Adrenal Cancer Warriors - We ARE Stronger Together

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Adrenal Cancer Warriors-Stronger Together is a non profit group that brings awareness to Adrenal Cancer, provide information to our patients, and raise funds for research for the Adrenal Cancer Research Program at the University of Colorado

27/03/2025

Wednesday Q+A with Dr Margulies: What temperature should be kept at? Inquiring travelers wish to know!

We recommend room temp (68-77F) and never higher than 86F. Reconstituted solu-cortef should be used immediately.

Got your own Q+A? Let us know! Email NADFSupport@NADF.us

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04/02/2025

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18/01/2025

đź‘ŹKudos to Para Alliance for the release of two patient guides for metanephrines testing. It is used to diagnose pheochromocytoma (pheo) or paraganglioma (para).
👉A Patient Guide to Urine Metanephrines Testing and a Patient Guide to Blood Plasma Metanephrines Testing are available for free download.
âś…Read more and download the guides:
https://incalliance.org/pheo-para-alliance-patient-guides/

18/01/2025

Join us for a special Europe-friendly meeting time on Tuesday, January 28! Please join us as we share and connect about our pheo para journey. Led by patients and caregivers, just like you. This is an online meeting where we can see and hear eachother. If you would like to passively listen in, but you do not want to participate you can use the call in number or turn off your video after you join. You will be required at the beginning of the meeting to introduce yourself. https://us02web.zoom.us/meeting/register/bQCe7yfDSwiyrwyP7teX_g #/registration

17/01/2025

People with Cushing’s syndrome are at an increased risk of experiencing dangerous blood clotting events in the years following diagnosis, a study says. https://buff.ly/42ijgzp

I am doing a Super Bowl Pool to raise money for Adrenal Cancer Research. All money will go to the University of Colorad...
06/01/2025

I am doing a Super Bowl Pool to raise money for Adrenal Cancer Research. All money will go to the University of Colorado Adrenal Cancer Research. If you would like to participate please send a private message for the link! đź’š

11/12/2024

Patients on Isturisa for Cushing’s see better outcomes when late-night salivary cortisol and urinary free cortisol return to normal, per a study. https://bit.ly/41pZTnT

16/05/2024

Glucocorticoid-Induced Adrenal Insufficiency Clinical Practice Guideline (CPG)

We are pleased to announce our first joint CPG with European Society of Endocrinology (ESE). Diagnosis and Therapy of Glucocorticoid-Induced Adrenal Insufficiency is now available. The new guideline has been drafted by a US and European group of experts, led by Clinical Co-chairs Tobias Else (USA) and Felix Beuschlein (Switzerland), and Lead Methodologist Olaf Dekkers (The Netherlands).

Read more in Endocrine News: https://bit.ly/3QKGkjT

Come cruise with us!!
13/05/2024

Come cruise with us!!

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