Liam's Legacy

Liam's Legacy Follow as we navigate with our 11 yo little man at St Jude Childrens Research Hospital and Arnold Palmer Childrens Hospital. We share to help others

Liam’s has been diagnosed with NF1, cancer, nonverbal Autism, epilepsy, scoliosis and legally blind.

Let them!
11/29/2025

Let them!

Happy Thanksgiving from my family to yours! I am so thankful for all of you! 💕
11/28/2025

Happy Thanksgiving from my family to yours! I am so thankful for all of you! 💕

At Liam’s Thanksgiving Celebration at school, they had a parade and games, a hayride and Liam’s more concerned about get...
11/20/2025

At Liam’s Thanksgiving Celebration at school, they had a parade and games, a hayride and Liam’s more concerned about getting his backpack going home! Lol 😂 I am so tired, not to mention somebody *cough cough* decided 2:30 am was a great time to wake up

Now to get port accessed and draw labs and Oncology!  Liam hadn’t been eating we took him to the pediatrician last Wedne...
11/10/2025

Now to get port accessed and draw labs and Oncology! Liam hadn’t been eating we took him to the pediatrician last Wednesday afternoon and he had lost 10 lbs in 2 weeks. So between all his drs they decided zofran 3x a day and add benedryl in am and before bed if needed, boy is finally eating again! He asked for cheeseballs this morning before even opening his eyes, when I woke them up 😂😂 make me feel so much better. no more gagging just looking at food, and takes his medicine with ease!

11/10/2025
11/10/2025

Excuse my horrible singing, singing ABCs and counting down he knows there is an end, so it’s only was to keep him calm. There was a time he would NEVER even let touch him with the echocardiogram when he was awake. They have been doing them during his sedation with his MRIs every 3 months so he doesn’t stress out, Dr only requested a small pic but they were able to do the entire echo and he stayed calm the entire time! I am so proud of him!!!!!

Just hanging out with my Daddy. I mean he’s not grown at all! Seriously this kid needs to stop growing I just bought him...
11/01/2025

Just hanging out with my Daddy. I mean he’s not grown at all! Seriously this kid needs to stop growing I just bought him all new clothes and at this rate I’m gonna have to buy a bunch more

I wish I trusted people to watch Liam. I hate that I don’t or feel like I can’t. Like my stomach hurts to even think abo...
10/31/2025

I wish I trusted people to watch Liam. I hate that I don’t or feel like I can’t. Like my stomach hurts to even think about putting him in others care besides a couple people

Let me introduce you to Steve Irwin the OG Crocodile 🐊 Hunter, but we put his name on his shirt, they had trunk or treat...
10/30/2025

Let me introduce you to Steve Irwin the OG Crocodile 🐊 Hunter, but we put his name on his shirt, they had trunk or treat at school towards the end of the day. These are the pics he let me take then he wanted the shirt off. But he has said twick or tweet all day. He’s been getting sick first thing in the morning, he just looks at food and start to gag, I’ve had to get creative to get his meds taken so he doesn’t throw them up. I’ve had to explain to school we need to come up with a plan if he gets sick at school because sending him home every time he does even though he isn’t “sick” per say isn’t going to cut it. He missed field trip yesterday they made me come get him because he was gagging looking at food. I’ve told them if he gags just remove it, it seems out of sight out of mind with it. I understand they were going to a play and didn’t want to risk him getting sick there. I just hate that he misses so may cool events from being sent home. It breaks mommas heart

This boy starts chemo Tuesday evening! It will be delivered by the speciality pharmacy during the day! Please pray for s...
10/25/2025

This boy starts chemo Tuesday evening! It will be delivered by the speciality pharmacy during the day! Please pray for some kind of normalcy, and that we don’t have too many side effects! They took this pic at school Friday! OMG so cute I can’t

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Winter Park, FL

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