Polymyo-Who?

Polymyo-Who? Hi! I'm Krystle. I am here to authentically inspire those who are going through similar experiences as me! Join me on this Polymyositis journey!

13/12/2022

Visiting amazing places across the world is everyone’s biggest dream. Whether it’s beaches, mountains, amusement parks, national parks, etc., everyone wants to visit as much as possible in their life. However, not everyone can. Aside from the costs, some people simply CAN’T reach these places....

18/10/2022

This whole thing isn’t only an adjustment for me but it’s also an adjustment for my family. I dont recall anyone checking on my children and fiancé. A simple “hey how you doing” is free. It’s quick and painless. My mom. I don’t recall anyone reaching out to her but sh*t….imagine your child losing their mobility and you can’t do anything about it. it makes me sad that no one checks on them foreal but they’ve literally turned into Jr caretakers. That’s how I feel.

Today I got bold and stood up while holding Lilo. It’s been months since I held one of our cats while walking. Today was the day I decided to try. Lilo had been on my lap for a long time. I had to use the bathroom and she wasn’t trying to move foreal. So I decided to adjust her in my arms like a baby and stand. I stood for like 30 seconds before I took my first step. Every thing was cool. Took the second step and down goes Frazier. I KNEW I was about to fall but I still can’t break my falls.

My chin hit the wall and I fell into the washing machine and then hit the ground. I WANTED to cry but instead I yelled for Kennedy. She isn’t feeling too well so it took a few tries to get me off the floor.

I made a joke when Ken asked me what happened but my heart shattered. The first time this happened was when I came home from the hospital the first time. S**t, the mark is still there. But I told myself I’d be careful so that it won’t happen again and it did today. All while trying to simply hold Lilo and walk with her.

Send a message to learn more

All moments aren’t bad. I still smile
02/10/2022

All moments aren’t bad. I still smile

I haven’t slept in our bed. It’s super tough getting upstairs. Tim has been sleeping down here with me. I’m grateful for...
02/10/2022

I haven’t slept in our bed. It’s super tough getting upstairs. Tim has been sleeping down here with me. I’m grateful for a wonderful partner. I enjoy watching him sleep because he does soooo much. Like a lot! Yesterday I asked him to get me something from our room. He jumped up to do it and then his legs gave out. I truly wish I could do more around here. I’m just extremely grateful. He isn’t obligated to go through this heavy storm but he’s been here every step of the way.

Hello everyone! Today is my 30th birthday! Thank you for the birthday wishes that I received so far. Each will be addres...
24/09/2022

Hello everyone! Today is my 30th birthday! Thank you for the birthday wishes that I received so far. Each will be addressed individually. If you have my number, please use it today 😊

For my birthday this year, I decided to put my pride to the side and ask for help. I created a GoFundMe. Please visit and share! Link is in my bio.

I am currently in the car and Tim and I are on our way to some place. It’s a surprise so I don’t know where we’re going but I’m excited to see!

My grandma sang me happy birthday. My mom came over and made pancakes! I got balloons, flowers, birthday cards, calls, FaceTimes, text etc and it’s not even noon yet. So far so good ❤️

This is 30!

 did it again! I love my hair! Thank you so much!!!!
17/09/2022

did it again! I love my hair! Thank you so much!!!!

🎯
04/09/2022

🎯

Address


Website

Alerts

Be the first to know and let us send you an email when Polymyo-Who? posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

  • Address
  • Alerts
  • Claim ownership or report listing
  • Want your practice to be the top-listed Clinic?

Share