Cure ADNP Prayer Warriors Group

21/11/2023

This Thanksgiving🍁 let us give THANKS for all the progress & interest made in the field of science & research for more understanding of the ADNP gene & it's role in it's function for both the brain & organs! It's full speed ahead! Thank you to all the ADNP Syndrome families who have contributed to 2022-2023 (recent) publications & movement forward! GLOBAL COLLABORATION is a blessing! AMEN!

06/05/2023

♥️🙏♥️

15/02/2023

💓

❤️SomeoneRARE

https://www.adnpfoundation.org

30/01/2023

A 2023 prayer:
Jesus, we are asking to give us the strength to find the words to describe the special children who suffer dally (but also triumph ) w/ ADNP Syndrome, & and are on display for the world to see so that your purpose (through their lives) is done. Bless the followers on this page who seek you first over their own plans - through real prayer and discernment. Thanking & praising you already for so many mountians you have moved and the endurance you have supplied to so many so they can do the work & be obedient to the paths set in front of them. May others watching be lead to know you, too.
In Jesus's name. AMEN! ♥️🙏
We humbling ask if it's in your will to CURE ADNP - stop the suffering for ADNP patients across the world; the sleepless nights, the surgeries, the children who have no voices & much more.
We ask for your mercy as the government & science rest in your hands and your timing alone. AMEN 🙏♥️

23/11/2022

When there's not a cure in sight... As believers, we continue to believe, HOPE , and our journey be led by faith, not by sight. In his perfect timing all is healed.
On Thanksgiving, we have much to be thankful for.
Every smile, every breath, every memory made. 

09/09/2022

Tons of researchers, scientists, families & advocates are meeting this week in Europe about about ADNP Syndrome; God bless all their work & MOVE the mountain🏔 again. AMEN 🙏

05/01/2022

Pray to CURE all diseases caused by mutations in the brain development gene called ADNP. 2022❤️

16/07/2021

Prayers for patients living with adnp syndrome & for those families who have lost. Prayers for endurance in the labs across the globe. The mouse line has arrived in NY: prayers for thoughtful research & for God to to bless the work as we wait in prayerful faith for treatments! Amen!

11/05/2021

Please register to participate & share. This event is about awareness for ADNP Kids. Make our dreams and HOPE a reality! ♥️

16/03/2021

To know God...is to TRUST God...under ALL circumstances. Praying 🙏 so God hears us!

23/12/2020

At Christmas time and always!

Happy Friday Prayer 🙏 Warriors!

23/12/2020

It’s been awhile since I last posted, but not since I last prayed for our ADNP Warriors ❤️This CHRISTmas 🎄 we are thankful for the good news & we believe in the promises that were taught to each of us in our Christian religions & words found in scriptures of the bible. Through our children’s suffering and loss of functions we see him before us equipping us for the future because believe with real faith that he is capable.
We are given grace found in the gospel. We believe he is the chosen one & he has entrusted us with these children. We ask for his will, not our own, in movement forward & paths intersected to move the mountains that lye ahead for treatments that can repair the adnp gene 🧬. In Jesus name we pray at Christmas time & always!
Behold our King- the Messiah!

08/11/2020

Believe & let God fight your battles for you.
He is capable. ❤️ ADNP Kids ❤️

06/10/2020

Wow! 🎄🎄🎄🎄🎄🎁🎁🎁🎁🎁🎄🎄🎄🎄🎄🎁🎁🎁🎁🎁❤️❤️❤️❤️🙏
It’s been a long time! Let’s pray with intent and real faith for all the ADNP Kids that are Warriors participating in the Ketamine trial in NY! We pray for their safety after infusions & for the improvements in symptoms. We pray next that if it is God’s will that this might be a viable first treatment to improve behaviors. anxiety and other things these kids suffer from - making their quality of life painful for both themselves and their families who watch them suffer.
In Jesus name we pray. Amen!

22/08/2020

Here’s how you can help AND PRAY! ❤️

Replacement gene therapy

Here’s how you can help.

22/08/2020

This is rare❤️
The ADNP Brain Gene is practically the most crucial gene of a human. It controls (whether healthy or mutated) controls 400 other genes of the human body & organs.

"Understanding my daughter's rare condition is the hardest but best thing I've ever done."

20/08/2020

Praying for the “Compassionate Use” for investigational drugs esp. for ADNP Children.
Asking God to remove and move the mountains for the mercy of his children. Pray this in your churches, in your homes, with real FAITH, adoration chapels and all other places we know his presence exists.
The loss of function is real for ADNP patients.
Amen!

19/07/2020

❤️

Philippians 1:6, “And I am sure of this, that he who began a good work in you will bring it to completion at the day of Jesus Christ.” If you feel like you’re losing everything, remember that trees lose their leaves every year, and they still stand tall and wait for better days to come. …

04/07/2020

Happy 4th of July ADNP Prayer 🙏 Warriors! Stay safe & healthy & remember: Love is always the answer & we are praying for the cure for all ADNP patients❤️

22/05/2020

Happy Friday Prayer 🙏 Warriors!

22/05/2020

It's been too long since I have made a post! I hope you are all keeping safe during this pandemic! There are many blessings & also hardships during this time. Lots of reflection. Wanted to share a bit of inspiration to our ADNP patient families today & all those praying for ADNP research!

10/04/2020

05/04/2020

On this Palm Sunday 2020 - as we remember the day you entered Jerusalem ...That you give us healing in all this the hurting. Continue to protect our ADNP Warriors and we ask that we might continue to have resources for ADNP Patients across the globe after this is over. Strengthen and *draw people closer to you in this devastation of a disease that strikes our globe. In Jesus's name we pray. Amen.

17/03/2020

Asking for God to help our mission for funding. Our ADNP families can not help our children fight and fund this alone.
ADNP gene 🧬 is complex- affecting children and adults. ❤️
ADNP Kids deserve treatments like other rare genetic diseases currently have.

Our ADNP Warriors and their families are true fighters. ADNP Kids Research Foundation is working tirelessly to find a cure and fund research to bring answers to families and their children. Keep fighting warriors, soon things will be brighter❤️

15/03/2020

We ask that we pray this prayer for our ADNP Warrior children battling right now for breathes.
❤️

15/03/2020

Find out about coronavirus risk for people with epilepsy, effects on seizure, medications, insurance, and precautions.

12/03/2020

Prayer Warriors: need immediate prayers for one of our ADNP warriors who battling right now. We pray for recovery for his lungs. We pray for the PICU to help him the way they can and for Jesus to lead them. Pray for the family too.

09/03/2020

Prayer Warriors: please pray for one of our ADNP Kids who has been transferred into hospital. We need lots of prayers for wisdom for proper diagnosis & care.

04/03/2020

Prayer Warriors:
We built this page specifically for prayer request for ADNP patients and we know that all of you are in God's will in that we walk by faith rather than by sight. I am asking all of you to pray everyday for two of our youngest patients of ADNP as their families specific prayer request for their children -because of long-term care. These little warriors are battling right now. We know that the road ahead is not easy and that they will be in long-& term care. Hospitalizations and caregiving is very strenuous and these little patients fight. Let's hold them up in prayer and ask God to give wisdom to the doctors, Removing pride, collaboration with other centers, strength to their families, and let God give these little Warriors continue to battle with God's backing.
It's in Jesus's name we pray. Amen

Other genetic diseases have treatment. We are praying for the future of ADNP patients.