MDA Kansas City

08/01/2025

MDA Summer Camp, offered in-person and virtually, is provided at no cost to families of children and young adults living with neuromuscular diseases. 2025 also marks the 75th Anniversary of the Muscular Dystrophy Association. New York, Tuesday, January 7, 2025 – The Muscular Dystrophy Association ...

24/10/2024

MDA partners including International Association of Fire Fighters, National Association of Letter Carriers, CITGO Petroleum Corporation, and more, to participate in the reveal of the winners’ dream costume in 2025. NEW YORK, Thursday, October 24, 2024 – The Muscular Dystrophy Association (MDA), ...

15/10/2024

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

14/10/2024

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

23/09/2024

MDA volunteer Doug Britton's commitment to serving others and making a positive impact on the world is a foundation in his family.

22/09/2024

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

18/09/2024

🎉 Big win! The House of Representatives passed Accelerating Kids’ Access to Care Act (AKAC), bringing us closer to ensuring kids living with neuromuscular diseases get faster access to life-saving treatments, no matter where they live. Huge thanks to MDA advocates and our congressional champions for your support! Join us to continue to advocate for access for our community at MDA.org/Advocacy

16/09/2024

Books and the stories they contain have the power to connect communities and help children learn and grow values and empathy which is why representation is important. Our Ambassador shares his story!

13/09/2024

September is National Preparedness Month. Check out our MDA Virtual Learning Preparing for Emergencies session with Roger Lopez, MDA- International Association of Fire Fighters National Coordinator, retired Captain & Safety Officer San Antonio Fire Department, and Derek Pollnow, MDA State Coordinator, Federated Fire Fighters of Wyoming and Engineer/Paramedic & Wildland Coordinator, Cheyenne Fire & Rescue. This webinar addresses preparing for the unexpected and will help attendees understand potential risks in their geographical area and the different types of emergencies they might encounter, how to make an emergency plan, and how to build an emergency kit. Watch on-demand here: https://www.youtube.com/watch?app=desktop&v=OI0x41Mm3-0

11/09/2024

On this day of remembrance, MDA pays tribute to the bravery and sacrifice of the hundreds of New York City Fire Department (FDNY) fire fighters and International Association of Fire Fighters members lost to 9/11. Their courage will forever inspire us. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger.

06/09/2024

This Muscular Dystrophy Awareness Month, feel empowered to make an impact. We have 30 amazing ideas for you to support people living with neuromuscular disease. Pick one (or more!) and make a difference today. 🌟

Explore the list here: MDA.org/30Ways30Days

04/09/2024

The day is finally here! We’re happy to finally announce the virtual premiere of Good Bad Things, streaming on VEEPS from Friday, September 20th at 6 pm PST - Sunday, September 22nd at 11:59 PST. 25% of your ticket price will benefit MDA's mission to empower the neuromuscular community to live longer, more independent lives.

“Good Bad Things is the movie I wish I had seen on a screen 20 years ago as a young adult living with a disability, unsure of how I fit into the world around me. Living your life, never seeing anyone on a screen, in a magazine or on a stage who looks like you is lonely. This movie and the inclusion it stands for is so needed and the reach of the cinema is powerful. This is how we will change the world for the 61 million people living in the United States with disabilities,” said Mindy Henderson, Vice President, Disability Outreach & Empowerment, Muscular Dystrophy Association.

Purchase your ticket today: https://veeps.events/goodbadthings-mda

26/08/2024

Over 420 IAFF ‘Fill the Boot’ events nationwide with local fire departments over Labor Day Weekend celebrating 70 years of partnership with MDA and IAFF NBC KSDK’s ‘Show of Strength’ Broadcast on September 1 live from Grants Farm in St. Louis from 8-10 p.m. MDA on the Hill from September 8...

23/08/2024

23/08/2024

📝 August is Make A Will Month! Your estate planning today can secure a better tomorrow for people living with neuromuscular diseases. By including MDA in your will, you can help continue this incredible work, funding research, care, and advocacy efforts that change lives.

Visit MDA's Planned Giving Page to learn how your legacy can make a lasting impact. Together, we can ensure that the fight against muscular dystrophy, ALS and related neuromuscular diseases carries on for generations to come. Get started here: https://mdalegacy.org/