11/20/2025
If I had a dollar for every time a non-pediatric OT human said to me, "Oh, you work with Autistic kids, you must be so patient."
No. Never. Not once did I have to draw on "patience" to interact with, honor, and support an Autistic child.
In fact, this concept has never even landed soundly enough in my brain to register what it means. How could it take "patience" to respect and support another human being who is doing their best and doing what they can to survive, to exist, to feel welcome, to feel loved?
But I DO need patience, and some kind of fortitude that at times I have to dig deep to find, when I work with teachers who were never trained for one second in nervous system regulation or the neuroscience of Autism.
And patience for school administration who make assumptions - thousands of these assumptions are made across the country every day - that an Autistic student is working the system in some manipulative, pre-meditated, nasty manner. When really, the system isn't working for them. That simple.
And patience, yes, for parents who assume their Autistic child is being "stubborn" or "difficult" or "not trying hard enough".
I have seen this and continue to see this all the time - and there are times that I reach a point that my patience for THOSE ADULTS wears thin.
But never for the child because they are simply who they are - smart, sweet, innocent, willing - until they're fried by systems and people who don't give them the benefit of the doubt, who don't honor their "No" or their bodies or their unique, monotropic, alexithymic minds.
Yes, what I witness sometimes in the ways Autistic children are treated in schools, in our schools, by adults who really should take the time to learn more and to know better, is brutally hard to watch.
I believe and will always believe that there is nothing more fragile than the voice of an Autistic child or teen who is whispering something or screaming it out loud - hoping someone will respect their lived experience, their processing, and perception. Hoping someone will cut them a break and try to understand, to connect.
It takes patience, it does, to try to make a positive difference, but the patience has nothing to do, ever, with the child themself.