or family member who loves running? Why not encourage them to run and fundraise for dystonia? Every dollar raised goes toward critical research, as well as programs that bring care, hope, and connection to the dystonia community.

For every registration under the DMRF Canada charity team, $5 goes toward supporting dystonia in Canada.

🔗 Learn more and register: https://dystoniacanada.org/event/TCSWaterFront

12/08/2025

DMRF Canada is looking for dedicated volunteers to support Bingo World and Gaming Richmond Hill. Your time can make a real difference—every shift helps raise approximately $3,000 in funds for critical dystonia research, awareness, and support programs.

📍Located in Richmond Hill.
⏰ Each shift is 2 hours, and volunteers should be comfortable walking or standing for the full duration, including tasks like tucking in chairs.
💵 Volunteers will receive monetary incentives with an additional travel reimbursement.
🗓️ Commitment of at least six months.
📌 Volunteers who successfully complete 10 bingo sessions within 12 months will receive a honorarium for their commitment and hard work!

👉 For more information about volunteering, bingo policies, and how to get involved, please visit: https://dystoniacanada.org/bingovolunteer

Bingo World and Gaming Richmond Hill Charitable Gaming. Community Good.

08/08/2025

Our July 2025 e-newsletter has just been released!

Discover the latest news, upcoming events, and important updates. Check your inbox or visit dystoniacanada.org/newsletters to sign up.

Stay tuned. Stay engaged. Stay informed.

06/08/2025

The Calgary and Edmonton dystonia support groups invite you the 2025 Alberta Dystonia Symposium!

Learn from medical professionals and each other, as well as participate in interactive sessions.
✨ Lunch and refreshments provided. Space is limited—so register today!

📍 Red Deer, Alberta
🗓️ Saturday, September 20, 2025
⏰ 12:00 PM – 5:00 PM MDT
👉 Registration is required. Reserve your seat and complimentary lunch before the August 25, 2025 deadline.

🔗 Learn more & register today: https://dystoniacanada.org/event/2025AlbertaSymposium

For questions, kindly call 1-587-456-8462, or email: albertasupport@dystoniacanada.org.

05/08/2025

Congratulations to our Top 3 Individual Fundraisers for Freedom to Move 2025! 🏃💙
Together Mary Guy, Oliver Jaakkola and Geoffrey Allan helped us raise over $15,000 for dystonia awareness and support!

A huge thank you to everyone who helped us successfully raise over $50,000 through Freedom to Move 2025. Your commitment fuels our mission and brings us closer to a better future for the dystonia community. 💛

28/07/2025

Donate Pre-loved Goods for Dystonia! 💙

Join the Toronto Support Group FundDrive 2025, supporting dystonia research and awareness — now through September 7!

The Greater Toronto Area Dystonia Support Group is collecting gently used items — from books and clothing to small furniture — and donating them to Value Village, which will make a financial contribution to DMRF Canada based on the volume collected. These funds will go toward vital dystonia research and community support programs.

📍 Drop-off location: 1 Mountbatten Rd, Thornhill
Pickup available (volunteer drivers needed!)

Please share this message to help turn forgotten goods into meaningful impact for the dystonia community.

🔗 Learn more: dystoniacanada.org/events/torontofunddrive2025
Questions? Contact Stephen Rogow, Fundraising Lead for the Toronto Group:
📧 SRogow1818@aol.com | 📞 416-508-7102

16/07/2025

While we’ve raised over $50,000 for the 2025 Freedom to Move: Run, Walk and Wheel event, our goal is $60,000! To help us get there, we’ve extended fundraising until July 31st.

Donate: https://dystonia.crowdchange.ca/

Every dollar will go toward critical research, support services, and raising awareness for those living with dystonia across Canada. 💙

From our team to yours—thank you for moving with us. 👟💪

10/07/2025

FTM 2025 Video Contest Winner! 🏆🎥

We're thrilled to announce that the winner of this year's Freedom to Move Video Contest is Jirome de Castro () 🙌💙

Jirome's powerful video captured the spirit of movement, resilience, and community that defines Freedom to Move. His message continues to inspire us all.

👏 Thank you to everyone who shared their stories and supported this campaign. Your voices make a difference.

A reminder – the fundraising is still going on. You can still qualify for the top fundraiser prizes until July 14. https://dystonia.crowdchange.ca/

08/07/2025

⏳ Last Chance to Give!
Fundraising for Freedom to Move 2025 wraps on July 14. We’re close to our national goal — let’s finish strong!

Thanks to generous donors like you, we're funding vital research and care for those living with dystonia. Together with SickKids Hospital, we’re proud to support Dr. Lindsey Vogt— a dedicated neurologist, focused on dystonia research in children and supporting integrated training in both pediatric and adult care.

Donate to the Toronto Event:
https://dystonia.crowdchange.ca/99504

Donate to the National Event:
https://dystonia.crowdchange.ca/93259