Liam's Legacy

Liam's Legacy Follow as we navigate our 11 yo little man at St Jude Childrens Research Hospital.

Liams has been dignozed NF1, cancer, nonverbal Autism, epilepsy, and legally blind

Can you guys please vote for Liam’s school Celandine Life Prep Academy?
09/05/2025

Can you guys please vote for Liam’s school Celandine Life Prep Academy?

Each year we distribute $2,000,000

09/05/2025

Amen! You are enough

September is Childhood Cancer Awareness Month, this is a month I remember and honor all the friends we have lost along t...
09/02/2025

September is Childhood Cancer Awareness Month, this is a month I remember and honor all the friends we have lost along the way. This month I also honor Liam. Our Warrior!

Look at my babies! can’t wait to update you on the first week of School! day 4 and they are little Slugs lol
08/14/2025

Look at my babies! can’t wait to update you on the first week of School! day 4 and they are little Slugs lol

These 2 start school TOMORROW!!!! I’m so happy… they don’t seem to be as happy as I am though! Liam keeps saying “nope s...
08/11/2025

These 2 start school TOMORROW!!!! I’m so happy… they don’t seem to be as happy as I am though! Liam keeps saying “nope school” and Declan is like noooooooooo! 🤣the fun of summer is done! Mommy is ready for a break.

Today was Meet the TEACHER!  Does it really count if we know our teachers already! School starts Monday!  Then Dentist f...
08/07/2025

Today was Meet the TEACHER! Does it really count if we know our teachers already! School starts Monday! Then Dentist for Declan (2 teeth removed and a couple cavities and sealants done.

It’s wild to see how much Liam has grown in just 18 month… look at that height difference! But while he’s getting taller...
07/31/2025

It’s wild to see how much Liam has grown in just 18 month… look at that height difference! But while he’s getting taller, I’ve started noticing some subtle changes in how he’s handling what little vision he has left. He seems to be struggling more lately, and though it’s been gradual, the signs are there. Just another reminder of how quickly things can shift when you’re navigating complex medical needs

When Medicaid will only cover half the dosage for Liam’s abilify so we pay out of pocket for the other half, (apparently...
07/26/2025

When Medicaid will only cover half the dosage for Liam’s abilify so we pay out of pocket for the other half, (apparently even though its prescribed by a dr, disability medicaid says because he is not the age of 13), they will only cover 30 of 60 pills a month, they called to tell me with all their discount cards it was still $171.89 when everytime before it was $27.00 after discount card. So I told him I’d call him back took me 45 seconds to search for another rx discount card for his meds and it’s $21.59. I called Walgreens back and guess what, it worked! Even cheaper than the discount rx plans they have used prior. A win is a win! A win is a win!

I love this boy so much!
07/23/2025

I love this boy so much!

Liam loves country music, which I love, but he will play a song to death. Over and over and over. He has currently found...
07/21/2025

Liam loves country music, which I love, but he will play a song to death. Over and over and over. He has currently found Troubadour by George Straight, if this child ruins George Strait for me I’m gonna go crazy.🤣😂 I may send smoke signals. He plays it so loud I’m sure the neighbors hear it or Mickey Mouse Clubhouse. I say turn it down please, or get out of the kitchen 86392828828728828288383x a day. Please send help!

07/17/2025

Liam's new favorite phrase...."I declare..." what he is declaring we don't know but he declares it multiple times a day....

Thanks Pete from Mickey Mouse Clubhouse

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04/09/2025

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I'm holding a fundraiser to help Alex’s Lemonade Stand Foundation move one step closer to finding a cure for all children with cancer! You can join me by helping me plan this event, attending my event, or making a donation right to this page. The money you donate will pay for research to find bett...

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Winter Park, FL

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