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Rare Disease Headquarters Official Website: Linking Rare Disease Patients and Doctors Treating Them to World Renowned Resources - FREE - the ONLY source of its kind.

FREE DiseaseHQ.com has now added 2 NEW Rare Diseases to the ResourcePulmonary FibrosisParaneoplastic SyndromeFor continu...
19/03/2025

FREE DiseaseHQ.com has now added 2 NEW Rare Diseases to the Resource

Pulmonary Fibrosis
Paraneoplastic Syndrome

For continued updates and the MOST extensive resources in the entire world JOIN NOW - FREE at https://www.diseasehq.com/join_patients

Search the most complete rare disease headquarters directory. Find rare disease headquarters.

18/02/2025

Mayo Clinic awarded $22M grant to study ibudilast in ALS patients

05/02/2025

A new opioid-free pain medication was approved by the U.S. Food and Drug Administration (FDA) on Thursday, marking a non-addictive alternative for patients.

Journavx (suzetrigine), made by Vertex, is the "first and only approved non-opioid oral pain signal inhibitor," according to a press release from the Massachusetts-based company.

The new drug is intended for treatment of moderate to severe acute pain in adults.

RARE DISEASE UPDATE - FREE FROM DISEASEHQ.COM. JOIN NOW - IT'S FREE AT https://www.diseasehq.com/join_patientsThe U.S. F...
16/01/2025

RARE DISEASE UPDATE - FREE FROM DISEASEHQ.COM. JOIN NOW - IT'S FREE AT https://www.diseasehq.com/join_patients

The U.S. Food and Drug Administration (FDA) has approved Novo Nordisk’s concizumab, which will be sold under the brand name Alhemo, as a daily treatment to prevent or reduce the frequency of bleeding episodes in certain adults and adolescents with hemophilia.

Eligible patients are those with hemophilia A or B, who are 12 and older, and have inhibitors, a type of neutralizing antibody against blood clotting proteins that can render standard preventive (prophylactic) treatments less effective.

“The approval of Alhemo signifies a remarkable achievement in prophylactic hemophilia treatment for individuals with inhibitors aged 12 years and older who, in some cases, currently have few options,” Anna Windle, PhD, senior vice president of clinical development at Novo Nordisk, said in a company press release.

Alhemo has also been granted marketing authorization in Canada, Australia, Switzerland, Japan, and the European Union, although the specific patient groups eligible for treatment vary by country.

In contrast to many other prophylactic treatments that are given via infusions into the bloodstream (intravenous), Alhemo is given via under-the-skin (subcutaneous) injections, the first subcutaneous treatment of its kind to be approved for this patient population, Novo Nordisk noted.

https://www.diseasehq.com/join_patients

Search the most complete rare disease headquarters directory. Find rare disease headquarters.

NEW Advanced Therapies NOW Added to DiseaseHQ.com - FREE
05/10/2024

NEW Advanced Therapies NOW Added to DiseaseHQ.com - FREE

15/05/2024

SUBJECT: Covering the high costs for rare disease treatment – A FREE ONE-STOP-SHOP to find ALL the options – DiseaseHQ.com

Good afternoon:

We know the cost for rare diseases can be incredibly high. So, UNLIKE ANY OTHER RARE DISEASE RESOURCE, the FREE-TO-JOIN DiseaseHQ.com resource provides ALL of them on one website… FREE. This is one of the many FREE services provided by DiseaseHQ.com.

SEE THE LIST BELOW. But, first…

IT’S EASY. JOIN FOR FREE. Click on any one or more of the links and you are introduced to virtually every single resource available to help you pay for rare disease treatment.

