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07/27/2025

This is the last day for these meds. My white blood cell count was dangerously low due to one of my anti rejection meds.

The med I started on Friday for 3 days to counteract this issue and stimulate my bone marrow to make more white blood cells they said would cause pain that could be treated with Tylenol.

However I am one of the 15 percent that gets severe pain with this med so they gave me 4 different pain meds over the 3 hours I was in the ER and none really touched the pain, but made me sleepy enough to get some rest once released to go home.
Woke up a bit better. Did my last dose of the white blood cell medicine about 2 hours ago. I just took a hydrocodone a few minutes ago as I feel the pain starting to creep back in now. Praying to the Man above that I get past this soon. Getting stir crazy.

Back in the ER this Sunday morning with side effects of a new med.  Looking for some relief.
07/27/2025

Back in the ER this Sunday morning with side effects of a new med. Looking for some relief.

06/29/2025

As you may be aware from Jenny's post yesterday, we received news from our medical team that we could return home once we had arranged for post-transplant care to be transferred to the Wichita area. We successfully accomplished this by early Friday afternoon, which enabled us to depart the Omaha area yesterday morning.

I am still in the process of adjusting to my medication regimen and am experiencing various issues while trying to rest and adhere to a suitable diet to facilitate liver regeneration to the necessary size for my body. As a result, I have multiple appointments with a local team for continued monitoring and repair of my incision site as well as multiple appointments during the week for bloodwork to be drawn to ensure that all my numbers continue to look and trend in the right direction. Jenny and I are deeply grateful to be back home and appreciate the continued prayers and support from everyone. We are also thankful to my cousin Craig and his family for their sacrifices and assistance in helping me recover to a point where I can function and live life without the constant threat of liver failure.

THANK YOU ALL SO MUCH FOR FOLLOWING US, PRAYING FOR US AS WELL AS POSTING UPLIFTING COMMENTS!!!

06/25/2025

Jenny and I took our normal walking route to the hospital yesterday morning so I can get my wound VAC looked at. On the way over we got into the first building and we're getting ready to get on the elevators to go up a couple floors and Jenny ran into a college friend from Iowa, but attended Highland with her who lives in the Omaha area.

We were gonna try to get together with them after my appointment and their appointment but it didn't work out so we're gonna try to get together on Friday before they leave town for the holiday weekend.

We got to the clinic to have my open incision assessed and how the wound VAC is doing to help treat it and when the physicians assistant and the nurse pulled off the wound VAC bandaging they are very happy with what they saw and decided to go a couple more days with the wound VAC.

Tomorrow I have a follow up appointment and they will pull off the wound VAC again and assess again if I continue with the wound VAC or go a different path with the open incision points.

On Monday, I went in for some bloodwork, and as a result of that bloodwork, they have changed an anabiotic to a different anabiotic, as some numbers were starting to trend in the wrong direction. I started those antibiotics yesterday and waiting for the bloodwork to come in from today to see if those numbers are trending back down .

After tomorrow's appointment, we should know a little bit more with regards to what the future holds for us in staying in the Omaha area.

Right now, I am focusing on trying to get enough walking in for rehab and trying to get my strength back. Still not sleeping the absolute best but that could be due to a lot of the medication I’m on and my body still trying to adjust that.

Still treating the blood clot that they found in my lungs. Still sleeping a lot during the day as my body is still healing up in between sleeping, we are going to appointments or running errands.

06/20/2025

It's official I've been bounced from the hospital. They gave me a take home wound VAC and I'm supposed to have a follow up appointment for it this coming Tuesday morning. Until then only sponge baths. I do have or I'm still on blood thinner and then on the 26th the blood thinner dose drops down a little bit and also on anabiotic for about another 6 to 8 days.

I have bloodwork that I have to do Monday, Wednesday and Friday this next week. And also have an appointment Thursday with the transplant team. I'm hoping to learn this Thursday what their approximation is as to how much longer I need to stay in the area.

Also, my white blood cell count has dropped down to within normal range at this point and believe it is or was raised as a result of the blood clot found in my lungs. All my other liver enzyme numbers are all looking really good and feel pretty good. Just didn’t get a whole lotta sleep last night as I was woken up every few hours for blood pressure temperature in pulse ox

06/19/2025

OK, so the latest update is that the surgeon came around with a team they looked at my open wounds and they have since put a VAC system to help wound healing for my incision points that are open. They also ordered a Doppler to be done just to ensure there's no Blood clots in my legs. As it stands right now, the surgeon and team are looking to try to get me out of the hospital tomorrow morning. Praying that everything goes well tonight so that we can be discharged early tomorrow morning.

06/19/2025

Today’s Featured Cupcake is The Bourbon Bacon a chocolaty cupcake topped with Bourbon buttercream drizzled in melted chocolate topped with a spiced sweet maple bacon piece and pipette filled with Jack Daniel’s 😍😋
Cupcake lineup with other delicious flavors are…
Lemon Raspberry
Melissa Etheridge Birthday Cake
Peach Cobbler
Coconut Cream
Butter Rum
Strawberry Delight
Strawnana
Grasshopper
Lemony Lemon
Carrot
Reese’s
Chocolate Cravings
Triple Chocolate
Red Velvet

06/19/2025

As of this morning, I was able to get some sleep last night off and on in between the team coming in and taking bloodwork to make sure the right amount of blood thinner is in my system. I did get to a point again last night, not as bad as I did in the ER, Where I was a bit nauseous so I got some medicine for that. I am on a nonstop, blood thinner via IV for now close to 24 hours. The liver transplant team should be making rounds late this morning and hope to learn more at that time as to what the next steps are.

White blood cell count went from 24 to 14 over night too which is awesome.

06/19/2025
06/18/2025
06/18/2025

Latest update is, I have been admitted to the hospital as they found a blood clot in my lungs and have since put me on blood thinner to help prevent the blood clot from being problematic. They also saw one of my incision sites looking infected, so we are now also doing a wet dry packing for that as well?

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Wichita, KS

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+13166402624

Website

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