Iamazebra

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1963 I was diagnosed with NF1 2009 pheochromatoma.2018 TIO I listened followed what doctors told me.Then I was told nothing could be done.Go home&put your life in order.So I did.this is my story of how I took back my life

08/03/2025

For my birthday as I’m spinning around this earth gratefully another year (66) I have a desire to travel the world and share my healing health journey. A friend helped create a GoFundMe to aid in paying off my interest only mortgage loan.
In the comments is a link to the GoFundMe as well as the YouTube video filmed by Tiny House Expedition where I shared my healing journey and how my Tiny House journey was created into a reality.
If all my friends on social could donate just a tiny dollar my dreams will be fulfilled. If you are unable to donate I completely understand, I ask if you would please share this out to your friends and community to help my Tiny Healing dream come true.
Thank you from my whole heart.

16/09/2021

Story written by my friend, Kara: Suzie is a wonderful, generous soul with three very … Suzie Schaum needs your support for Please Help With Medical Expenses

16/06/2021

Did you know certain essential oils are safe for man’s best friend?

Those shown here can actually support your dog’s health when used correctly. Just remember to dilute them beforehand! (Your dog has a much stronger sense of smell than you do, so imagine how strong these potent essential oils smell to them!)

Learn more at https://loom.ly/78sfSJE

01/09/2020

Route guidance:

YOU HAVE ARRIVED AT YOUR DESTINATION ☺️

My Super Woman pose...because my  WHY is bigger than any NO!!!
01/09/2020

My Super Woman pose...
because my
WHY is bigger than any NO!!!

I wanted to share this doctor's explanation of what I have. I suffered needlessly wrongly medicated for decades. I was t...
29/08/2020

I wanted to share this doctor's explanation of what I have. I suffered needlessly wrongly medicated for decades. I was told I was a hypochondriac and needed to see a psychiatrist.
I have an extremely rare disease. I will stand on every mountain and shout as loud as I can so others do not needlessly have to suffer like I have my whole life.
I'm no longer angry. I do not want any pity...
I just want everyone to know.... If I wouldn't have stood up and fought and challenged and fired every doctor that I had in the past... I would not have the platform....
Everybody hold on tight It's about to get loud in here....

Current Status Not Enrolled Price Free Get Started Login to Enroll Course Slides Information Tumor-induced Osteomalacia (TIO): Diagnosis and Management Slides Tumor-induced Osteomalacia (TIO): Diagnosis and Management Tumor-induced Osteomalacia (TIO): Diagnosis and Management0 Jointly Provided by Su...

27/08/2020

Officially licensed jewelry from the TV show “Vikings!” We offer historically inspired Celtic and Viking jewelry, in bronze and sterling silver, made by hand in our workshop in the South Carolina, USA.

16/07/2020

We are excited to announce our Pleasant Grove clinic is now accepting new patients! For those of you looking to change the trajectory of your health, Prime M...

5 1/2 hours...19 phone calls...Insurance approval....My cost $12,546.00 per monthly injectionCompletely unattainable.......
10/07/2020

5 1/2 hours...19 phone calls...

Insurance approval....

My cost $12,546.00 per monthly injection

Completely unattainable....

In comes Compassionate Care/Assistance Funding...

With the Grace of God...a dedicated healthcare team at Duke...a whole lot of doTERRA Essential Oils...

We should be set for my first Crysvita Injection Monday July 13 2020.







These two supplements/vitamin saved my life.The phos-nak I started taking in January 2018 and the calcitriol in July 201...
07/07/2020

These two supplements/vitamin saved my life.

The phos-nak I started taking in January 2018 and the calcitriol in July 2019...
Totally amazing how a supplement/vitamin can redivine one's life. But they did....

Now my body can hold steady at 1.7-1.9 phosphorus blood levels...still far below the normal range of 2.5.
My active vitamin D 3 hovers in a safe range redirecting the phosphorus and calcium to my bones...

I took my last dose Sunday night...

I am scheduled "God Willing" for my first Crysvita Injection Monday July 13 2020.

Already I feel it.... I know my phosphorus has dropped.... I'm massively supplementing with my diet..... I know what's next the pain is first a little more than I normally endure.... It will increase and it will become unbearable....Next my body will begin to have tremors..... It will start jerking..... At any given moment.... My body begins to lose control ...

I know all of this because I've lived all of this far too long..... Before a diagnosis....

What I don't know is what I'm stepping into come Monday July 13th 2020....
I have read case studies and I've interviewed people... Everyone is different each and every one of us. And there aren't that many of us...

To say I'm scared or to say I'm nervous doesn't even come close. All I know is I'm a vessel. God provided me with this journey for a reason and I have to go on for everyone who's behind me. My compressed fractured body will go on... I have a lot of people to meet. I have a lot of people to help. I have a lot of things to say because
My Why is Bigger than any NO...





20/06/2020

SILVER SPRING, Md., June 18, 2020 /PRNewswire/ -- Today, the U.S. Food and Drug Administration approved Crysvita (burosumab-twza) injection to treat patients age two and older with tumor-induced osteomalacia (TIO),

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