WE ENCOURAGE YOU TO JOIN DISEASEHQ.COM so that you can receive updates on these and any new services at:

CONSUMERS, CAREGIVERS, PATIENTS
https://www.diseasehq.com/join_patients

HEALTHCARE PROFESSIONALS
https://www.diseasehq.com/join_Healthcare_Professional

The following is a list of the many locations consumers and healthcare practitioners can go to learn about their options by joining DiseaseHQ.com:

THE MARK CUBAN COST PLUS DRUG COMPANY – DiseaseHQ.com collaborates with this organization to carry each other’s information and receives NO financial benefit.
(Link located on the DiseaseHQ.com category at “RESOURCE CENTER, TUTORIALS, EDUCATION”)

PHARMACEUTICAL and BIOTECH COMPANIES (DiseaseHQ.com carries more than 300 rare disease drugs): FINANCIAL ASSISTANCE PROGRAMS - LOCATED ON INDIVIDUAL RARE DISEASE PAGES – go to “SUPPORT SERVICES” or “FINANCIAL AND COPAY ASSISTANCE” located under each drug designed for the specified rare disease.

PATIENT ASSISTANCE PROGRAMS (OFTEN FREE DRUGS BASED ON INCOME)
LOCATED ON INDIVIDUAL RARE DISEASE PAGES – go to “support services” located under each drug designed for the specified rare disease.

DISCOUNT CARDS (NEARLY 20 LISTED ON DISEASEHQ.COM)
LOCATED ON INDIVIDUAL RARE DISEASE PAGES – scroll down on any rare disease page and click on “DRUG DISCOUNT CARDS.”

RARECARE ASSISTANCE PROGRAM and INSUREKIDSNOW (Government programs)
(Link located on the DiseaseHQ.com category at “RESOURCE CENTER, TUTORIALS, EDUCATION”)

MEDICAID SERVICES (State Government Programs)
(Link located on the DiseaseHQ.com category at “RESOURCE CENTER, TUTORIALS, EDUCATION”)

SOCIAL SECURITY FOR RARE DISEASE (Federal Government Programs)
(Link located on the DiseaseHQ.com category at “RESOURCE CENTER, TUTORIALS, EDUCATION”)

FOUNDATIONS & ASSOCIATIONS (THERE ARE MORE THAN 200 foundations and associations listed on DiseaseHQ.com)
LOCATED ON INDIVIDUAL RARE DISEASE PAGES – scroll down on any rare disease page and click on one or more association and/or foundation listed on the page.

There’s nothing like DiseaseHQ.com. Cost options is just one of the many incredible resources located ONLY on the DiseaseHQ.com website.

JOIN NOW… IT’S FREE.

Bob

Robert J. Britting Sr. B.S., M.B.A.
President and Founder: RJ Dynamics, LLC
A Male and Female Owned Company Serving ALL HCPs and Consumer Persuasions
PO Box 575
Furlong, PA 18925
1 609 306 1078 (EST/USA)
Robert@DiseaseHQ.com
https://www.diseasehq.com/about/contact

Follow at:
https://www.twitter.com/DiseaseHQ
https://www.facebook.com/DiseaseHQ

LATEST (EXCERPTED) QUOTE…

Dr. James McGuire
Professor, Physician Scholar
Temple University
Leonard Abrams Center for Advanced Wound Healing

"This invaluable source of accumulated information is a GOLD MINE for physicians and their patients... I learn more from my patients… that's where I found out about DiseaseHQ and the amazing resource that Robert Britting has created.

Patients with rare diseases and their doctors spend a great deal of time and often (search many) resources looking for answers when they have a rare malady with confusing symptoms that can send a doctor down 100 “rabbit holes” before they find the one that can lead to a treatment or, hopefully, a cure.

Bob has created a site where much of the searching and its accompanying agony can be relieved."

Official Website: Linking Rare Disease Patients and Doctors Treating Them to World Renowned Resources - FREE - the ONLY source of its kind.

DiseaseHQ.com: A FREE TO JOIN RARE DISEASE Resource Like No Other
11/03/2024

DiseaseHQ.com: A FREE TO JOIN RARE DISEASE Resource Like No Other

DiseaseHQ.com: A FREE RARE DISEASE Resource Like No Other
03/03/2024

DiseaseHQ.com: A FREE RARE DISEASE Resource Like No Other

Address

PO Box 575

18925

Opening Hours

Monday 08:00 - 18:30
Tuesday 08:00 - 18:30
Wednesday 08:00 - 18:30
Thursday 08:00 - 18:30
Friday 08:00 - 18:30

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